Carers

Mark Durkan Excerpts

Thursday 20th June 2013 Commons Chamber

[Andy Sawford (Corby) (Lab/Co-op)]

I am grateful for the opportunity to take part in this important debate, which affects so many of our constituents around the country. I add my appreciation and congratulate the Members who requested the Backbench Business Committee to provide time for this debate, and indeed the Backbench Business Committee itself on recognising the significance of this issue. This debate is timely because many Bills and other measures either before the House or to be debated over the coming weeks and months will have a huge impact on carers.

Before dealing with that, I want to speak about why this issue is so important to many of my constituents. There are 14,980 carers in Corby and East Northamptonshire —a rise of 23% over the last 10 years, which is higher than the 11% rise nationally. There are nearly 3,500 carers in Corby and East Northamptonshire who care for more than 50 hours a week—a rise of 40% over the last 10 years, which is far higher again than the national average increase of 25%. Of those nearly 15,000 carers in my constituency, more than 8,000 are juggling work and caring, which presents many issues.

I support the points that other hon. Members have made about the need for employers to demonstrate really good practice in this area and support employees who have caring responsibilities. I agree with my hon. Friend the Member for Worsley and Eccles South (Barbara Keeley) in deploring the fact that the Independent Parliamentary Standards Authority is not prepared to set a good standard in this place, where Members are not allowed to grant their staff compassionate leave. I think we should be an exemplar in this and should work together across the House to urge IPSA to change its practice.

In my constituency, many people are employed through employment agencies. Even where there are opportunities for employers to show their employees that they are good and caring, many of my constituents will not be touched by that. They will find that they are not able to continue working and caring. My hon. Friend the Member for Inverclyde (Mr McKenzie) referred to the amount of the carer’s allowance. It does not compare well with jobseeker’s allowance, for example. We should have an aspiration to improve it. In recognising the significant number of people involved and the huge cost implications of trying to increase the support for carers out there, we must also recognise that the carer’s allowance provides a very small amount for our constituents to live on. The financial challenges, as other Members have said, are getting much tougher at the moment.

I attended various events during national carers week, including the event here in Parliament. I want to congratulate all the organisations that came together to organise national carers week. I met people from the Multiple Sclerosis Society, Marie Curie and other organisations, who told me about their experiences. I think they were absolutely right to bring carers themselves to talk to us here in Parliament about their experiences. They reflected many of the conversations I have had with my own constituents. I met a carer who cares for his wife who has MS and a former carer who cared for her husband who had cancer. They both asked me to champion raising the carer’s allowance. That is what I want to do today.

Carers UK’s analysis of the recent census shows that the fastest-growing group of carers are people over 65 with caring responsibilities. There has again been a much more significant rise in those numbers in my constituency than nationally, with a 35% rise of older carers nationally compared with a 62% rise in Corby and East Northamptonshire. I am determined to engage with local organisations—including charitable and voluntary organisations that work with carers, but also local authority and local health bodies—to try to understand why the rise is so significant in my constituency, the extent to which those bodies have been able to respond to it and whether that trend will continue.

Carers over 65 who receive the state pension are, as hon. Members have said, unable to receive carer’s allowance—despite the fact that they still face additional costs as a result of caring and have often lost earnings from retiring early to care. What plans do the Government have to provide more practical and financial support to people who spend their retirement caring for their partners, adult disabled children or their own older parents? My own parents are approaching retirement and they, like many people nowadays, find themselves part of what is called the sandwich generation. They not only help me to bring up my children, providing lots of extra help and support for child care, but increasingly find that they are taking on a care and support role for their parents. That matter should concern all of us. It is particularly important in the context of our full knowledge that we have an ageing population, which will present a growing challenge for us.

Carers UK figures show that carers are out of work for an average of five years as a result of giving up work to care for an older or disabled loved one. Many struggle to return to work afterwards, yet find that their carer’s allowance stops very quickly. What support can be provided to help carers when caring comes to an end to ensure that they do not fall into financial hardship as a result of losing carers’ benefits? What can we do to help them return to work, retraining where necessary?

I recently met a lady who came to my surgery in Raunds to talk to me about her experience. Her particular concern was about the impact of the bedroom tax, but she also told me how her life of caring for her husband had come to an end as he sadly passed away. She told me how unsupported she felt in the months afterwards, as some of the help and support she had hoped for—previously in place in part because of her caring responsibility—was taken away from her. She then found she had to contend with the bedroom tax on her large family house. She had no choice—either move from her family home quickly as she grieved for her husband or face financial destitution. I felt incredibly sad that she faced that situation.

