Christmas Adjournment

Debate between Marion Fellows and Paul Sweeney

Thursday 20th December 2018 Westminster Hall

[Marion Fellows]

I thank the hon. Gentleman. He spoke about the dangers that some young people, in particular, are going through as a result of using it. He really wants the drug to be reviewed and perhaps its use halted, to save people from the horrendous symptoms that they can experience.

The hon. Member for Keighley (John Grogan) spoke about rugby league. Yes, I remember it when I was growing up; I remember Eddie Waring and Keighley in their heyday. I know that he spoke about other things, too, but I really have to move on.

The hon. Member for Harrow East (Bob Blackman) gave us a very sobering reflection on religious freedom and how important it is in this country. He talked about Jainism, about Sikhs and about the problem of getting religious information on censuses.

I was quite horrified to hear about the wildcats on “Good Morning Scotland” this morning. As the hon. Member for East Lothian (Martin Whitfield) said, they have been interbreeding with feral cats, which is an animal welfare issue. He also talked about Brexit and universal credit.

The hon. Member for Cleethorpes (Martin Vickers) gave a great summary of the previous speakers; he was probably much better at that than I am. I am grateful to him, in that respect, because I have been able to rush through some of the others. He also spoke very knowledgably about the work of his two local authorities, as well as speaking about Humber ports and direct rail connections.

The hon. Member for York Central (Rachael Maskell) spoke about post offices. As Members will know, I have a personal interest in them, having lost my own post office. The post office in Wishaw was closed for three weeks, because it was not possible to get another person to take over the sub-postmastership, which caused my constituents great suffering. She also spoke about NHS land and what happens to it, which is another real issue, as did the hon. Member for Stafford (Jeremy Lefroy), who also talked about drones. I cannot get an earlier flight from London City airport because what has happened at London Gatwick has had an impact right across the United Kingdom; it is really serious. He also talked about work overseas, especially in Africa, and I am grateful to him for some of the knowledge he gave me that I did not have beforehand.

I seriously hope that I have not missed anyone out. I will move on to the hon. Member for Glasgow North East (Mr Sweeney), who has had a very interesting time since he became an MP. He cut right through a number of things. He is an enthusiastic supporter of the Glasgow School of Art, which is in the constituency of my hon. Friend the Member for Glasgow Central (Alison Thewliss). His own constituency has the famous St Rollox rail works, which I know. My husband took me to Springburn on our honeymoon, to show me where he had been born and lived. However, when we turned the corner, we found that the building he had been born in had been demolished. I make light of it, but there is Springburn Museum for the hon. Gentleman’s delectation and delight, in which there is a picture of my husband on coronation day in 1953, watching his sisters in a race to celebrate the Queen’s coronation. I will not mention where I was then.

With your indulgence, Mr Robertson, I will mention my own constituency of Motherwell and Wishaw, of which I am extremely proud. It is a haven for refugees and has been since 1919. The first group that I can remember are the Lithuanian refugees who came over after the first world war. There have also been Polish refugees and, more recently, Congolese refugees, who were taken to Motherwell, and the Syrian refugees, who have also been placed and welcomed in my constituency. Indeed, when there was a move by some right-wing organisations to demonstrate against refugees being settled in Wishaw, I am very proud to say that many citizens of Wishaw stood at the bottom cross in Wishaw and campaigned for the refugees’ successful integration, which I believe is really happening. In Motherwell and Wishaw, when children of refugees go to school and meet local children, it becomes a real exercise in getting along together.

I will also talk a bit about what I did as an MP when I was first elected in 2015. We saw a need and we set up the Poverty Action Network, because we knew there were lots of local organisations fighting poverty and we wanted to bring them together and facilitate the exchange of ideas. We have the Basics food bank; St Vincent de Paul; Lanarkshire Links; Voluntary Action North Lanarkshire; Scottish Action for Mental Health; Neighbourhood Networks; Made4U in ML2; Citizens Advice; Motherwell Baptist Church; Safeguarding Communities—Reducing Offending, or Sacro; Women’s Aid; Routes to Work; Big Lottery Fund; Christians Against Poverty; The Haven; Lanarkshire Community Food and Health Partnership; North Lanarkshire Disability Forum; Alzheimer Scotland; Getting Better Together; NL Leisure; Motherwell Football Club Community Trust, because Motherwell is now a community-owned football club; Families Against Murder and Suicide; Chris’s House, which helps families who have suffered the suicide of a family member; Lanarkshire Cancer Care Trust, to which I am especially grateful as it transported my late husband to a hospice on a weekly basis; Community Care Scotland; North Lanarkshire Carers Together; Wishaw, Murdostoun and Fortissat Community Forum; South Wishaw Parish Church; Miracle Foundation, which provides parties and support for young children who have lost parents or other close relatives; Lanarkshire Baby Bank; One Parent Families Scotland; the Welfare Rights Team in North Lanarkshire Council; North Lanarkshire Partnership; Scottish Welfare Fund; NHS Lanarkshire; and Police Scotland, especially the police based in Motherwell.

[Mr Sweeney]

I loved hearing about the history of the hon. Lady’s connection with Springburn. Sadly, Springburn Museum has now closed down, but I hope that the wonderful exhibit she referred to can be recovered for the renewed Springburn Museum in the winter gardens, which I mentioned.

