SEND Provision: Autism and ADHD

Sarah Russell Excerpts

Thursday 12th December 2024 Commons Chamber

[Pippa Heylings]

Absolutely; I am here to pay tribute, as is everybody, to what teachers are doing, both with regard to the failure of the previous Government and with the current situation. Let us get to what is happening with the current Government.

Every child deserves access to education to get the best start in life and build a strong foundation that can provide valuable skills that allow them to thrive. That is not the case for all children across the country and particularly not for those with autism spectrum disorder and ADHD. Every professional I have spoken to agrees that early diagnosis and support are essential.

[Mrs Sarah Russell (Congleton) (Lab)]

In respect of early diagnosis and onward support, in my constituency of Congleton we have two specific problems. First, although some children receive a diagnosis under the right to choose pathway on the NHS, others, often from more deprived backgrounds, face considerably longer waits than they would under that pathway. The impact of that on those children concerns me very much. Secondly, Cheshire East council sometimes goes for periods of time when it closes the education, health and care plan application pathway to new entrants because it is so overwhelmed by the number of applications it already has. Both those are serious issues for children in my constituency, and I thank the hon. Member for South Cambridgeshire for securing this debate and giving me the opportunity to air them. Does she agree that it is a huge improvement to have a Government who are integrating SEND support and that there is so much more that we are all looking to do?

[Pippa Heylings]

I will come on to what I think is a postcode lottery. We see regional disparities in the care and provision given, so I thank the hon. Member for raising that point.

For many, the wait to get assessments for education, health and care plans can be months, if not years. Lord Darzi’s investigation of the NHS in England notes,

“Waiting lists for community services and mental health have surged.”

The report also mentions how

“Demand for assessments for ADHD and Autism have grown exponentially in recent years”,

with children disproportionately represented among them.

Recent research found that 200,000 children in England are struggling to get an education, health and care plan. That is 200,000 families left in uncertainty, desperate for help and struggling without the support they need.

Cambridgeshire currently has 8,033 students with EHCPs—a 51% increase in the last five years—and of those, 2,593 plans primarily address autism spectrum disorder. Indeed, I was told by the chief executive of Cambridgeshire county council that there has been an increase of 270% in the number of children presenting with autism. Requests for education, health and care needs assessments have risen faster than the national average. Why? We think that is driven by greater awareness of SEND and the statutory responsibilities of local authorities, the impact of the covid pandemic and the overall increase in mental health issues for children, even at a very young age. Those numbers help to underline the scale of the issue, but we should not get drawn purely into statistics and figures, because behind every number and every percentage there is a child, a family or a sibling being failed every single day.

I come to the issue of disparity that the hon. Member for Congleton (Mrs Russell) mentioned. Families who can afford to seek private neurodevelopmental assessments tend to receive help much faster than those who are reliant on public services. For the rest, it is a postcode lottery. NHS England data reveals stark regional disparities in waiting times for diagnosis. For example, the north-west region has the longest average wait of three years and four months, from referral to diagnosis. We therefore have a health inequality element to this too, as certain groups of children are less likely to have their needs identified or met, punished just because of where they live.

For some children, mainstream schools are simply not suitable, and parents and carers bear the brunt of that reality, managing reduced timetables, enduring repeated exclusions and watching their children receive only a few hours of education each day.

--- Later in debate ---

[Pippa Heylings]

I could not agree more with my hon. Friend. The Carers Trust has provided us with these stories and pointed out that we really need to collect this evidence. It would be easy to point the finger at local councils and say that this is their failure, but, as we have said, they are stretched to their limits by a chronic lack of funding. We have heard that f40, the cross-party local authority campaign group, has estimated that an additional £4.6 billion of annual SEND revenue is required to meet the current need, yet most of our county councils face a black hole in their budgets. One issue is the training and retention of educational psychologists, because they and council workers are overwhelmed. Turnover rates are high and burnout is common, which leads to an exacerbation of those waiting lists.

[Mrs Russell]

I thank the hon. Member for allowing me to intervene again; I appreciate it. Cheshire has some of the lowest per-pupil funding in the country. There is a direct link between schools that receive relatively low levels of funding and councils that have relatively high levels of SEND diagnoses, because there is not the same support in mainstream classrooms as when there are higher staffing ratios, which we find in areas that have better funding. We need to look at equalising that funding as best we can in the current environment to improve support at an earlier stage, as the hon. Lady was mentioning.

[Pippa Heylings]

I agree with the hon. Member. My constituency of South Cambridgeshire also has among the lowest per-pupil funding, which exacerbates the fact that, even though we have EHCPs, most of them are not funded to the amount that is required for each of those students. That compounds the situation that our amazing schools are trying to deal with.

Let me return to educational psychologists. Cambridgeshire county council has 17.5 budgeted educational psychologist roles, but 6.4 remain vacant due to a national shortage and the fact that psychologists can get better pay in other jobs and other places. We are seeing an inability to fill those roles and to support psychologists.

The Liberal Democrats are calling for a national body for SEND to end the postcode lottery faced by families of children with the highest needs. That would include looking at immediate Government action to prioritise early diagnosis and support for children with SEND, and to increase funding for diagnostic services.