Contaminated Blood

Debate between Stephen Kinnock and Jonathan Reynolds

Tuesday 12th April 2016 Commons Chamber

[Jonathan Reynolds (Stalybridge and Hyde) (Lab/Co-op)]

I am extremely grateful to you, Mr Speaker, for giving me the opportunity to speak in this debate today and to the Backbench Business Committee for allowing such an important issue to be brought before the House. I add my praise to my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) for her outstanding leadership. As a member of the all-party group on haemophilia and contaminated blood, I feel strongly that it is right that the House consider this matter and that more should be done. I also feel that it would be unconscionable if any reform that did come about actually reduced the support currently being received by people who have been victims of this appalling episode in the history of our public health system.

As we have heard, between the mid-1970s and the late 1980s, 4,670 people with haemophilia were infected with hepatitis C through their NHS treatment and the transfusion of contaminated blood. Of those, 1,243 people with haemophilia were also exposed to HIV. Almost half of those infected with hepatitis C, and almost three quarters co-infected with HIV and hepatitis C, have since died. Many have experienced poverty and discrimination as a result of their infections. For so many of the victims, the simplest of daily tasks can become difficult and, in some situations, frightening. Such a scenario can be seen in the life of one of my own constituents, Mr Michael Gee, with whom I have worked on this issue since I first met him at a constituency surgery in 2013. Alongside many other victims, Michael has travelled to be here today to listen to this debate. The determination to be here is testament to the importance of these decisions. I pay tribute to Michael and to everyone else who is here today and who has been placed in a similar situation.

As a young boy, Michael was accidentally scalded when reaching for a pan of boiling water on the cooker while his mother was making dinner. Rushed to hospital, he underwent a number of blood transfusions. Due to the shortage of blood donors, the Government of the day had purchased blood supplies from abroad, and one of the bags used contained contaminated blood.

Michael was diagnosed with hepatitis C in 1987, and it is a condition that he has had to live with throughout his adult life. Hepatitis C causes chronic fatigue, organ damage as well as significant cognitive impairment and damage to the auto-immune system causing arthritis and muscle problems. There are also a whole range of significant practical everyday problems. Hepatitis C sufferers, for instance, struggle to get mortgages or proper insurance.

Michael is now a father, and due to the nature of his condition he is restricted in his interaction with his own child. Terrified that an open wound could transfer his virus, he often has to wear gloves to put his mind at ease, and keep the safety of his children paramount. Such a scenario is difficult to comprehend for any of us who are parents and we would not wish to see anyone placed in that position.

I do not think that any Government have done enough on this matter. In 2009, the Department of Health reviewed the support for the victims of the disaster, but 80% of those who were infected with hepatitis C were excluded from the financial help. That was on the grounds that their illness was considered to be at stage 1. They had been categorised as stage 1 because they could not prove a certain stage of liver disease. To make things even more unfair, there were serious differences in the help given to people with HIV and people with hepatitis C. One of the biggest and most obvious anomalies was the fact that if someone with HIV died their spouse could apply for ongoing financial support, albeit means-tested, but if someone with hepatitis C died their partner received nothing.

The entire support system is inadequate, and is administered by a multitude of charitable trusts with different rules and criteria, which makes it harder to access. In 2016, the Government are in danger of repeating the errors of the past and once again letting down the victims and their families. Last month, victims of the disaster received letters from the Department of Health consulting them on reforms that could leave some of them up to £7,000 a year worse off. This is not acceptable, and it must not be allowed to happen.

[Stephen Kinnock (Aberavon) (Lab)]

My hon. Friend mentioned the impact on families. My constituents, David and Vincent Farrugia, tragically lost their father Barry after he contracted HIV and hepatitis C from contaminated blood. The families and the bereaved are not included in the consultation—there is no provision for children, dependants or bereaved families. Does my hon. Friend agree that children and dependants who are now adults should be included in the consultation?

[Jonathan Reynolds]

I agree with my hon. Friend. When we learn the details of these cases it is clear that people’s entire lives have been grievously affected, and it is only right that everyone associated with those injured parties is given the opportunity to take part in the remedy that is required. I would point out to the Department of Health that almost all of the victims of this disaster were infected at least 30 years ago, and there is substantial research evidence showing that by now they have suffered significant damage to their health and earning potential. That must be taken into consideration.

The cap proposed by the Government on annual payments once again shows the lack of compassion and reasonableness faced by these people. The fact that infected spouses will stop receiving payments is grossly unfair. The Prime Minister apologised in the House to the victims last year for what they had had to endure, saying that it was

“difficult to imagine the feelings of unfairness that people must feel”—[Official Report, 21 March 2015; Vol. 594, c. 1423.]

Given the latest proposals, do not those words now ring somewhat hollow? The chilling truth of this tragedy is that about half of the estimated 5,000 haemophiliacs who were infected have died without ever seeing justice.

I would ask all Members in the Chamber to think not only of those affected, such as Michael, but of the victims’ families, who rely on financial support, which provides the security and stability they need and deserve, and which we as Members of this House have a duty to protect. This is one of the worst episodes in the history of public healthcare and the NHS. Any sense of natural justice leads, I believe, to the conclusion that it must be addressed. We cannot give these people back their health or their dignity, but we can give them closure. We can give them proper financial support—and, frankly, it is time we did.