Supporting Carers

Paul Maynard Excerpts

Thursday 1st July 2010 Westminster Hall

[Paul Maynard (Blackpool North and Cleveleys) (Con)]

It is a great pleasure to serve under your chairmanship, Mr Benton, for my first speech in Westminster Hall.

I was pleased to hear from the Minister that we will have a new carers strategy—it is very much needed. I would like to focus today on three aspects that I believe are important in allowing carers to have a life beyond caring.

The first aspect—working carers—has been touched on by the hon. Members for Stretford and Urmston (Kate Green) and for Liverpool, Wavertree (Luciana Berger). I would like to take a slightly more specific approach than they did when they spoke about the cliff-edge factor in earnings, and look at the needs of carers who want to work and go to Jobcentre Plus hoping to find a job. When they get there, they do not get the help that they need, for several specific reasons revealed in a National Audit Office report, “Supporting Carers to Care”, at this time last year. I shall highlight those reasons for the Minister.

There is an enormous army of carers, as we have recognised today, but they form a small part of the work load at Jobcentre Plus. Many advisers rarely deal with more than one or two carers each month. It is vital that the centres have specialist advisers to deal with carers who are looking for employment. Because of their caring duties, many carers do jobs that, inevitably, are part-time. Therefore, they do not form part of what Jobcentre Plus has to submit to meet its targets for placing people in full-time employment. Because carers do not help Jobcentre Plus to hit the targets that central Government want it to achieve, they are seen by Jobcentre Plus not as a priority but as a marginal part of its business.

I am also concerned by what I read in the NAO report about many Jobcentre Plus advisers not being certain of what they are doing. For example, the report found that two thirds did not realise that carers who claim only carer’s allowance do not need to attend work-focused interviews. It worries me that two thirds of the staff do not understand a crucial part of the needs of carers. Finally, as an example of a Kafkaesque bureaucracy gone mad, Jobcentre Plus advisers are encouraged to hand out carer’s allowance application forms but are not allowed to help fill them in. “Here’s a form, but don’t ask me any questions, please, because I can’t answer them”—I am afraid that we hear that so often. I hope that the new carers strategy will try to address some of those specific issues so that those who go to Jobcentre Plus to look for work get the help that they need.

The second area that I would like to focus on is the need for respite care. I welcome what the previous Government did in recognising that it is good to give carers respite care, but I regret the fact that, for one reason or another, as the Minister said, much of the money never quite made it to the front line. That shows the danger of raising expectations within a group of people that are then not fulfilled.

I pay tribute to organisations such as Vitalise, a charity that provides space for 7,000 people to have respite breaks each year. Its work stretches from Cornwall in the south to Southport in the north; I regret that it cannot manage an extra 20 miles to make it to Blackpool and provide breaks there, but perhaps I can encourage it to do that bit more—who knows? As its part of carers week this year, it set up a care to share forum, which was an opportunity for people who need respite breaks to share experiences of what they had had and, indeed, what they did not get, having expected something as a result of the previous Government’s announcements. That was a useful thing for Vitalise to do, because carers’ nervousness about going abroad, going away, or leaving the person for whom they care, is a significant issue. There are many hurdles to overcome if they are to have that ambition, and the more that we share information and allow carers to feel more confident about leaving the people for whom they care, even for just 24 hours, the easier it will be for respite care to become an established part of the caring agenda.

Will the Minister therefore ensure, in the national health service operating framework and in NHS Vital Signs, that provision of carers support is not just an optional extra for primary care trusts but critical—either tier 1 or tier 2? By having it at tier 3, PCTs are basically given permission not to bother with it. Unfortunately, that is just one of the ways in which micro-management from the centre can become an excuse for not providing a service.

I would also ask that when this or any Government make new moneys available, they make the announcement only when they are confident that they can monitor implementation and ensure that the money is spent on what it is supposed to be spent on. It is not acceptable to raise the hopes of vulnerable groups so that they think that they will get something but then, through no fault of Ministers, the Government or Departments but just because the layers of bureaucracy absorb the money bit by bit, it does not happen further down the line. That simply is not fair.

