Disability Services

Lord Patel Excerpts

Thursday 10th January 2013 Lords Chamber

[Lord Patel]

My Lords, I am pleased to have the opportunity to speak in this debate and I thank the noble Lord, Lord Boateng, for initiating it.

When I read the well-researched report produced by the charity Scope, and several others that I have looked up, and the many obstacles that disabled people in the black and minority ethnic communities have to face, it led me to reflect back to the days of discrimination based on colour, how long it took for us to address the issue and the legislation required to get rid of it.

Studies now show that people with disabilities—black, ethnic minority and white—face similar discrimination, but those from black and minority ethnic communities face further discrimination based on a lack of understanding by those who commission and provide services. Other noble Lords have already mentioned examples, such as the need for better and appropriate communication, the lack of understanding of the stigma attached to disability in some cultures, health services both for physical and mental health, and the failure to understand the differing needs of black and minority ethnic people with disabilities.

We have heard on several occasions in this Chamber how people with disabilities are discriminated against, particularly from the noble Baronesses, Lady Campbell of Surbiton and Lady Grey-Thompson. The noble Baroness, Lady Grey-Thompson, described how she becomes invisible when trying to get a taxi or catch a bus, despite being one of the most recognised faces in the land.

The Scope report findings confirm that there is discrimination against people with disabilities in black and minority ethnic groups. It says:

“We found little evidence of direct racism in service provision and encountered no reports of staff being explicitly discriminatory. We did find evidence of discrimination on the grounds of disability … Consistent low-level discrimination can have a serious impact on people’s wellbeing. Non-discriminatory practice is about more than accommodating cultural preferences”.

The Scope study also identifies several issues relating to health—issues that commissioners and providers of health services should be aware of, and I hope that the Government will make sure that the Department of Health notices this report. It goes on to state that,

“black and minority ethnic disabled people are … less likely to access healthcare services. Evidence shows that they suffer from poorer health, have a shorter life expectancy and yet are less able to access care than the majority white population. Despite large amounts of research, and a variety of local and national strategies for change—including the … Delivering Race Equality in Mental Health initiative introduced in 2005—these problems remain.

Research … indicates that only a minority of the Pakistani and Bangladeshi disabled people … interviewed had had any contact with hospitals, physiotherapists, and specialist care”.

The only people who fare well in the report are GPs, who,

“provide a notable exception to this trend, and numerous studies report that GP surgeries provide a key access point to services for BME people … Yet there is … evidence to suggest that … prejudices are alleviated by close contact with medical services. Indeed, western medical paradigms may provide some relief from stress for families burdened by feelings of shame or stigma”,

in some cultures. The report also notes several recommendations for commissioners and providers of health, and, as I said, I hope that the Government will take notice of them.

I should now like to devote a few minutes to allude to the problems faced by black and minority ethnic families with a severely disabled child. Before I do so, I declare an interest as a trustee of the White Top Foundation, which over the years has given tens of millions of pounds to make life better for families with a severely disabled child, and to care for these children. I am pleased to say that this charity continues to carry out this work.

The study I will refer to was funded by the Joseph Rowntree Foundation and was carried out by the University of York and the University of Bradford. It used the same methodology that it had used to study white families with severely disabled children. The findings, which were quite salutary, were as follows:

“Families from ethnic minority groups experience even greater disadvantage and difficulties in caring for a severely disabled child than their white counterparts”.

The study was,

“based on interviews with 600 ethnic minority parents of severely disabled children”,

throughout England, and, as I said, it was carried out jointly by researchers at the two universities. They found that:

“Most families had net incomes below £200 a week. Those experiencing the greatest economic disadvantage were lone parent families—a group that included two out of three Black African/Caribbean families … Levels of employment were low, including three out of four mothers who had no work … Fewer parents were receiving Disability Living Allowance or Invalid Care Allowance compared with white families previously surveyed. Although all the ethnic minority parents interviewed were caring for a child with severe disabilities, they were less likely to have been awarded benefit at the higher rates. Parents who understood English well had much higher levels of benefit take-up than those with a limited understanding. Among one in three Asian parents who said they needed translation help when talking to health and social care professionals, a large minority had not been provided with an interpreter. There was little evidence to support stereotypes—

which often develop among social workers—

“suggesting that ethnic minority families generally benefit from extended family support”.

The study found that,

“Fewer mothers received practical and emotional support from partners than white counterparts … Ethnic minority parents reported that their disabled children had many more unmet needs than white families in the earlier survey. Half identified seven or more areas where they needed more support than currently provided. This included help with their child’s learning, communication and physical abilities, access to leisure opportunities and learning about culture and religion”.

As Professor Waqar Ahmad, who was co-author of the report, said:

“We know from the previous national survey that financial difficulties, unmet needs and inadequate support networks are common problems among families who care for severely disabled children.

But this research reveals that there is an added depth and intensity to the problems faced by ethnic minority families which policy makers must take on board as a matter of urgency. Poor communication with professional care services, lack of recognition of parents’ needs, as well as lack of support and high levels of economic disadvantage, have left too many of these families living ‘on the edge’”.

My question to the Minister is: will the Government’s disability strategy include implementation plans involving all the various government departments, and how will the implementation be monitored?

As noble Baronesses speaking in this debate outnumber noble Lords by three to one, I dare say that women in all communities are more likely to be carers of disabled children. However, for BME women, the experience of social isolation is disproportionately high. Reducing social isolation can be achieved through greater community involvement in the design, commissioning and delivery of services. What steps will the Government take to enable greater community involvement, particularly of BME groups, in the co-design, commissioning and delivery of services?