Paediatric Cancers of the Central Nervous System

Thangam Debbonaire Excerpts

Monday 22nd October 2018 Commons Chamber

[Chris Elmore]

I agree entirely with my hon. Friend. It is such an important part of the recovery that families go through. That a child has cancer is in itself a huge trauma. What comes next is so important, and mental health for both the child and the family cannot be forgotten. This again underlines the life-changing effects of cancers such as AT/RT on a child. It will in all likelihood impact on every aspect of their life.

There is a great deal of positive work happening in this House. I would like to pay tribute to my hon. Friend the Member for Bristol West (Thangam Debbonaire) and her colleagues on the all-party group on children, teenagers and young adults with cancer, who recently held an inquiry into patient experiences of childhood cancers, the findings of which were published this year. After discussing the inquiry with my hon. Friend, I would like to thank the Minister for the positive contribution he made to it. I ask him and the Secretary of State to look at the report’s recommendations. Many are comparatively inexpensive and would make a huge difference to the children and their families who find themselves in this situation. I appeal to the Minister to update the House on his response to the all-party group’s findings.

[Thangam Debbonaire (Bristol West) (Lab)]

I thank my hon. Friend for giving way and for the very kind tribute he paid to the all-party group for its inquiry. Many of the panel members are in the House today. I would just like to add my support to what he has just asked of the Minister. Does my hon. Friend agree that it would be good if the Government could commit to greater education and awareness? Although it is rare, the signs and symptoms of cancer in children need to be picked up early. The earlier they are picked up, the more likely it is that treatment is successful.

[Chris Elmore]

I entirely agree with my hon. Friend. I again pay tribute to her and her leadership not just on childhood cancer but on cancer generally. She is a true heroine of the cause and we are extremely grateful to have her in this House. It is clear that there is positive work being undertaken on this issue, but it has to be said that we can do more, much more, to help to tackle this disease.

Members across the House will remember when our dearly missed friend, the late Baroness Jowell, spoke so movingly, just days before Cian passed away last January, about the need to work much harder to make brain tumour research more effective. Tessa stressed the need to support the Eliminate Cancer Initiative to improve the chances of tackling this rare illness internationally. The creation of a clinical trial network around the world, an increase in the use of active trials, and the use of a global database would help to improve research and patient care. As Tessa so rightly said, through sharing knowledge across borders, and thereby at a local level across medical governance structures, we will be best placed to advance our knowledge of the most difficult and rare forms of cancers, including cancers of the central nervous system.

Making that happen will involve further investment in research into specific tumours such as AT/RT, and international collaboration to ensure that we have the best minds and the most innovative technology working on the most difficult of challenges. I believe the UK Government can be doing more to facilitate that. When Ministers visit other countries abroad, more often than not the two principal reasons for the trip are to further international trade or promote international security, both of which are of course vital. However, it is my view that in discussions with our foreign counterparts the issue of international research must rise up the agenda if we are to have any hope of accelerating our efforts in this area.