Ehlers-Danlos Syndrome and Craniocervical Instability
Neil Hudson Excerpts(6 days, 10 hours ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Mrs Sharon Hodgson)
It is a pleasure to serve under your chairmanship, Ms Furniss. I thank my hon. Friend the Member for Cannock Chase (Josh Newbury) for securing this very important debate and for his excellent opening speech, in which he took great care to set the scene for us. I appreciate that.
My hon. Friend has been instrumental in bringing national attention to the challenges faced by people living with Ehlers-Danlos syndrome and craniocervical instability. Last year my predecessor in my role, my hon. Friend the Member for West Lancashire (Ashley Dalton), met him and his constituent, Connor Edwards, who has suffered greatly, as we have heard, from the impact of these devastating conditions. Connor has faced immense physical and emotional hardship as he has tried to navigate symptoms linked to EDS and CCI, enduring pain, uncertainty and long waits for answers, as we have heard. His experience reflects what too many patients and families have told us: that the system can feel fragmented, that they are often left to join up their own care, and that the lack of clear pathways can add to an already overwhelming burden. I want to assure Connor and others in his position that their voices have been heard.
Dr Neil Hudson (Epping Forest) (Con)
I thank the hon. Member for Cannock Chase (Josh Newbury) for securing this important debate. I apologise, Ms Furniss, that I was not in the Chamber for the beginning of it; my shadow ministerial role in relation to the Department for Environment, Food and Rural Affairs meant that I had to be in the main Chamber at the start of this debate.
Will the Minister join me in paying tribute to patients with Ehlers-Danlos syndrome and craniocervical instability—including my constituent in Epping Forest, Natasha Little—for their bravery and their advocacy in calling for the Government and the NHS to recognise the needs of people with these conditions, in terms of diagnosis, treatment and long-term support? Hopefully, this debate can be a catalyst for change.
Mrs Hodgson
I thank the hon. Gentleman on behalf of his constituent, Natasha, and I will make sure that I include her name later when I come on to name everyone referred to during the debate. I also thank him for managing to juggle and spin all the plates that we have to deal with as Members by making time to come along to this debate.
I also thank all the other hon. Members who managed to make it to this very important debate. We heard contributions from my hon. Friends the Members for Hitchin (Alistair Strathern), for Glasgow West (Patricia Ferguson), for West Dunbartonshire (Douglas McAllister), and for Stratford and Bow (Uma Kumaran); from my right hon. Friend the Member for Hayes and Harlington (John McDonnell); from my hon. Friend the Member for Truro and Falmouth (Jayne Kirkham); from the hon. Members for Strangford (Jim Shannon) and for Ashfield (Lee Anderson); from my hon. Friend the Member for Blaydon and Consett (Liz Twist); from the hon. Member for Tiverton and Minehead (Rachel Gilmour); from my hon. Friend the Member for Bury St Edmunds and Stowmarket (Peter Prinsley); from the hon. Members for Winchester (Dr Chambers) and for Epping Forest (Dr Hudson); and from the spokesperson for the Conservatives, the hon. Member for Fylde (Mr Snowden).
I also thank the hon. Member for Fylde for sharing his learnings from the experience of his sister, Kimberley, on her journey in treatment for epilepsy. As he explained, epilepsy is a well-known condition, especially in comparison with the conditions that we are discussing today. That was a very strong point, which I thank him for making.
I will not repeat the detailed clinical descriptions of Ehlers-Danlos syndrome and craniocervical instability that other hon. Members have already set out very clearly, but I do want to recognise the real and often profound challenges that people living with these conditions, and their families, face every day. I want those individuals to know that I hear them, and that I recognise the challenges they face and the uncertainty and distress that many describe. Their experiences will shape the Department’s ongoing work as we consider how services can better meet the needs of people living with these complex conditions.
NHS England continues to strengthen clinically led pathways for people with hypermobility-related disorders, with an emphasis on non-surgical management, co-ordinated physiotherapy, and pain management and rehabilitation, as is consistent with the best available evidence.
