Autism and Neurodiversity Research Funding

Steve Brine Excerpts

Tuesday 16th November 2021 Commons Chamber

[Robert Buckland]

I am grateful to the hon. Gentleman, who rightly outlines some of the pressures on the system—the increase in diagnosis, which in many ways is a good thing, and the personnel and capacity issues that cause many of the delays in diagnosis, which are all too familiar a pattern for many families, including those in England, Wales and Scotland.

It is interesting to note that research by, I think, the Northern Ireland Assembly calculated the estimated cost to the country of the failure to deal with autism at a staggering £32 billion. Let us just think about that. What a cost to our country: resources wasted, lives wasted and lives lost as a result of these omissions. It does not have to be like this.

[Steve Brine (Winchester) (Con)]

It is such a shame to see my right hon. and learned Friend not in Government, but such a pleasure to have him on the Back Benches and to be here for his first speech from the Back Benches in what I suspect is a number of years. Seeing that we have a lot of time in tonight’s Adjournment debate, does he, as a former Lord Chancellor, agree that the way we look at people on the autistic spectrum within the secure estate, and the way he is proposing we might look afresh at that, might affect the way we look at the secure estate as a whole—to understand a lot more, and condemn a lot less? We have such a high prison population, many of whom, especially women, should not be in the secure estate. Could this be the issue that causes us to look afresh at our prison system?

[Robert Buckland]

I am grateful to my hon. Friend. In 2020, he and I visited his local prison in Winchester, a prison with many challenges and, there is no doubt about it, a share of the population with a brain condition, sometimes undiagnosed and often an acquired brain injury. Many people who are in for offences of violence have themselves been the subject of violence. Those issues are frankly endemic within the criminal justice system.

That is why, when I was Lord Chancellor, in last year’s sentencing White Paper, I announced a call for evidence on neurodiversity in the system. I was hugely grateful to Charlie Taylor, Her Majesty’s Chief Inspector of Prisons, and Justin Russell, Her Majesty’s Chief Inspector of Probation, for leading that independent call for evidence. Charlie Taylor was a public servant who came from the education sector, specifically the special needs sector, had real frontline knowledge and experience of autism and brain conditions and previously ran the Youth Justice Board for England and Wales.

The good news is that, thanks to the published results of the call for evidence, the Government committed—I am pleased to say I committed—to training for frontline staff and the upskilling of those staff right across the criminal and youth justice system, as part of a new custody and detention apprenticeship that is being offered and that will be completed by all prison officers. Her Majesty’s Prison and Probation Service is developing a revised policy framework and guidance all about those issues, but in particular about children in custody with those conditions. This work is carrying on. I will develop those points a little further. I know people are anxious to come in.

--- Later in debate ---

[Robert Buckland]

I am very grateful to the hon. Lady. I think we formed a pact on Sunday night that we would work together cross-party on these issues. There are plenty of others on the Labour Benches—the hon. Member for Stalybridge and Hyde (Jonathan Reynolds) has a similar experience and knowledge of autism—who I know will put their shoulder to the wheel, and that will be incredibly powerful. She has done work on the issue of knife crime. All too often, there is a sad correlation between the isolation of people who might be suffering from anxiety driven by an undiagnosed condition and what I call a cycle of isolation that can often lead to the decision to arm themselves for their own protection. That is an aspect of knife crime—we always think and talk about gangs—that we misunderstand at our peril, so I am grateful to her for taking part in the debate.

I was talking about the golden opportunity we have. We are between the autism strategy as published and the White Paper, which I am waiting for with relish. The Prime Minister knows that that is another issue I will be pressing him and the Government on in the next few months. Many of us identify social care as an issue not just for older people, important though that this, but for adults with disabilities who need lifelong support. They must be part of the mix. More than half of local government expenditure is on adults with disabilities. If we do not pay regard to that in the plan, we are failing. Although I supported and am happy to support difficult decisions on national insurance and on funding issues, we have to make sure that the system that we are funding is well evidenced, produces the outcomes that we all want to see and has an element of accountability that, at the moment, is lacking. People talk about the black hole of health and social care funding. With respect to everybody concerned with that, that is what it feels like to us on the outside, and we have to change. That is why research on care will be so important.

[Steve Brine]

I am so pleased that my right hon. and learned Friend made the point that social care is not just about older people. That is so important. What he is actually talking about—who knew that the Back Benchers and Front Benchers were so joined up?—is levelling up. He is talking about realising the potential of everybody in our country. It is not that autism is therefore a condition to be managed and kept in its box, as we seek to minimise the damage, but that we want people to achieve their potential, and if everybody can achieve their potential, that is just levelling up really, is it not?

[Robert Buckland]

I could not have put it better myself. Levelling up is about people and communities, not things. Things are important and they deliver us levelling up, but levelling up is about people. That is why the Government have to show seriousness of purpose. I am with the Government on these things—I helped to author a lot of the documents on which they will be held to account. This matters, but if we do not focus on people, we are not going to level up. That is the point that my hon. Friend made so well.

I commend the Autistica report to hon. Members, but if I may crave the indulgence of the House for a little longer, I want to outline what Autistica suggests the key stages of support should be that will make a real difference. First, the report made the important point that support for autistic families around and shortly after the time that they receive a diagnosis has to be improved, because it is big news for families. It is a big moment when they get that diagnosis. I remember now the mixture between relief that the system is listening and deep sadness, grief and anger, and all the emotions that someone goes through as a result. These are big moments for families. It sounds axiomatic, but this does not happen, because we do not empower all families of people with autism to understand the diagnosis and to come to terms with what it means for them. This is a moment when services have an opportunity to get to know these families better and to ensure that their personal profile, which should be done, is really understood.