Health: Brittle Bone Society

Lord McAvoy Excerpts

Monday 6th June 2011 Lords Chamber

Asked By

[Lord McAvoy]

To ask Her Majesty’s Government how they are supporting the Brittle Bone Society.

[The Parliamentary Under-Secretary of State, Department of Health (Earl Howe)]

My Lords, we welcome the important work of the Brittle Bone Society in raising awareness of this distressing condition and in providing advice and help to patients. We would be pleased to consider any request from the society for support.

[Lord McAvoy]

I am grateful to the Minister for that reply. As he is aware, the society works in the field of osteogenesis imperfecta, which is not to be confused with osteoporosis. I know the Minister is also aware that a particular problem in this field is the transition from childhood to adulthood and that there is definitely a doubt about the level of services. Will the Minister consider a request from me to receive a delegation, led by me and accompanied by the chief executive of the Brittle Bone Society, Mrs Patricia Osborne—who used to work for me in a former life—trustee John Phillips and Professor Nick Bishop, in order that the society can have an input into the development and allocation of services for that period from childhood to adulthood for those who suffer from this condition?

[Earl Howe]

My Lords, I should be more than happy to see the noble Lord and representatives of the Brittle Bone Society to discuss those matters. I am well aware of the issue he raises. I understand that when an application was made to designate specialised services for children with brittle bone disease as a national specialised service, no similar case was made for adult services. However, if the society or leading clinicians in this field now feel that an application should be made, we would be pleased to refer it to the Advisory Group for National Specialised Services against the normal criteria.