In response to the question from the hon. Member for Strangford about the number of people affected by these conditions, the Getting It Right First Time programme is supporting more consistent assessment and management of complex joint and spine conditions, and assessment of the number of people affected, helping to reduce the unwarranted variation in treatment that particularly affects people with EDS. The programme has a strong emphasis on robust, evidence-based and personalised pathways. Through RightCare, integrated care systems are supported to commission evidence-based pathways for long-term and complex conditions, including improved access to community-based musculoskeletal care, which many people with EDS rely upon.
My hon. Friend the Member for Blaydon and Consett mentioned some numbers in her contribution, quoting a ratio of one in 250 and saying that between 1% and 4% of the population are affected. I would imagine that those are the ballpark figures, but the Getting It Right First Time and RightCare programmes, which I have just mentioned, will look into that in more detail.
How can we facilitate better care and support? We need better clinical education, clearer referral routes and a stronger emphasis on shared decision making. We also need to recognise the burden of chronic pain and fatigue that comes with these conditions, and ensure that people can access appropriate services, even when a definitive single diagnosis may still be evolving. Where the evidence is established, the NHS should provide timely, appropriate care. Where evidence is uncertain, we have a responsibility to be transparent about what is known, what is not known and what options are supported by clinical consensus.
Patient safety must always be paramount, and decisions about invasive treatments must be made within appropriate specialist teams, with robust clinical governance, multidisciplinary review and clear plans to follow up. EDS illustrates why integrated care matters. Pathways must connect primary care, community therapy services and specialist support so that patients do not have to tell their story over and over again, or navigate multiple disconnected services.
Stronger evidence is also imperative. The Government support health research through the National Institute for Health and Care Research, and we want to see well-designed studies that can inform future guidance and reduce unwarranted variation.
Oral Answers to Questions
Neil Hudson Excerpts(2 months, 2 weeks ago)
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Ashley Dalton
As it is the ICB shared by my constituency, I am equally concerned. This will be explored as part of the review and I am more than happy to ask the Minister responsible to contact the hon. Gentleman further on how we can take that forward.
Dr Neil Hudson (Epping Forest) (Con)
The Minister for Care (Stephen Kinnock)
Rapid housing and population growth can put real pressure on GP services. That is why we are investing an extra £1.1 billion in general practice, taking total GP funding to £13.4 billion. We are also creating 250 neighbourhood health centres, upgrading surgeries through a £102 million fund, and working with the Ministry of Housing, Communities and Local Government to determine how developer contributions from new housing, through section 106 and the community infrastructure levy, can be improved to enable the delivery of local health services as an integral part of new housing developments.
Dr Hudson
As my constituency neighbour, the Health Secretary will be aware that Chigwell parish has no GP surgery of its own, requiring many of my constituents to travel to his constituency to access primary care. Given the Government’s top-down housing targets, what assurances can the Health Secretary provide that any new developments in Epping Forest will be accompanied by the delivery of adequate primary care infrastructure, rather than placing further pressure on already overstretched services? Will the Government support the long-standing call, championed by me, local Conservative councillors and Chigwell parish council, for the provision of a GP surgery within Chigwell parish?
Stephen Kinnock
I am not familiar with the details of that case, but I get the impression that my right hon. Friend the Secretary of State is. A really important part of our manifesto commitment was to end the 8 am scramble, which is all about access, and that is precisely what we are doing. In September 2024, patient satisfaction with ease of access stood at just 61%; today it stands at 73%. That is huge progress. It is all about getting better access, and building a primary care estate that is fit for purpose is a very important part of that. I would be happy to meet the hon. Gentleman to discuss the details of that specific case.