I also just wanted to say that I was really impressed by the reference to Motherwell, which I did not realise was a co-operative or a fan-owned club. Perhaps that is a great sign of Scotland’s tradition of the co-operative movement, and perhaps in 2019 we can see a further extension of the wonderful co-operative movement in Scotland and across the UK.

[Marion Fellows]

I thank the hon. Gentleman very much for his intervention. It gives me a chance to say that Motherwell Football Club Community Trust does very good work because it is able to reach groups that other organisations cannot reach, such as men who have not worked or men with drug problems, by bringing them into the stadium. Generally it is men they bring in, although I hope to buy a half-price season ticket in the new year.

I, too, have been doing a lot of work on universal credit. It has been rolled out in North Lanarkshire for about nine months now, and we had the manager who was responsible for its introduction in Lanarkshire at one of our Poverty Action Network meetings. I have to say that some of what she said did not chime with the reality of what has happened, but I do not blame her personally. Nevertheless, there are still real differences and real challenges to be met, because universal credit is causing great hardship, both for those who receive it and for North Lanarkshire Council, whose rent arrears have risen astronomically.

In fact, one of the things that has most made me proud, and most made me upset, is that in the last two weeks I have been to food bank drives—I ran one myself in Motherwell town centre and the local Tesco ran one, too—and when I spoke to the fundraiser in Tesco, she said, “Marion, we don’t even have to tell them what to do. We don’t need to hand out the leaflets. They know what to buy, and they buy it in bulk. And it’s often those who have the least who help the most.” I pay tribute not only to my own constituents, but to constituents all over the UK who make these donations. And may I just say that in the 21st century, it is shameful indeed that we need to do this?

Mr Robertson, I have tested your indulgence, and I want to make sure that both the hon. Member for Bristol South (Karin Smyth)—the Opposition spokesperson —and the Minister get a chance to contribute to this debate, so I will stop there.

 Orkambi and Cystic Fibrosis

Debate between Marion Fellows and Paul Sweeney

Monday 19th March 2018 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship, Sir Roger.

Where do I start to sum up this debate? It has been a truly awesome experience, and I congratulate and thank all the Members who took the time to attend. I have rewritten my speech all the way through the debate, which I will try to summarise as best I can.

The petition was signed by 371 of my constituents. As has been said, the general public care about this. I thank the Butterfly Trust, which is the CF charity in Scotland, the Cystic Fibrosis Trust and the CF support group for parents in Scotland for all the assistance they gave me to prepare for the debate. We heard many passionate and informed speeches. There is true cross-party agreement. We heard how CF sufferers could benefit from Orkambi and how it could transform their lives.

I must declare a personal interest. My 16-month-old granddaughter Saoirse was diagnosed with cystic fibrosis shortly after she was born. On hearing about the debate, my daughter-in-law enlisted all of her friends and family to sign the petition, even though she knows that Orkambi will not help her daughter. Vertex is developing new treatments all the time, and the use of Orkambi can only help that research.

Saoirse is lucky—she is pancreatic sufficient, which means she can digest food—but she is on daily antibiotics and additional treatments. As a grandmother, watching her going through physiotherapy is heartbreaking. Her parents were told that they must not comfort her as she needs to get used to it, because she will need physio for all of her life. She cried, and I cried. Her grandfather, who is here today, cried, too. However, she is getting used to it. CF sufferers and their families are amazing people—I discount myself from that. They care about each other. The proof of that is here today, in more than 100,000 signatures and so many Members taking part in the debate.

I pay special regard to the hon. Member for Dudley North (Ian Austin). I apologise that I could not attend his roundtable—I have serious family illness at the moment. The fact that so many Members attended shows how important this is to both Members and their constituents. We do things not just because we want to, but to help our constituents. He talked a lot about the cost of Orkambi and how we should look better at cost-benefit analysis. We should also look at the contribution that CF suffers could make, were they able to. We must all deeply reflect on that. As he said, when an everyday drug is denied to CF suffers, that is another day when their lung power is damaged. We cannot allow that to continue.

As one of my colleagues stated, the Scottish Government are working hard to improve access to drugs such as Orkambi through changes to the individual patient treatment request to ensure that patients in Scotland get access to the right treatment at the right time. Orkambi could be accessed through that, but the Scottish Government’s role is to try to ensure that everyone in Scotland gets equal treatment, which is important all over the UK. There should be no postcode lottery for treatment.

[Mr Sweeney]

Does the hon. Lady agree that the Scottish Government and the UK Government should consider an interim acceptance period for drugs under active price negotiation when organisations such as the Scottish Medicine Consortium have agreed that there is a clinical benefit? That would be a good way to ensure that people get immediate access. Two years is two years too late for many people.

[Marion Fellows]

I agree with the hon. Gentleman. We are talking about people whose lives are shortened and people whose lives are deeply affected. These people could be of such benefit to society as a whole. It is difficult for me to think beyond my granddaughter, and it is also difficult to listen to stories of what might happen. I know she is lucky, but I also know and am passionately concerned about other children who are even more affected by CF than she is. We owe it to them and to people who will inherit CF in future.

I have to be a carrier of the CF gene, and my husband must also be a carrier. We were so lucky that none of our children were affected. It is a terrible, silent disease. The fact that CF sufferers cannot even get together for comfort and mutual support—it all has to be done through parents’ groups—is even more heartbreaking.