Autism

Stephen Metcalfe Excerpts

Tuesday 20th November 2012 Commons Chamber

[Mr Buckland]

I am grateful to the hon. Gentleman. It is concerning to hear that the figures in Wales are dramatically lower than those in England. Clearly, the Welsh Assembly Government have to take their own course. Anything that is designed to promote the interests of young adults and adults with autism and their route into work has to be welcomed. It is early days and I very much hope that we will see a dramatic improvement in those concerning statistics.

[Stephen Metcalfe (South Basildon and East Thurrock) (Con)]

Does my hon. Friend agree that one way to improve the employment situation for people on the autism spectrum, whether in Wales or here in England, is to create greater understanding among adults and among people’s peers at an earlier age? Will he therefore join me in supporting the Anderson Foundation schools challenge, which aims to improve awareness in schools? Will he encourage colleagues to get involved in that and to encourage schools in their constituencies to sign up to it in order to raise and widen awareness of what the condition means to those who suffer from it?

[Mr Buckland]

I welcome my hon. Friend’s intervention. I am, of course, happy to support the Anderson Foundation schools challenge. It is already yielding fruit. Special schools in my constituency are taking part. It seems to be a constructive and practical way not only to raise awareness of autism among the general public, but to engage children and young people with the condition in actively doing things that emphasise the positive aspects of life with autism.

--- Later in debate ---

[Mr Buckland]

I pay tribute to the right hon. Gentleman’s tireless efforts for people with disabilities, including autism, over many years. He is right to say that we overlook the role of carers at our peril and we must all face up to and address the amount of work that carers do and the pressure they are put under, as well as the lack of support they have had to get used to. Comments about joined-up thinking immediately make me consider the role of carers, and when developing health and social care legislation we must remember that not only care for elderly people but lifetime care for people with disabilities cannot be overlooked.

I was talking about the review of the adult autism strategy and my message to the Department of Health, and the Minister responsible for that review, is that we must ensure the National Audit Office report that was published earlier this summer is fully addressed. Although that report noted encouraging progress in many areas of the adult autism strategy, it stated that much more needs to be done to improve access to diagnostic services, personal budgets and social care assessments for people with autism.

Let me set out some facts for the House. More than half a million people in this country have autism—about one in 100. If we include the families and carers of people with autism, more than 2 million people will be affected in some way. That is about 3,000 people in an average parliamentary constituency, according to studies by the Information Centre for Health and Social Care. As the parent of a child on the autism spectrum—like some other Members of this House—I am firmly in that category.

Perhaps I should pause a moment to share with the House some of my experiences as a parent that have driven me to do everything I can, while I have the honour of being a Member of this place, to campaign for the interests of people with autism. It took quite a while for us, as parents, to acknowledge that things were not quite as we had expected with our child. People go through denial, guilt, anger and shame. However, we went through the difficult process with a firm realisation that we would do everything we could for our child. Like millions of other parents, I have been through that mill and come out on the other side, but I am left with the feeling that the system does not work. We are still very much obsessed with process and not outcome, and we seemingly encourage the creation of categories to fit children into rather than the other way around. Until we nail that problem, I am not sure that any of the changes we make, however well intentioned, will bring real change.

Having said that, I remain an eternal optimist about our public services. I pay warm tribute to the legions of teachers, teaching assistants, speech and language therapists, health professionals, child psychologists and all the other people in the special needs field who work so hard day in, day out to help and support people who need their services. We are lucky in this country to have such a dedicated range of professionals.

An estimated 88,000 school-age children have autism in England alone—that is about 1% of the total school population. Autistic children form the largest group of children in receipt of statements of special educational needs. The proposals in the children and families Bill will therefore affect them significantly.

[Stephen Metcalfe]

Is that 1% increasing or decreasing? My understanding is that, with better diagnosis and better understanding of who fits on the spectrum, the number is increasing. It is therefore vital that we get those services right.

[Mr Buckland]

My local experience, which I am sure is shared by many hon. Members, is that the rate of diagnosis is increasing. Some years ago, when my daughter was diagnosed, I was startled to learn that, in certain parts of the country, there were no diagnoses of girls with autism. That was not because there were no girls with autism, but because the specialisations needed to make the diagnosis were not there. I am afraid that that patchiness applies today. We are at the early stages of fully identifying the range of needs. I accept that, at times, diagnoses are made in the wrong category and that children with other conditions are diagnosed as autistic, but that is inevitable when the system seeks to ensure that the needs of children are addressed in an increasingly sophisticated way.

I mentioned the need for parliamentarians and society to start viewing people with autism as people with huge potential. In a few years’ time, I want to stand here in the Chamber—or anywhere—and say that, in this country, we have cracked the code and ensured genuine opportunity for all people with autism and autism spectrum conditions.