Budget Resolutions
Neil Hudson Excerpts(3 months, 4 weeks ago)
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Dr Neil Hudson (Epping Forest) (Con)
This Budget is entitled “Strong foundations, secure future”; sadly, it is anything but, with weak foundations and an insecure future. For all this talk of fair decisions, this Budget’s biggest scandal is that my constituents are not being given a fair deal in any way whatsoever. My constituents, like those of Members across the House, who work hard to support themselves and their families and who innovate and start businesses that provide jobs, have been deeply let down by this Budget and Labour’s previous Budget. My constituents and people right across the country will pay more while being deprived of investment in the services they need due to this Government’s political decisions.
My constituents, and those of the Health Secretary himself, were promised by Labour a full rebuild of Whipps Cross hospital, as started by the previous Conservative Government. The health secretary went as far as to say that he supported the “Whipps Won’t Wait” campaign before the election, but as soon as his Government were elected he changed his tune to “Whipps Must Wait”. As a result, Whipps Cross now faces a £170 million backlog of maintenance costs due to the Government’s delay. This rebuild and that of Princess Alexandra hospital in Harlow—again promised by Labour—are needed by my constituents now.
Folk in Epping Forest have some words for the Transport Secretary. The Central line is consistently delayed, overcrowded, and over-hot in summer, with screeching rail noise. The trains are in need of modernisation, and all this is compounded by horrendous graffiti like something out of Gotham City, which is getting worse day by day. Could the Transport Secretary have a word with the Mayor of London about investment in the Central line and deterrents for graffiti?
All those decisions come on top of choices that the Government had already inflicted before last week, none of which they have reversed with this Budget. The Government’s plan to jeopardise the heart and lungs of Epping Forest—its precious green belt—under the misleadingly termed “grey belt” is completely at odds with our constituency’s environment and natural beauty. We need the right homes in the right places, but we cannot have this top-down approach.
The rise in national insurance contributions in last year’s Budget means that businesses in Epping Forest face a dilemma: stop hiring new staff or freeze pay for existing staff. That cannot go on. While the Government choose to be ambiguous when it comes to spending, it is very clear where they can make savings. They could save £1.8 billion by cancelling their flawed policy on digital ID, or they could save £35 billion on their flawed Chagos islands policy.
Labour is also now waging a war on motorists by hiking fuel duty and disincentivising electric and plug-in hybrid car drivers with a mileage charge. That is not sustainable moving forward. We have seen political choices from a desperate Labour Government. It is sad that they have completely disregarded Conservative plans that would help our economy, such as scrapping stamp duty and abolishing business rates for retail, hospitality or leisure businesses.
The people of Epping Forest and the UK deserve better than the retrograde decisions made by this Labour Government. We need to push back against this high-tax, low-delivery Budget.
Oral Answers to Questions
Neil Hudson Excerpts(4 months, 1 week ago)
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Karin Smyth
My hon. Friend has been the most tireless campaigner on this issue since coming to the House in July 2024, so of course I will continue to work with her to support her local hospital. The previous Government neglected the NHS: those buildings were left to crumble and their new hospital programme was neither affordable nor deliverable. We are committed to reversing that decline and repairing hospitals like Doncaster Royal infirmary. That is why the trust will receive over £105 million in operational capital across the next four years to be allocated to local priorities, including repairs at Doncaster Royal infirmary.
Dr Neil Hudson (Epping Forest) (Con)
Clive Jones (Wokingham) (LD)
The Minister for Secondary Care (Karin Smyth)
In January we published an honest, realistic and deliverable plan that puts the programme on a sustainable footing, ensuring that taxpayers get the maximum value for money. We are committed to delivering all the schemes and are moving at pace, with funding in place for design work, construction and business case development. Outside the new hospital programme, we are investing £30 billion in day-to-day maintenance repairs of the NHS estate across this spending review period.
