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Written Question
Chronic Fatigue Syndrome: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support research into (a) understanding, (b) treating and (c) curing Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Written Question
Chronic Illnesses: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, how the Government plans to allocate funding for research into (a) myalgic encephalomyelitis and (b) other post-viral diseases.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Written Question
Chronic Fatigue Syndrome: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what research the Medical Research Council is funding on the (a) causes and (b) treatment of Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Written Question
National Science and Technology Council
Wednesday 24th January 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, when the National Science and Technology Council last met.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

It is a long-established precedent that information about the discussions that have taken place in Cabinet and its Committees, and how often they have met, is not normally shared publicly.


Written Question
Directors: Public Appointments
Friday 26th May 2023

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what steps her Department takes to vet the (a) financial interests and (b) potential conflicts of interest of non-executive board members before their appointment.

Answered by George Freeman

In accordance with the code of practice for corporate governance in central government departments, the Department requires non-executive directors to declare sources of renumeration, contracts, shares and securities, non-financial interests, and related party interests that may influence, or may be perceived to influence, their judgement as a board member.

During the recruitment and onboarding process for non-executive directors my department conducts its own due diligence to make sure that office holders meet the standards set out in the code of conduct for board members. The Department reviews any real or potential conflicts of interests declared and publishes these, with any mitigating action taken, in the Department’s annual governance statement.