Obesity and Fatty Liver Disease Debate
Full Debate: Read Full DebateMarie Rimmer
Main Page: Marie Rimmer (Labour - St Helens South and Whiston)Department Debates - View all Marie Rimmer's debates with the Department of Health and Social Care
(1 day, 21 hours ago)
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It is a pleasure to serve under your chairmanship again, Mr Efford. I thank my hon. Friend the Member for Worthing West (Dr Cooper) for securing this important debate. It is a pleasure to follow all the hon. Members who have spoken; we are all concerned about what is happening in our constituencies. This issue was brought to my attention by a constituent whose father had died—I will go into her human story later. After speaking to her in Portcullis House, I wrote to every practice in my constituency highlighting the facts of St Helens, in case they did not know them—and that is no disrespect to our medical professionals.
Before I go into some facts, I thank the British Liver Trust and the Foundation for Liver Research, which have worked closely to prepare a joint debate briefing for MPs. I also recognise the excellent work by the Foundation for Liver Research at the Roger Williams Institute of Liver Studies, which continues to drive world-leading research in metabolic liver disease to help to shape how it is diagnosed and treated.
Sadly, St Helens has the highest rate of deaths from liver disease in England, at 43.5 per 100,000, and the second-highest rate of deaths from fatty liver disease. The north of England consistently has the highest rates of liver disease and obesity, and premature mortality from liver disease is as much as six times higher than in the least deprived areas of the country. My constituency suffers at the knife-edge of this crisis: premature death rates from liver disease in St Helens were the worst in the country in 2023, at 43.5 per 100,000—double the England average of 21.9 per 100,000. Premature death rates from fatty liver disease in St Helens were twice the national rate, and the rate of overweight or obese year 6 children is 41.2%, which is markedly higher than the national average of 35.6%.
The NHS Cheshire and Merseyside integrated care board that covers my constituency has in place only a partial pathway for the early detection of liver disease, despite the north of England having the highest rates of death and hospitalisation from liver disease. As of 2023, it did not have a named person responsible for liver disease, and only Liverpool carries out proactive case-finding for patients at high risk of liver disease. The inconsistencies in care that face my constituents and many more people are played out across England, placing thousands of patients at high risk of developing serious liver outcomes.
I will turn now to the human impact of obesity and fatty liver disease, speaking on behalf of one of my constituents, Sara, the young lady I met with her widowed stepmum. They have asked me to speak out and share their story. Sara’s dad, Stephen, was diagnosed with type 2 diabetes in 2000 and told he had a fatty liver in 2014, but not to worry about it. He received a liver scan two years later, after which no further action was taken. It was only when Stephen was admitted to hospital in 2024, for an unrelated condition, that he was diagnosed with advanced fatty liver disease, and he sadly died from the disease a few weeks later, aged 62.
Sara said:
“I know everyone thinks their dad is amazing, but mine really, really was. He was a gentleman in every sense of the word and was so kind, loving and generous. To say we’re shocked, devastated and heartbroken at his death due to MASLD (metabolic dysfunction-associated steatotic liver disease) and HE (hepatic encephalopathy) is an understatement. He was just 62 and had so much to look forward to.
My dad Stephen wasn’t a drinker, but liked a sweet treat every now and then when he was diagnosed with type 2 diabetes in 2000. His diabetes was well managed and he didn’t need much in way of medication due to his healthy lifestyle. Dad especially loved cycling and walking in the Lake District. He did everything right, but it wasn’t enough.
In 2014 blood tests revealed deranged LFTs and in his annual diabetic reviews my dad was told he had an abnormal liver but not to worry about it. He was never referred to anyone and the only scan I can see in his medical notes was in 2016, then nothing.
In April 2023 he was feeling really lethargic which his doctors thought was an iron deficiency and prescribed tablets. He told my sister his blood results had come back fine, adding: ‘Nothing to worry about, love, I have a fatty liver, but I’ve always had a fatty liver’. By September Dad was quite withdrawn, forgetful, slurring his words, and kept going back to bed. The doctors were doing lots of tests and thought it might be something neurological like Parkinson’s Disease, but still weren’t looking at his liver. By December my dad was like a zombie and I thought could it be depression. If only we had known then that they were mild HE episodes.”
As Stephen’s family come to terms with their loss, his daughter Sara and widow Dorothy have been campaigning with the British Liver Trust to raise awareness of fatty liver disease and its causes, and the urgent need for early diagnosis and effective national liver care pathways. It is those two ladies who brought this issue to my attention. One of their key asks is as follows:
“We need assurance from government that the NHSE Liver Transformation Programme will be extended (as NHSE transition into Department of Health) and that the programme will be properly funded and resourced to ensure consistent care and early detection across England.”
I will add to that a request for ICBs to look at the illnesses in their area and focus their attention on their community and our constituents.