I echo what my hon. Friend the Member for Totnes (Dr Wollaston) said about young carers. She was right to identify in particular the needs of the 20% who do not do what I would call traditional caring, where the relative has a progressive disease associated, perhaps, with old age. I think that the figure is higher than 20% in a constituency such as mine. Blackpool North and Cleveleys is a deprived area with many public health needs, and I would have thought that many younger carers are dealing with relatives who have a drug addiction, alcohol or mental health problem.

At the back end of carers week this year, I went to the local branch of Frankie and Bennys near the Odeon cinema in Blackpool. The local carers centre, which is funded by the Princess Royal Trust for Carers, as so many carers centres are, has a particular interest in the needs of young carers. Nigel McMurdo, who runs the project, does a fantastic job in trying to give them treats every now and again. One of the treats was dinner at Frankie and Bennys, so I trundled off to meet them, to listen to their stories and to understand a bit more about what they go through.

Nigel told me one tale about how caring can impact on education. A young man caring for his mother, who had a mental health problem, had a geography exam one day, but she would not let him out of the house. There was a real battle just to get him to school to sit the exam. That demonstrates how caring for parents, as an act of love, can be a bar to educational attainment. For many of our young carers, caring has an impact on their health, education and ability to have a social life.

The inadequacy of child and adolescent mental health services is a long-standing problem. If mental health services are the Cinderella service of the NHS, CAMHS is Cinderella’s daughter—it is a Cinderella service within a Cinderella service. I have raised this matter with the Minister in respect of autism but, more widely, I have great concerns about the condition of CAMHS in this country, and how it excludes far too many people who need help. It is a real problem.

In addition, in terms of education, bullying has a major impact on the lives of many young carers. It occurs when someone is seen to be different. If they have a caring responsibility, it means that they cannot hang around outside the school gates after school, or they might be 15 minutes late, or they might not always get their homework done on time. Inevitably, bullying takes place, and young carers need support in relation to that.

Young carers in Blackpool are at present trying to draw up a young carers charter. At the top of their list is a demand that every school should have a nominated teacher who can pay attention to the needs of young carers, as a kind of early warning system. Such a system is needed, and I do not think that we can place the burden entirely on general practitioners, as we always seem to try to do, to act as early warning gatekeepers. There is a difficulty in identifying young carers. We know of about 200 in Blackpool, but we are certain that there are some 600 more whom we simply do not know about—we cannot find them, they are not there. We often speak about the unmet need and how to reach the hard to reach. I fear that that is a perennial question in public health policy.

Platitudes abound in the debate on carers. I desperately try to avoid platitudes in anything that I do, but it is often difficult to avoid them when mentioning this topic. I should like some concrete steps to be taken that benefit carers, including benefit simplification. I have lost count of the number of times that I have tried to explain to people in my constituency that to be able to apply for the carer’s premium they must first apply for pension credit, which they know that they are not entitled to. The people that I explain that to find it illogical, and so do I, but it still seems to go on. Can we please try to change that?

When I first became involved in health policy some 10 years ago, the file in my office marked “Care” focused on the width of doors for wheelchairs as described in the Care Standards Act 2000. I watched the Minister raising care issues many times in the House of Commons. Carers week was regarded as a peripheral matter 10 years ago. The large queue in Portcullis House during carers week, for the photo opportunities and so on, was testament to the progress that is being made, but I still think that we have to go one step further. I may be a new MP, but I am already a little bit tired of photo opportunities—during which I stand beneath a Perspex stand, smile and shake hands—that are somehow meant to provide evidence of my commitment to an issue. I would rather MPs took fewer photo opportunities and visited more local carers centres, as many hon. Members in this Chamber have, to hear what is going on and speak to real carers. That would bring a bit more reality into this place.

It was good that the previous Government recognised that carers have a role to play, and I welcome that. However, we now have to focus on how we enable carers to live a more ordinary life: a life beyond caring. We need to start to fit provision around the needs of carers. As with too much in public life, we expect people to fit into existing tick-boxes on forms and woe betide them if their circumstances do not enable them to fit neatly into those boxes. That is not good enough.

We need to build provision around the individual. I know that that will be difficult, but not every carer wants to play bingo and not every young carer wants to go to the cinema of an evening. We all have individual requirements as carers. We are all individuals, after all, and we should remember that. I hope that the carers strategy that is being drawn up over the summer will mean that we will start to regard carers not just as a group with a label attached and a set of demands, but as individuals who need to be empowered. I look forward to seeing what emerges after the summer.