Dr Hudson
As my constituency neighbour, the Health Secretary will know that both his constituents and mine rely heavily on the Princess Alexandra hospital in Harlow and Whipps Cross in Leytonstone. Before the election, he promised the rebuild of the Princess Alexandra hospital and he supported the Whipps Won’t Wait campaign, yet under Labour it appears that both Princess Alexandra and Whipps must wait. Whipps Cross now faces an estimated £170 million in backlog maintenance, one of the highest figures in the country. Does the Health Secretary agree with me that rising maintenance costs must be taken into account when prioritising the new hospital programme?
Karin Smyth
Again, what the hon. Gentleman says is really quite astonishing: like everybody else, he knows that no money was allocated by his Government to the new hospital programme beyond last March. The Conservatives know that and they need to start being honest with their constituents—[Interruption.]
Hospitals
Neil Hudson Excerpts(11 months, 1 week ago)
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Dr Caroline Johnson (Sleaford and North Hykeham) (Con)
We can all agree that we want a world-class NHS, and that includes having the very best hospitals, technology and staff. I have been delighted to see the brilliant facilities created in my area, including a new A&E in Boston, new mental health wards at Lincoln county hospital, and new operating theatres at Grantham and District hospital. These upgrades mean that patients can receive the best possible care in appropriate settings, and staff can go to work each day proud of their workplace environment. However, we must be alive to the challenges that face the NHS. We live in an ageing society where people have more complex comorbidities. We also have a growing population, so there is more demand for services. In fact, the NHS treats 25% more patients every single day than it did back in 2010. New treatments, technologies and procedures have been developed, saving and improving lives, but they come at an ever more expensive price. We also had the covid pandemic, which I noticed the Minister did not mention.
According to the King’s Fund, in 2023 prices, spending on capital in Labour’s last year in office, 2009-10, was £6.9 billion. In 2023-24, that had nearly doubled to £11.4 billion. Even before the pandemic, capital spending was nearly £1 billion higher than when Labour left government. That helped us to open 160 community diagnostic centres and more than 100 surgical hubs, and to invest more in scanners, beds and operating theatres to deliver a million more checks, scans and procedures closer to home. We were committed to delivering the new hospital programme in full.
There was more to do. The challenges were evolving, the demand for care was growing and the pressure on the NHS was ever increasing. It now falls to the Labour Government to address those problems. I want them to succeed—that is in all our constituents’ interests—but what we have seen so far does not fill me with hope. One of the Health Secretary’s first choices on entering government was to pause the new hospital programme and put its future at risk. That was despite the fact that he and the Chancellor travelled the country throughout the election period, meeting candidates and promising a new hospital in their area. Just like the Government’s promises to the farmers, the pensioners and businesses, those were hollow words.
Dr Neil Hudson (Epping Forest) (Con)
The Conservatives committed to restoring and renewing our hospitals. My constituents in Epping Forest depend on the Princess Alexandra hospital in Harlow, and on Whipps Cross hospital in Leytonstone. Despite Labour making clear promises about those two vital hospitals prior to the election, the Labour Government have delayed their rebuilding. It is particularly galling because Whipps Cross has planning permission, and work on the car park has already started. Does my hon. Friend agree that the Labour Government should re-evaluate their priorities and crack on with delivering the rebuilds promised at the Princess Alexandra and Whipps Cross?
Dr Johnson
I absolutely agree that the Labour Government should do that, but unfortunately, we have learned that their promises do not mean much at all.
Winter Preparedness
Neil Hudson Excerpts(1 year, 3 months ago)
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Karin Smyth
My hon. Friend makes an excellent point. We need to get back to normal and we need to recognise that there are different things happening to the system at different times of the year, much of which is predictable. We need to ensure that the system is strong enough to be able to cope with those differences.
Dr Neil Hudson (Epping Forest) (Con)
As we come into the height of winter, will the Minister join me in thanking all the amazing people on the frontline who are diagnosing, treating and caring for people right across the country? With multiple infectious disease challenges, the impact of cold and extreme weather, and the risk of falls and accidents, will the Government please now rethink their policies on winter fuel cuts and national insurance rises, which will exacerbate the situation and compromise the delivery of primary healthcare, social care and hospice care?