PANS and PANDAS

Marion Fellows Excerpts

Tuesday 12th September 2023 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairship, Mr Dowd. I thank the Backbench Business Committee for granting, and the hon. Member for North East Fife (Wendy Chamberlain) for securing, this really important debate. I also thank PANS PANDAS UK for its briefing and for the work that it is doing to make more people aware of this terrible condition.

The hon. Member, in her very interesting speech, covered all the various things that families suffer when their children have PANS or PANDAS. It is terrifying for me, as a mother and grandmother, to listen to the horrifying stories from across the Chamber. I am a frequent visitor to Westminster Hall, but I have scarcely ever heard things more profoundly distressing or more echoed across the Chamber. There is a united presence here, and we really need to hear something from the Minister today.

I will not rehearse everything that the hon. Member for North East Fife and other Members said, but the fact that families are having to turn to private healthcare is really upsetting. I know from personal experience how difficult it can be to raise awareness of lesser known conditions and illnesses; I work closely with Sarcoma UK. Let me say this to the folk in the Public Gallery: “Keep at it—keep raising awareness. You have people on board here, in Parliament, and you just need to keep plugging away.”

Anything and everything that we say here today is important, and I know the importance of cross-party support. As the hon. Member for North East Fife knows, I am not in government, but my hon. Friend the Member for West Dunbartonshire (Martin Docherty-Hughes) has been in touch with Scottish Ministers. I will also speak to our health spokesperson and I too can write to the Scottish Health Minister on this issue.

I understand how difficult it is for GPs to know everything. I am well aware that, with regard to sarcoma, I was very lucky that my husband’s condition was picked up by our GP. He has had only two cases of that in the last 40 years he has been in practice. For PANS and PANDAS, we need to get the message out there through training and by taking up the very good suggestion by the hon. Member for South West Bedfordshire (Andrew Selous) that we should all send leaflets to our local GPs. As we say in Scotland, many a mickle makes a muckle. Even if we do only small things, we need to push forward with this.

I urge clinicians to recognise the condition, as that will help to ensure that NHS boards and trusts, and the equivalent in England, provide the necessary support. I also urge all parties—I can only do this in relation to Holyrood, for Members outwith the UK Parliament—to gain a better knowledge and understanding and really push the Scottish Government from that angle as well. I am sure that the hon. Member for North East Fife would agree that if folk, and MSPs especially, know about this condition, that will empower them to challenge the Scottish Intercollegiate Guidelines Network to ensure that people move this issue forward.

I think it is really important that the Minister responds to the points that have been raised. There are many people in this room—especially behind me in the Gallery—who want to hear what she has to say. Families across the UK need NHS help in their distress and for their children. I look forward to hearing what the Minister has to say.