Acquired Brain Injury

Ruth Jones Excerpts

Tuesday 2nd July 2019 Westminster Hall

[Ruth Jones (Newport West) (Lab)]

It is a pleasure to serve under your chairmanship, Mr Rosindell, and I commend my hon. Friend the Member for Rhondda (Chris Bryant) for securing this important debate. I know that many Members have been involved in these debates before, so bear with me: as the newbie, I may be making points that they have made many times over, but I think they bear repeating.

There have been many debates about what the definition of acquired brain injury is. I do not think it helps to focus on little details; it is important to be inclusive and generic, and make sure those people who need services, help and support get them. That is why I believe the definition of acquired brain injury should be wide and far-reaching. It is important that we remember that when we look at the various options.

Our national health service is a fantastic service. My constituency of Newport West is very close to Aneurin Bevan’s, so obviously I am going to say the NHS is brilliant—of course it is. It is great at the life-saving stuff, but it is not so great at the long-term rehabilitation needed by people with long-term conditions. With cardiac arrests, lives are saved, but the aftermath and the quality of life afterwards are so important.

Acquired brain injury may be the result of one incident or acquired over a period of time, but its effects are always lifelong and often permanent. As a physiotherapist, I have worked with patients with acquired brain injury at various stages of their journey, from intensive care—when it is very much life or death what is going to happen next—to the sub-acute, high-dependency and in-patient settings. At those stages, there is thankfulness that the person is going to survive, but the reality is beginning to set in that this will not change back any time soon; this is a permanent change, and the family has to deal with it. That is a very hard time for people.

There is then the long-term effect, when people might be back in their homes but are struggling to deal with their adjusted circumstances. That is often a time when people feel neglected, left and lost, and it is important that we focus on that area as well. Acquired brain injury does not just affect one person, but their families, friends and work colleagues; as my hon. Friend the Member for Rhondda has said, this predominantly affects younger people, so work colleagues are also involved. People always express their wish to provide help and support, but they need advice and guidance on how best to do so, and it is important that we recognise that.

The effects of acquired brain injury are also far-reaching, and might be physical, mental, or even spiritual. Others speak far more eloquently about that, and how it impacts on people’s working and daily lives, but I would like to emphasise the long-term needs of people with acquired brain injury. Research in the field of neuro-plasticity clearly indicates that recovery can go on for weeks, months and even years after an insult or trauma. It is therefore vital that our rehabilitation services can match that, so they must be available for weeks, months and years after the incident. In the later stages, somebody may not require treatment, advice and support every day, but it should be available for them to access when they need it.

I am delighted that the Health Minister is here today, and I would like to make a plea to her for additional resources for the vital services that people with acquired brain injury require in the long term. Obviously as a physiotherapist I am biased, so I am going to say we need more physios, but we also need occupational therapists, speech and language therapists, and providers of other therapies. Psychological input and support is also vital, and people often overlook that important aspect of rehab. The right hon. Member for South Holland and The Deepings (Sir John Hayes) has also mentioned diagnostics, because if we do not know what we are dealing with, we cannot treat it effectively.

It is really important that we have those additional resources when we need them; they should be accessible through time, over months and years. It is important to remember that this is not an event, but a process.