(9 years, 8 months ago)
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I thank my right hon. Friend for his intervention. Those of us who know him realise that he is a champion for those less fortunate in society, and especially for the disabled. I recognise that he has a family member who was vaccine damaged as a child.
Why is the coverage of the scheme so patchy here in the UK? Adults are almost all excluded—why should that be? All seasonal flu vaccines and all hepatitis vaccines are excluded—why? That is not an effective safety net.
Recently, more than 70 people suffered narcolepsy as a result of the swine flu vaccine. That is a very serious condition, but the Department for Work and Pensions has refused to accept that it amounts to a 60% disability and has appealed against a tribunal finding that it is a severe disability. The Department should fight consumers less and support them more.
Awards of compensation for vaccine injury should be available—that is compensation measured by the amount of loss actually suffered, not an arbitrary amount. Reform could be a win-win, in that we could promote social justice and ensure an increase in the rate of vaccination that will benefit society as a whole.
I also congratulate my hon. Friend on securing the debate and give my apologies because I, too, will have to leave before the end of the debate. Does he agree that some of the reluctance to reform the current procedures and the Act is similar to some of the reluctance that was there when we tried to uprate it in the first place? These things are complex and there are all sorts of aspects to them, but the first thing to do, surely, is sit down, work through where the problems are and work out what needs to be done. From my point of view, the important thing is that the Minister should meet the families to look at what is going on in practice and what can be done about it.
My hon. Friend is exactly right. Today, we are looking at—it is in the debate’s long title—reform of this legislation. As will become clear as I progress through my contribution, we really need to reach a decision on whether this is about reform or about ripping it up, throwing it in the bin and starting again, because we have moved on significantly since 1979.
As I was saying, reform could be a win-win, in that we could promote social justice and ensure an increase in the rate of vaccination that would benefit society. I believe that vaccine manufacturers are strongly in favour of such a change and are willing to contribute to a fund—and, I hope, to discussions.
It is unconscionable to relegate so many people who are disabled to a battle over causation, and for justice, and it undermines rates of uptake of vaccines not to have an effective system. The numbers of those seriously injured are low, so the total cost of full compensation would be affordable and would be self-financed through the increase in vaccination and the reduction in the burden of disease in society.
Towards the end of last year, I met two parents down here in London. They related to me the stories of their daughters, who had both had a reaction to the human papilloma virus vaccine. We dedicated the last meeting of the all-party group, on 14 January, to hearing from some young women who were able to attend, but mainly from the parents of several young women who had had a severe reaction to the HPV vaccine. I think that it is safe to say that the majority of those cases centred on those young women now finding themselves profoundly affected by what can only be described as symptoms similar to those of ME—myalgic encephalomyelitis—or chronic fatigue syndrome. All those girls had been fit and healthy, were doing well academically and had the social life that we would expect any teenager to have.