Carers

Tom Clarke Excerpts

Thursday 20th June 2013 Commons Chamber

[Mr Tom Clarke (Coatbridge, Chryston and Bellshill) (Lab)]

I congratulate the right hon. Member for Sutton and Cheam (Paul Burstow) and his colleagues on initiating this debate, and we have heard some interesting and well-informed speeches.

Some of my colleagues referred—understandably—to legislation, and they have high hopes of the Bill currently going through Parliament. A long time ago I had the privilege of piloting through Parliament the Disabled Persons (Services, Consultation and Representation) Act 1986. It was widely welcomed, but between then and now I discovered that although we can have an Act of Parliament, if it is not fully implemented it makes much less of an impression on people’s problems than we would like.

For example, section 8 of that Act dealt with the duty of local authorities to take the abilities of carers into account. I am sorry to say that I have not seen great enthusiasm among local authorities to implement that provision, although there are some excellent exceptions. When legislation is passed, including the 1986 Act, we all have a responsibility to work with carers organisations, which do a great job, and with carers in our constituencies, to ensure that the wishes of the House are implemented by health authorities, local authorities, the Department for Work and Pensions, and all those who have an influence on the lives of carers.

Together with Lord Brian Rix, I co-chair the all-party group on learning disability, and we are worried about the issue of carers and return to it often. We recognise, as other hon. Members have done, the hard work that carers do every day for the most vulnerable people, and that often their voices are not heard. That is largely because their role in looking after young people—or young people looking after elderly people—is a 24-hour, seven-day-a-week job.

As colleagues have said, caring is a stressful job and people receive few breaks to support what they are doing. In many cases, their commitment to the role is absolutely outstanding, touching and—as colleagues have said—deserving of statutory support that must be fully implemented. This is not my most important point, but carers have drawn my attention to the economics of what is happening, and it is right to mention that according to Carers UK, voluntary acts by carers save the UK public purse £119 billion per year. Do we not have a responsibility to respond? I believe we do.

Let me explain why short breaks are important. Family carers need time off and a break from the constant work of caring. Some families access short break centres or schemes that involve placements with families. Others receive direct payment to purchase their own support—I very much welcome that and was involved in that legislation. As hon. Members have indicated, the current review of welfare has had many effects. My niece and nephew are carers at weekends and look after people with learning disabilities. They stay overnight and therefore need a room for themselves. Under the Government’s legislation, however, and the tax we all deplore—the bedroom tax—we find that it might not be possible for them to continue doing that job. It would also be hard for their clients to find a smaller house that can be adapted in the way their current houses are, quite apart from the problems and upset that such a move would mean.

In 2003, a report by Mencap showed that eight out of 10 carers were at breaking point. Its 2006 report showed that the number had fallen to seven out of 10, but new research indicates that it is now back to eight out of 10. I do not believe that we in Parliament distinguish ourselves if we allow such conditions to continue throughout our country and in individual homes and communities in our constituencies.

The vast majority of carers are not being offered the short breaks they desperately need. One carer stated:

“When you care for someone 24 hours per day and you know it’s going to be for ever, sometimes a short break is your only hope.”

I am sorry to say that we do not often deliver that. Of the few carers who access short breaks, most do not feel that the services are adequate, and seven out of 10 say that they do not receive services that fully meet their family’s needs.

I acknowledge the Government’s recent investment of £1.2 billion in services for people caring for children and adults, but according to Mencap—a well-informed organisation that does work on the ground—there have been no improvements in the well-being of family carers a decade after the issue was first highlighted.

I speak as a former councillor and former president of the Convention of Scottish Local Authorities, but I am disappointed with the role of local councils. Many are failing to meet their duty to assess needs and regularly review care arrangements. Despite the role of local authorities—I do not mention health boards, although they are important too—the startling facts are that six out of 10 carers have never had a carer’s assessment to identify their needs. Worse than that, two out of 10 said that they had been refused an assessment altogether. Mencap says that after 10 years that is simply unacceptable, but I would put it much more strongly: it is a blight on all of us.

The big issue is that families simply do not know how to access those vital short breaks. Three out of 10 family carers have never had a short break and do not know how to access them. Much more must be done. The fundamental failure of some local authorities to provide information about what is available is not acceptable, even from a statutory point of view. Carers are being left in the dark, without support and on their own. Local authority spending is in decline. According to Mencap, spending by local authorities on children’s short break services peaked in 2010-11, but 63% of local authorities reduced this expenditure in 2011-12. In the current economic climate, money must be saved—we understand that—but not on the back of those who have already sacrificed so much for the most vulnerable, including family members and others.

Spending on adult services has also fallen consistently over the past three years, with 54% of local authorities reducing their spending on short breaks for adults in 2012-13 compared with the previous year. We need to listen to what carers take the time to tell us. One carer felt “absolutely devastated” and continued:

“I have sobbed over the way”

the council

“has informed us of their decision to close this wonderful care home.”

I say again that we cannot balance the books on the backs of hard-working people or build a better society by disregarding those who give the most.

So what needs to be done? We need substantial and meaningful action from the Government, local authorities, health bodies and service providers. No family carer should be left to reach breaking point and every family that needs a short break should get one. Each carer should have their needs identified and should not feel that they are alone and without support. Money that is intended for short breaks should be spent on providing short-term breaks. We need services that are person-centred and able to meet the differing care needs of the people who use them. Information about local need for short breaks should be collected more consistently, distributed accordingly and used to inform what services are made available to all the public.

I end with a quote provided by Mencap. This parent said:

“I love my children and that keeps me alive but I’m worn down…When I can’t cope I self-harm as I have to carry on but it’s too much to handle at times.”

Carers’ voices must be heard, their needs must be met and they must never feel defenceless and alone.