I was recently visited by my constituent, Mags Maguire, who told me about her mum, Mrs McKay. She asked for my help in trying to ensure that a care package was in place for her mother. I have tried on her behalf; I have, unfortunately, not made sufficient progress, but I will keep trying. Mags herself is a resourceful person. She recently contacted the occupational therapist again to describe the situation she faced. The occupational therapist replied:

“Hi Mags, just to let you know...We rarely prioritise cases as critical, as this is for cases where if something is not done immediately it will be a case of life or death and if there is nothing else that can be done and provided to reduce that risk in the interim and the major adaptations are the only way to reduce risk. We can still be waiting 12+ months for works to be done under a ‘critical’ priority as the amount of funding available will affect the waiting list times.”

Mags is merely requesting some small adaptations to the home in which her mum lives, and it seems to me that that ought to be possible.

The occupational therapist continued:

“I could not prioritise the case as urgent as Mrs McKay has a care package to meet her personal care needs and meals and also family to support.”

The “care package” is, in fact, the family support. The family get Mrs McKay up in the morning, and the family provide the meals. The “care package” is not provided by anyone other than the family members themselves.

I have personal experience, in that my granddad cared for my nan for many years. He died on the day after Boxing Day, 18 months ago. He undertook those caring responsibilities without any help or support—which, of course, saved the taxpayer a huge amount of money—and he undertook them willingly because he loved my nan hugely and they had spent their whole lives together, but by the end of his life his own health had suffered greatly because of the extra responsibility that he had taken on as a carer. He would have been happy to continue that responsibility, but an intervention should have been made earlier to provide him with at least some additional help and support.

What was even worse was that after granddad died, we tried to arrange care and support for my nan, but for a long time were unable to do so. Then, late last year, I walked up her garden path to find that she was not sitting in her usual chair. I tapped gently on the window, as I always do, in order not to alarm her, and saw that she was lying on the floor. Fortunately there was a key in a safe and I was able to get into the house, where I called 999. My nan was unconscious for four days, and only after that were we able to obtain the care and support package that she needed. It should not take a stroke to secure a decent package of help and support, it should not take such a long time, and it should not be at the huge cost of the health of a partner, children or other carers.

I think it important to look at the opportunities with which Parliament will be presented in the coming weeks and months. The Care Bill will consolidate and simplify decades of social care legislation in England, and I welcome some aspects of it, but it is disappointing that the new rights that it confers will apply only to adults. I was a member of the Committee that considered the Children and Families Bill. We pressed the points about young carers, and we were given some assurances. We received the same assurances on Third Reading, but the Government have still not explained fully how young carers will be supported in the same way as adults. I should like to see the details of their amendments as soon as possible.

There are, of course, significant areas of disagreement between Government and Opposition on both those Bills, but we also welcome their positive aspects, which are due in no small measure to all the outside organisations that have helped to inform Parliament throughout the passage of the two Bills. Those organisations have contributed a huge amount, but I fear that, unless we see those amendments soon, they will have no real opportunity to contribute to the shaping of measures to help young carers.

I want to say something about social care funding, but I must be briefer than I intended to be, so that other Members can speak. I should like the Government to think about the fact that the Dilnot cap does not cover charges for carers’ services. They may say that they do not intend local authorities to charge for those services, but we must recognise that all authorities face a huge funding challenge, and charges are therefore quite possible.

As for the Welfare Reform Act 2012, the carers to whom I have spoken welcome the Government’s decision to retain carers allowance as an independent benefit rather than subsuming it in universal credit. However, there is serious concern about other aspects of the Act. Following the introduction of personal independence payments, 600,000 fewer disabled people will be entitled to support—600,000 people whom I think we should be trying to help. Moreover, 10,000 fewer carers will be entitled to carers allowance and about 5,000 will be subject to the household benefit cap, losing an average of more than £100 a week.

Two thirds of those affected by the bedroom tax are disabled, but the discretionary money set aside for councils to support disabled people would be sufficient to support only one in 10 of them. Local authorities are in a very difficult position. I have been in touch with my own council in an attempt to secure discretionary support, but it simply does not have the money to provide the help that it knows is needed.

[Mark Durkan (Foyle) (SDLP)]

As the hon. Gentleman knows, the Government constantly say that their aim is to help those who play by the rules and do the right thing. It is clear from what he and other Members have said that carers are people who do the right thing—who are motivated to do the right thing—and who play by the rules. Why should they be victimised by cruel rules that are being introduced as part of the Government’s welfare reform measures?

[Andy Sawford]

I entirely agree with the hon. Gentleman. Some of my constituents who are affected by those measures do feel victimised. What the hon. Gentleman said about fairness is absolutely right. We all want changes to be made in a fair way, but many of my constituents—not just the disabled people and carers who are affected—recognise the unfairness of the measures. The Government should think again about many of their proposals. I urge them in particular to take account of what Members have said today about the bedroom tax.

There is much more that I could say, but I know that other Members wish to speak, so I shall end my speech.