Paul Burstow
Main Page: Paul Burstow (Liberal Democrat - Sutton and Cheam)(9 years, 8 months ago)
Commons ChamberI am presenting a petition on behalf of my constituent Lauren Dobbe who is 14 years old. After many tests, she has been diagnosed with a disease called gastroparesis. There is a treatment: a gastric stimulator, which acts like a pacemaker. It is not a cure, but it helps with the symptoms. Unfortunately NHS England, which is responsible for funding this procedure, is dragging its feet. In addition to this petition, there is an online petition with more than 1,149 signatures from residents in Sutton, Cheam and Worcester Park. I am asking for common sense and compassion, and that NHS England act on the advice of four specialists and fund the treatment to give Lauren the most precious gift at Christmas—a normal teenage life.
The petition states:
The Petition of residents of the UK,
Declares that Lauren Dobbe suffers from Gastroparesis which causes her to be sick and suffer pain 24 hours a day, 7 days a week and requires her to be tube fed which denies her a normal teenage life; further that NHS England is causing unnecessary suffering and misery to Lauren and her family by delaying the use of a proven medical intervention to treat her Gastroparesis; further that the Petitioners regret that NHS England has failed to properly assess the case for funding the fitting of a Gastric Stimulator which would act like a pacemaker helping to control symptoms and would allow Lauren to eat normally; and further that this has happened despite the recommendations of four specialists and the second opinion sought by NHS England confirming the recommendations of the specialists.
The Petitioners therefore request that the House of Commons asks the Government to urge NHS England to review the application and make funding available for the fitting of a Gastric Stimulator for Lauren Dobbe and further request that the House of Commons asks the Government to urge NHS England to recognise that a failure to provide the procedure would condemn Lauren to a life being fed by tube, ignoring her wishes as well as those of her family and the independent and expert advice of clinical specialists.
And your Petitioners, as in duty bound, will ever pray. [P001414]