Hospices: Funding
Lord Balfe Excerpts(1 month ago)
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Lord Balfe (Con)
My Lords, I echo yet again the thanks to the noble Lord, Lord Farmer, for initiating the debate and for the very thoughtful speech with which he introduced it. I declare an interest as the joint chair of the All-Party Group on Together for Short Lives, which is a charity devoted particularly to babies that are born with what are seen as incurable diseases. If a baby is born in that situation, it is a great shock to the parents because they are not generally expecting it, and when the baby is born there is a huge traumatic effect. We are to have a debate on assisted dying, but we have noticed that for little babies there is already assisted dying, because the consultants can ask for medicines to be withdrawn. From time to time, there are very sad court cases where hospitals go to court to get permission to withdraw medicine against the wishes of the parents. I would like that to be looked at more thoroughly in terms of whether we have even yet got it right. We got some minor changes under the last Government together with my friend and colleague, the noble Baroness, Lady Finlay, but there is still a lot to be done in this area.
In so far as the funding of hospices goes, I would like the Government to look at the system outlined in Wales and see whether we can get some sort of agreement on a system and a way of going forward in this country. The fact of the matter is that the charitable raising of funds for hospices is a popular way of raising money—we have one in our area that is well subscribed to—because people like giving, but we must not let everything rest on charity. The points made by my noble friend Lord Farmer about dignity, including intrinsic dignity, and ethics were extremely important; I hope that they will be borne in mind.
Finally, I ask the Government to have a look at the way in which integrated care boards disburse their funding because the variety in disbursement is greater than should be acceptable, even in a partially devolved system.
NHS Continuing Healthcare
Lord Balfe Excerpts(2 months, 3 weeks ago)
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Baroness Merron (Lab)
I do understand the concerns raised by the noble Lord and agree that we need to take a close look at all these areas. I have already raised that with officials and with Minister Kinnock, who is the responsible Minister in this area. On the second question, there is indeed a relatively low conversion rate, and I understand that the decision was originally made to ensure that everyone who might be eligible is actually assessed. The assessment acts as a gateway to other NHS-funded care but, having looked at it, this could perhaps be made somewhat clearer. On the first question, the noble Lord will understand that I cannot give a definitive answer, and he will be aware that legislation does not limit the number of hours or the cost of nursing care that a local authority may provide. However, the Care Act 2014 sets out that local authorities can provide nursing care only in very limited circumstances—for example, where it is a minor part of overall care, such as basic wound care.
Lord Balfe (Con)
What action are the Government taking to hold integrated care boards to account to ensure that the National Framework for Children and Young Persons’ Continuing Care is implemented equitably and consistently across all local areas? I declare my interest as the joint chair of the all-party group for children with short lives.
Baroness Merron (Lab)
It is crucial that we provide the right support to children and young people. NHS England’s regional teams are working with local systems to explore the delivery of continuing care to that younger group. It is important to say to your Lordships’ House that we do not currently collect data on, for example, children and young people, but we will be doing so from April next year. That will help us capture evidence, which will enable us to improve things in the way the noble Lord and his all-party group want to do. We continue to welcome views from stakeholders and partners in this regard.