Thursday 3rd June 2010

(13 years, 11 months ago)

Lords Chamber
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Lord Rix Portrait Lord Rix
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My Lords, it was just over 18 years ago that, during the debate on the gracious Speech, I made my maiden speech from this side of your Lordships’ House, from this very Bench, flanked by Lord Allen of Abbeydale and the noble Earl, Lord Snowdon. I must say that the House was somewhat better then than it is today.

I made reference then to the labels—often unacceptable and hurtful—which apply or have applied to people with a learning disability. I was then the chairman of Mencap, but for the past 12 years I have had the honour to be that society's president. I am delighted to report that, during this time, opportunities and quality of life for many people with a learning disability have improved considerably. As an example, the closure of overcrowded, austere and remote institutions—comparable to prisons rather than hospitals—has been particularly welcome, and ensures that more people with a learning disability are no longer hidden away, out of sight and out of mind, but are able to enjoy the benefits of living in their own local communities, making friendships and forming relationships. This is a thoroughly good thing and we must build on this progress.

It would be remiss of me if I did not place on record my personal appreciation of the work of successive Governments and pay tribute to all those who have helped to make this happen. The extent of this progress is reflected in the different tone of language and terminology used with respect to people with a learning disability over this time. At the time of my maiden speech the term “mentally handicapped” was used, but the term “learning disability” is more suitable for the modern day. However, since it can be confused with “learning difficulty”, no doubt the label will change yet again. But in many respects the use of language is the easy part. There is still a great deal more progress to be achieved if the 1.5 million people in our country with a learning disability, and their families and carers, are to be fully empowered and enjoy the opportunities of living independently, along with dignity and respect, and if the scourge of bullying is to be totally eliminated.

I take this opportunity to congratulate all noble Lords who have been appointed to the coalition Government and wish them every success in their new roles. The single biggest challenge facing the coalition Government—reducing the public deficit by reducing public expenditure—also poses a considerable threat to the quality of life experienced by people with a learning disability, their families and carers. I strongly urge the coalition Government to recognise this threat and ensure that people with a learning disability do not become the unintended victims of centrally driven, yet locally delivered, “efficiency” savings. Those who can afford it the least must not be expected to pay the most.

Twenty-two separate Bills were set out in the Queen's Speech, but I shall refer only to those which have the greatest interest from my point of view. The welfare reform Bill aims to simplify the benefits system while increasing incentives to find work. Many people with a learning disability want to enjoy the benefits of going to work and living more independently but, due to ever-present prejudice and discrimination, are unable to do so. Latest government statistics reveal that while 48 per cent of all disabled people are engaged in some form of paid employment, for people with a learning disability this figure is just 10 per cent. Regrettably, this figure has remained at this level for the past 10 years. I seek assurances from the coalition Government that the welfare reform Bill will be used as an opportunity to abolish much of the bureaucracy that prevents people with a learning disability from getting a job and that it will instead provide the support and assistance that will help empower them so that they can have an even greater control over their own lives.

In the area of education, the gracious Speech referred to a couple of Bills: one, the Academies Bill, will introduce legislation to enable more schools to achieve academy status; and the other, the education and children's Bill, will act as a companion piece to the Academies Bill. I recognise the coalition Government's aim of driving up standards and increasing choice in education and the opportunities provided by greater freedom to be more innovative and creative in delivering education on the ground. However, I seek assurances that, as a consequence of these greater freedoms, children with a disability and their parents will also have the opportunity to enjoy the promised benefits and advantages of receiving their education within an academy or a so-called free school. Due to the seven-minute time limit, I have had to cut many of the things that I wished to say about education. However, I am glad to say that the Academies Bill, which is due to have its Second Reading on Monday, has been able to house all the notes that I wished to speak on now.

The final piece of legislation referred to in the gracious Speech on which I wish to comment is the health Bill. The coalition Government's aim is for the voice of patients and the role of doctors to be strengthened in the National Health Service. I welcome the Government's intentions to devolve greater power to patients and hope that this will lead to a reduction in the health inequalities often faced by people with a learning disability when they attempt to access healthcare in the NHS. Mencap’s widely regarded Death By Indifference report and the subsequent inquiries highlighted the tragic experiences faced by six people with profound and multiple learning disabilities and the reasonable adjustments that healthcare professionals must make in order to listen to a patient’s family and not make assumptions about a person’s quality of life and health just because they have a disability.

In conclusion, I hope that the new coalition Government are successful in delivering their stated aim of promoting freedom, fairness and responsibility. With those guiding principles at its core—most notably fairness—I very much hope that people with a learning disability can feel that they too have a stake in this Administration and that it will help them to live more independent, free and prosperous lives. Whether that be in the fields of welfare reform, education, health or even culture, I look forward to working with the new coalition Government to improve the lives of people with a learning disability and their families and carers. For the past 18 years, successive Governments have done their best in this regard. I cannot believe that a coalition Government cannot do even better.