Rare Cancers Bill

Shaun Davies Excerpts

Friday 14th March 2025 Commons Chamber

[Shaun Davies (Telford) (Lab)]

I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for introducing the Bill. He has channelled his personal experience, and that of his family, to produce a vital piece of legislation. I hope that he succeeds in driving change on this issue. He certainly has my support and that of all Members of the House. It is on days like this that I call Members of Parliament from across the House my hon. Friends rather than hon. Members. This cause certainly unites us.

I know from reading emails from my Telford constituents that they are fully behind the Bill. I join my hon. Friends in paying tribute to the many people who have told the stories of loved ones in their families and communities—they are far braver than I. Next Thursday, I will be a bearer at the funeral of a woman who is very special in my life. I am not quite brave enough to tell her story today, but maybe one day I will.

I have heard about devastating impacts from a number of constituents who have contacted me to share their stories. I heard from one constituent about the mother of his three teenage children. She is in her 40s and battling terminal pancreatic cancer after a late diagnosis. Among those stories, a familiar theme arises: conditions such as pancreatic cancer are being diagnosed too late and there is no available treatment. My constituents’ loved ones are given just months to live.

I focus on pancreatic cancer because it is an example of the scandal of rare cancer treatment. It is classed as a rare cancer by the Bill because it affects fewer than one person in every 2,000. Every year, one in every 6,000 people are diagnosed with pancreatic cancer, and half of them die within three months. There are roughly 107,000 people in Telford, which means that 18 of my constituents will be diagnosed with that awful cancer each and every year, and nine of them will die within three months of diagnosis. That is absolutely shocking. I owe it to those 18 people in my constituency to speak up in the Chamber and demand drastic change.

It is easy to see how this problem can arise, although that does not make it any less galling. In a healthcare system under strain that is failing cancer patients in particular—last year, UK cancer survival rates were 25 years behind some other European countries—decision-makers might be faced with a Sophie’s choice: the unenviable task of prioritising cancer treatments. When resources are scarce, the treatments that will save the most people are prioritised, but that is no consolation to the 47% of patients in the UK whose cancers are rare and less common.

An even more damning statistic is that sufferers of rare and less common cancers make up the majority of cancer deaths, as we have heard—55%. Clearly, that is not sustainable, fair or just. We cannot let a single cancer patient slip through the cracks in our healthcare service, let alone 90,000 people each and every year. All too often, people in my constituency and across the country will, as we have heard, rally around to raise money for their loved ones—their children—to receive treatment. On one level, that is amazing to see, but on another, it is depressing that that has to be done in order for people to access lifesaving treatment.

The Bill is about acknowledging that we can do better. The treatment of rare cancer patients is a scandal—not in the sense that any one individual is liable or culpable, but because the system as a whole has let tens of thousands of cancer patients down. To the healthcare and research sectors, we say, “You must do better, we want you to do better, and we will work alongside you to do better.” The Bill is a welcome first step in doing that. I urge the Government to be bold. This cohort of Members of Parliament and Ministers can do a lot on this agenda. We talk a lot in this place about hope and change. Well, goodness me—what better example is there than this Bill of providing hope and change to millions of people across our country? Let’s make cancer history.