Endometriosis Workplace Support

Paul Scully Excerpts

Wednesday 9th February 2022 Westminster Hall

[The Parliamentary Under-Secretary of State for Business, Energy and Industrial Strategy (Paul Scully)]

It is a pleasure to serve under your chairmanship, Mr Davies. I congratulate my right hon. Friend the Member for Elmet and Rothwell (Alec Shelbrooke) not only on securing this debate, but on his bravura performance in setting out the case. He gave examples that were difficult to listen to, to help us to understand what women are going through on a day-to-day basis.

I thank hon. Members who have taken part in the debate for their thoughtful and insightful comments. I would just pick out two contributions: the personal experience of the hon. Member for Streatham (Bell Ribeiro-Addy) and the example of his wife that the hon. Member for Strangford (Jim Shannon) shared. I thank them both for sharing those examples and what we can learn from them.

A number of Government Departments could have led the response to the debate, because endometriosis sits within a range of wider Government initiatives and strategies. The Department of Health and Social Care is developing the women’s health strategy. The Department for Work and Pensions and DHSC are following through on the “Health is everyone’s business” consultation response. The Government Equalities Office carries out wider work on equalities, and there is of course my Department’s work on labour market questions, such as how to make flexible working the default.

We each talk to businesses and employers on a range of issues. I am pleased to reflect the words of the “Women’s Health—Let’s talk about it” call for evidence. The more we talk about women’s health, the more we tackle the stigma and the taboos. Before I became a Minister, I was a vice-chairman of the all-party parliamentary group on women’s health. I am really pleased that this issue is being debated today and that we keep on addressing it and tackling the stigma.

In the interests of time, I will not describe the condition of endometriosis again, but we know that it is a condition that can be especially debilitating for many people. There are some factors, such as time to diagnose, which can exacerbate the situation. Endometriosis has a debilitating impact on a significant number of women across the UK. A respondent to the call for evidence said:

“I have had my endometriosis over looked and just told it was period pain and to deal with it. ‘It’s part of being a woman.’…‘my period is normal and I am exaggerating my pain, it’s all in my head’.”.

That is just plain wrong. No one’s pain and discomfort should be dismissed out of hand and nobody should be told: “It’s just part of being a woman”. We have got to do better.

To understand how best to support people with endometriosis in the workplace, we need to look across the whole system—at educating society at large, at the health sector and at the role of employers, as well as individuals. Only in that way can we start doing the right things for women’s health.

We know that damaging taboos and stigmas remain around many areas of women’s health. They can prevent women from starting conversations in the first place about their health or seeking support for a health issue. When women do speak about their health, too often they are not listened to.

The Government are determined to tackle these issues, which is why we are embarking on the first women’s health strategy. Last year, on 23 December, the Government published “Our Vision for the Women’s Health Strategy for England”, alongside the results of the “Women’s Health—Let’s talk about it” survey. A number of priority areas for action came through that. On women’s voices, more than four out of five women feel, or are perceived to feel, comfortable talking to healthcare professionals about general physical health concerns. That falls to less than three in five women when discussing mental health conditions.

On information and education, as we have heard, my right hon. Friend the Member for Elmet and Rothwell talked about teachers in schools. If we cannot get it right there, how will we get it right further down the line? Our ambition is for women to have access to high-quality information and education, starting from childhood and continuing right the way through to adulthood, to empower women to make informed decisions.

On access to services, just two in five respondents said that they, or the woman that they had in mind, can conveniently access the services they need in terms of location, and around one in four said the same in terms of timing. On health in the workplace, around one in three respondents said women feel comfortable talking about health issues in their workplace, and one in two said that their current or previous workplace had been supportive with regard to health issues. That clearly leaves a massive gap, which is why we need to go further.

[Hannah Bardell]

Will the Minister give us an indication of when that women’s health strategy will be implemented, because I know there has been a delay? Will he also make sure that it addresses the profound issues in terms of employment and the DWP? Those matters are not devolved to Scotland, but are still reserved to Westminster, and we will look closely and will want to work with him on those issues.

[Paul Scully]

I appreciate that, and I will discuss the strategy going forward. Health in the workplace will be a priority area for that strategy. We want to support women and ensure that they feel supported in the workplace, that taboos are broken down through open conversation, and that employers feel well equipped to support women in managing their health in the workplace.

