Deafness and Hearing Loss

Teresa Pearce Excerpts

Thursday 30th November 2017 Westminster Hall

[Teresa Pearce (Erith and Thamesmead) (Lab)]

It is a pleasure to see you in the Chair, Ms Buck. I too express gratitude to my hon. Friend the Member for Poplar and Limehouse (Jim Fitzpatrick), not just for obtaining the debate, but for the work he has done on deafness and hearing loss for many years; he is a great champion of the cause. I also want to mention the hon. Member for Rochester and Strood (Kelly Tolhurst), who shared her personal story. I was struck by what she said about her mother’s isolation, because my late mother-in-law was one of the most sociable people anyone could meet—show her a piano and she would play for two hours—but then she lost her hearing, and with that, she lost her social circle and became incredibly lonely. We hear a lot about elderly people being lonely, and I wonder how much hearing loss has to do with that.

The debate is very broad—as broad as the challenges that people living with deafness face; so I shall confine my remarks to two areas, the first of which is cochlear implants. A constituency case has been brought to me by several constituents, including the grandmother of Jacob, who needs a cochlear implant. He is profoundly deaf in the right ear and severely deaf in the left; he is four years old. He has been tested by St. Thomas’ Hospital cochlear implant team, who supported the case for an implant, but the NHS has turned him down. The family have been told he can have the implant only if they can raise £44,000. My constituents are not the most affluent in the country, but they are truly wonderful, and this will not be the first time they have crowd-funded help for someone. Last year they helped a young mother to get a second stem cell transplant. Their campaign, “Help Jacob Hear”, has run boot sales, raffles and fêtes and raised nearly all the money, which is great news—but it raises the question of what the NHS is for if it is not to help children such as Jacob. The spending of taxpayers’ money at this point would potentially be handsomely repaid over the lifetime of that young boy. It might be expensive, but what is the financial and social expense of not funding it?

The second area I wanted to focus on is Access to Work. Quite a number of my constituents are British Sign Language interpreters, and many of them have written to me. One, Joanna, works regularly with people who are helped by Access to Work to participate equally and fully at work. In 2015 the DWP, as has been mentioned, imposed a cap on Access to Work awards, and Joanna is worried that the cap will act as a glass ceiling on deaf colleagues’ and friends’ career aspirations. Those with hearing loss will not be able to apply for promotions or look to develop their career, because the Access to Work support will not be sufficient. That means that they will be able to book interpreters for perhaps only three days a week. What will happen on the other two days? Deaf professionals are left at a disadvantage, experiencing stress and frustration as it leads to their being removed from viable career paths. The consequences can be reduction of their working hours and in some cases complete removal from employment. There are self-employed deaf professionals in the arts who have not been able to develop projects, because of lack of access. Research done by the group DeafATW with people whose awards have been capped already or are due to be capped next year, shows a negative impact on careers and aspiration. Especially affected are deaf people who are in or who aspire to professional, managerial or leadership roles, or those who are self-employed and who run their own business.

Another of my constituents, Andrew, is deaf. He uses British Sign Language and works as a senior team administrator with Surrey County Council. Access to Work pays for the interpreters and note-taking that make it possible for him to communicate with colleagues, customers and others, and help him to participate more fully and equally at work, even though it does not stretch to providing assistance at longer meetings where it is impossible to focus on the interpreter and to take notes at the same time. That said, it is likely that the support that Andrew gets via Access to Work, which we all agree is a fantastic system, is much more than what would be seen as a reasonable adjustment for his employer to make. Access to Work has revolutionised the career opportunities for people like Andrew, and shattered the glass ceiling that previously often limited people to doing manual jobs. It has ensured progression for deaf people that is based on talent, which is as things should be. There are now deaf chief executives, deaf intermediaries working at the Ministry of Justice, deaf theatre directors, deaf social workers and a deaf senior team administrator at Surrey County Council. I am concerned that a new policy will undo that good work.

In September DeafATW ran a survey among deaf people about Access to Work. Among those who will be subject to the Access to Work cap from 2018, nearly half said they would not apply for promotion in future, because they were worried that in a new job they would not have enough communication support as a result of the cap. For the same reason, a fifth said that they had already had opportunities to apply for promotion, but had not done so. Nearly half said that they would stay with their current employer as long as possible, because they were worried about what a new employer might think about the effect of the cap on their ability to do their job. When talking about growth we hear a lot about the “productivity puzzle”. It is not much of a puzzle really if we are limiting where people’s talent can take them with such a cut.

In about a third of cases, the employer was either taking or thinking about taking action to check whether the individual could still do their job properly. Deaf people fear that having a capped award means that they will not be able to do their job properly, and employers are concerned about it too. As a consequence, deaf people, whether they are already subject to a cap, are expecting to be subject to one in 2018, or are without a cap in their current work, have said that they are already avoiding applying to work in professional, managerial and senior roles.

In 2015, the Government were clear that a key challenge in administering Access to Work was managing a demand-led programme within a defined budget. They said

“We must achieve a balance between meeting customer need and achieving value for money for the taxpayer. It has been a long-standing aspiration of the programme to support more disabled people into work, so we must address the challenge of supporting this growth whilst keeping Access to Work affordable”.

I would say that it is money well spent. I could not find more recent figures, but the Sayce report in 2011 said that for every pound spent £1.48 came back to the Treasury. That is clearly a case of spending to save.

The Minister may be aware that in July 2015 the Government responded to the Work and Pensions Committee report entitled “Improving Access to Work for disabled people”. The report was scathing about the statistics, stating:

“This lack of transparency is unacceptable. We recommend that DWP change its approach to Access to Work statistics and that, as a minimum, it regularly publish the following information: an indicative annual budget; annual expenditure outturns, broken down by support element and impairment type (including autism spectrum disorders); the number of service users by size of employer; and employers’ mandatory and voluntary financial contributions, broken down by size of employer.”

In their response, the Government admitted that there was work to do to meet those requirements. Will the Minister now, or perhaps by writing to me, update us on progress with the Access to Work statistics? The previous Minister said that there were a lot of statistics available, so I should be pleased to know what progress has been made in supplying the information. Will the Minister also provide figures to show the trend in the number of deaf people supported by Access to Work prior to the introduction of the cap, and afterwards?

The Select Committee also highlighted a particularly strong case for the DWP to improve the accessibility of its disability-related services, recommending that it introduce a video relay system to enable deaf BSL users to contact the Department more easily. Has there been any progress on that? By way of a reminder, I noticed when I arrived that there is a signer for the debate, and I recalled that when the Work and Pensions Committee undertook a review of Access to Work in 2015, we had a sitting when deaf people came to give evidence, and there were deaf people in the Public Gallery, and no one had thought to book a signer. Luckily, one of my constituents had come to watch. He was a qualified signer, and he took over and helped us. In this place, sometimes we do things very well and sometimes we overlook things. If a Work and Pensions Committee looking into accessibility for deaf people did not think to have a signer, it goes to show that we must do better on this. Today’s debate is a step forward.