Autism

Patricia Gibson Excerpts

Thursday 29th March 2018 Commons Chamber

[Patricia Gibson (North Ayrshire and Arran) (SNP)]

Like all the speakers who have gone before me, I am delighted to speak in this important debate on autism, particularly as it takes place during World Autism Awareness Week. In common with colleagues across the House, I also want to put on the record my thanks to the right hon. Member for Chesham and Amersham (Dame Cheryl Gillan), who has blazed a trail in this area.

Today’s debate is important because for far too many people living with autism there is not just the actual condition to cope with, but, as we have heard, the isolation and often bullying and judgmental attitudes from a society or community that too often does not comprehend the condition. That is why we all need to work hard to raise awareness of it. In the longer term, the challenges that the condition brings can leave those living with it emotionally scarred, which in turn can lead to difficulties accessing employment and living a fulfilling life.

We know that 700,000 people in the UK are autistic, but many others we do not know about will be awaiting a diagnosis. Even if we take the 700,000 figure, however, and then factor in the relatives, it means that living with autism is a fact of life every single day for 2.8 million people. It is right and proper, therefore, particularly during World Autism Awareness Week, that we debate this important matter and recognise the challenges of the condition and how much more we must do as a society to meet them. Attitudes towards and awareness of autism are changing, but we still have some way to go.

We also need to understand, as the right hon. Lady pointed out, that autism is not a mental health condition. That said, as many as 71% of children with autism also live with a mental health challenge, such as anxiety, depression or obsessive compulsive disorder. Such mental health challenges are not inevitable, however, but the result, it seems, of the social isolation that autism too often brings. The Association of Graduate Careers Advisory Services found that 26% of graduates on the autism spectrum were unemployed—by far the highest rate of any disability group and more than double the average unemployment rate for disabled adults—and, although figures are hard to establish, it is thought that only 15% of autistic adults in the UK are in full-time work.

A large scale study in the British Journal of Psychiatry in November 2015 found that people with autism were more than twice as likely as their peers in the wider population to die prematurely, and recent work by the National Autistic Society found that only 16% of those living with autism and their families felt that the general public had a meaningful understanding of autism. Moreover, young people with autism are 28 times more likely than their peers who do not live with autism to have suicidal thoughts. That is the scale of the challenge; we have a significant way to go, despite having made some progress.

[Dame Cheryl Gillan]

I do not know if, in common with me, the hon. Lady received a briefing from the Royal College of Psychiatrists for this debate, but I was surprised to find that one in 10 psychiatry consultant posts were unfilled. We have a shortage of psychiatrists, which inhibits progress in this area, particularly in diagnosis and treatment.

[Patricia Gibson]

As the right hon. Lady’s intervention shows, meeting the challenge will not be easy. We still have huge mountains to climb to make life better for people living with this condition.

All these challenges show why we must continue to highlight the condition. It is important not just that people living with this condition can access the support they need but that they feel supported and that they live in a society that does not overlook, shun or ignore them, as has happened too often in the past. The challenges facing those living with autism are not inevitable. With work and education, and by raising awareness and understanding of autism in our communities, much can be done to counteract the negative outcomes they too often face. That is why I want to put on the record the sterling work done in my constituency by community campaigners Suzanne Fernando and her family, Jordan, Arron and Kester. The Fernando family live with autism every day and have worked tirelessly to raise awareness of the condition in their local community of Ardrossan and beyond, and have met with considerable success in doing so. Every year, they put in a huge amount of work to hold a coffee morning to disseminate information on the issue and offer support to those in the community living with the challenges of autism every day. As I have said, we know how isolating this condition can be.

[Mr Sheerman]

We are very impressed by the work that the hon. Lady’s group is doing, but I am slightly nervous about one thing that I am picking up in her speech. A lot of people I meet in the autism community do not like the word “condition”, because it presupposes that it is an illness, which it is not.

[Patricia Gibson]

The hon. Gentleman makes an excellent point. I shall try to refrain from using that word in the future, as I am sure we all will.

If we raise awareness and understanding of autism, the wider public will necessarily display more sensitivity, kindness and compassion towards those living with this condition, and it is this that will help to remove the shadow of loneliness and isolation that autism too often brings. We know that loneliness and isolation are very damaging to general health and wellbeing—their corrosive effects are as damaging as smoking cigarettes—so we could actually be saving lives.

It is not all bad news, however—progress has been made. I am proud that the Scottish Government in 2011 launched the Scottish strategy for autism, declaring that autism was a national priority. But the job is not done—not by a long way. We know that there is no room for complacency, and we can all play our part in developing our awareness and displaying understanding of the challenges and difficulties that those living with autism face every day. I hope that this debate and World Autism Awareness Week have played some small part in that, and that they demonstrate how seriously the House takes the issue.