In addition, “Menstrual health and gynaecological conditions” will also be a chapter in the final strategy. It will explore ways to improve awareness and the care and treatment of those suffering with severe symptoms from conditions such as heavy menstrual bleeding, endometriosis, and PCOS. The strategy will set an ambitious and positive new agenda to improve the health and wellbeing of women across England, and it will be published later this year.

We are working to put flesh on the bones of the six priority areas. That will need to be marked by effective co-operation and collaboration across Whitehall. As an illustration of that collaboration and co-operation, the Government also have an active agenda on work and health more widely. We want employers and employees in the round, male and female, to have better interactions on work and health to improve employee retention. It is so important to address these issues from both sides of the lens.

I heard what Members said about the gender pay gap, and we could easily make a business case. Employers invest time and resource in training and developing people’s experiences, so why on earth would they then want to lose someone with a long-term debilitating disease and have to start the entire process again? They should do the right thing.

The Government’s response to the “Health is everyone’s business” consultation was published in July last year. It sets out some of the measures that we will take to protect and maintain the progress made to reduce ill-health-related job losses, and will see 1 million more disabled people in work from 2017 to 2027. The consultation was not specifically on endometriosis, because it did not specify any health conditions. It looked at system-level measures to support employers and employees to manage any health condition or disability in the workplace. We are looking at providing greater clarity around employer and employee rights and responsibilities, with a national digital information and advice service.

We are working with HSE to develop a set of clear and simple principles that employers would be expected to apply. We are increasing access to occupational health, especially for small and medium-sized enterprises that we know are currently underserved. Although the measures are not endometriosis-specific, they are key steps in our effort to change the workplace culture around health and sickness. The Department for Business, Energy and Industrial Strategy looks at labour market regulation. We are responsible for a policy that has been mentioned and which we know can be helpful for those who suffer from endometriosis: flexible working. I must correct the hon. Member for Livingston (Hannah Bardell). Flexible working did come out of the pandemic; it started under the previous Prime Minister, my right hon. Friend the Member for Maidenhead (Mrs May). We have been able to reset our understanding of flexible working in the light of the pandemic.

A respondent to the women’s health strategy call for evidence said:

“Working from home has helped me hugely, as it gives me flexibility to work in ways that are more comfortable for my body. I can work from my bed on a bad day, or have a hot water bottle on my stomach when I have cramps.”

We are taking forward the manifesto commitment to consult on making flexible working the default, unless employers have good reasons not to do so. That consultation contained measures that would increase the availability and the support of the uptake of flexible working arrangements, including whether to extend the right to request flexible working from the first day of employment. By making it easier for everybody to access flexible working, we hope to help those who may need it most, including women suffering from endometriosis.

That consultation closed on 1 December, having received more than 1,600 responses. We are going through those now and will come back in due course. That consultation also introduced plans for a future call for evidence on the subject of ad hoc flexible working, where we want to explore how non-contractual flexibility works in practice. I discussed that with the flexible working taskforce on Monday. We will ensure that the role of ad hoc flexible working, in supporting women with health conditions, is part of its considerations.

My right hon. Friend the Member for Elmet and Rothwell had five questions. We absolutely welcome the work of Endometriosis UK, in particular the employers’ scheme, which we are pleased to see has a high number of participants. Debates such as this will help to fuel more businesses, of all sizes, to join that scheme and share those practices. All that work clearly needs to come under the remit of the women’s health ambassador. I am looking forward to working with that person once appointed.

My right hon. Friend asked about the definition of disability and whether it is included. We have heard the definition: a person is considered disabled if they have a physical or mental impairment that

“has a substantial and long-term adverse effect on their ability to carry out normal day-to-day activities.”

We have heard examples where that is absolutely the case.

On benefits and how the definition is approached in practice, the work capability assessment determines eligibility for employment and support allowance, and the additional health-related amounts of universal credit. That will indeed be taken into account. It is difficult to have a number of discrete schemes for employers from Government. None the less, big HR departments can take on these things. What we must do is explain to smaller businesses the benefits of tackling these areas.

To conclude, I want to ensure that, through the women’s health strategy, we can get the culture on work and health right. To ensure that the package is as effective as it can be, we need to continue to collaborate. I am looking forward to working with the women’s health ambassador, and I am determined that BEIS should play a full role in driving this agenda forward. I close by thanking everybody for their excellent contributions in this helpful and informative debate.