Thalidomide Trust (Grant)

Debate between Norman Lamb and Andrew Jones

Thursday 20th December 2012 Commons Chamber

[Norman Lamb]

I appreciate the shadow Minister’s support for today’s announcement and she is right to say that people have waited far too long for an acknowledgment of the tragedy and for practical action. I acknowledge—as I did in my statement—the actions of the previous Government in initiating the pilot scheme, and the expression of regret made by the former Health Minister. One powerful thing about the scheme, as designed in the original pilot, is that it gives maximum power to the individual to determine and respond to their priorities and needs. That means that the money can be used in a host of different ways, as the hon. Lady described.

The hon. Lady raised a fair point about the devolved Administrations, and we must be equally concerned about thalidomiders in Scotland, Wales and Northern Ireland. The devolved Administrations did not feel able to commit to the 10-year period here and now, but they are fully committed to continuing that help and we will work closely with them to ensure that individuals in those Administrations are not left behind in any way.

The hon. Lady rightly mentioned the annual review, which is a question of proper accountability. The trust has done a brilliant job and I acknowledge its work. It is a completely responsible organisation that knows better than anyone how best to deploy the available resources, but as it acknowledges, it is right for it to be held to account for how public money is spent. There is no intention at all to question the purpose of the grant, and we want to give the certainty provided by the 10-year period. The fund will be index linked so that the value of money from the pilot scheme is maintained throughout that period. The review is simply to ensure that the scheme still makes sense and that we are using the available resource in the best possible way. I have every confidence that that will be the case and, as the hon. Lady requested, the needs of the thalidomiders who benefit from the money will be put at the heart of the reviews. We will not let those people down in the commitment that we are making today, and the funding will be maintained.

The hon. Lady rightly talked about deteriorating health because the body has been under such extraordinary strain. I spoke to thalidomiders earlier today. It is remarkable what their bodies have been able to do, often in the absence of limbs, but that puts an enormous strain them, and the wear and tear is now having its effect. We do not know what the prognosis is going forward. It is therefore right to take stock and see what their needs are after a 10-year period, but the commitment to those people must remain.

[Andrew Jones (Harrogate and Knaresborough) (Con)]

On 23 November, the first ever memorial to thalidomide victims was unveiled in Harrogate—a tree was planted and a plaque was unveiled to mark the 50th anniversary of the withdrawal of the drug. Thalidomide victims were present at the unveiling, which was carried out by Mr Guy Tweedy, a Harrogate resident and leading thalidomide campaigner.

The victims have waited a very long time for recognition, including financial recognition. I very much welcome the Minister’s comments, particularly those on the certainty required and the 10-year period, the challenges the victims face as they grow older and the sheer bravery that some have had to show during the course of their lives. I simply urge him to do all he can to support this special group.

[Norman Lamb]

I absolutely commit, on behalf of the Government, to do everything we can to support that group of people. As a society, we owe it to them to support them—they are often in very difficult circumstances. He is right to note the bravery that they have shown—not just the individuals, but their families too—in facing those circumstances.