(4 days, 11 hours ago)
Commons ChamberI thank the hon. Member for her contribution, and I agree that community groups such as the one around the Yealm are vital in caring for people with dementia.
Devon as a whole is falling worryingly behind. As of March 2025, our county’s dementia diagnosis rate stands well below the national average, placing Devon 39th out of 42 NHS systems in England. At the same time, demand for services is increasing sharply. Referrals to the Devon memory service have surged by 94% of the past five years, yet no additional investment has been made to meet this rising need. In Torbay the pressure is especially acute, with some individuals now waiting up to 20 weeks for an assessment.
A diagnosis can change lives. It provides clarity, access to support and the opportunity to plan for the future. It has proven to help people live well with dementia, but without investment people are being locked out of vital services, including support groups. One local dementia charity told me:
“Until there is a formal diagnosis, patients and their families cannot access our Memory Cafes, as our funding requires a confirmed diagnosis to provide support.”
I know from family members that this kind of support can make a world of difference, giving carers contact with others who truly understand the pressures and strain of caring for a much-loved relative who is slowly but surely losing themselves to this awful condition.
The hon. Member speaks about community groups and their importance. In recent months I have had the pleasure of joining and supporting lots of dementia support groups, including South East London Mind’s young onset dementia activists group, Beckenham dementia café, and Beckenham and Penge dementia café, and Angela from Bromley Dementia Friendly Community. Will she join me in acknowledging the incredible acts of kindness that such groups do every single day, so often motivated by their personal experiences of dementia?
I absolutely commend all those groups—the hon. Member is lucky to have so many in his constituency.
Like many other diagnoses that can be equally shocking to receive, dementia has no cure. Approved medications offer limited benefit only in the early stages and not for everyone. For those in the moderate to late stages, the most effective treatments are access to information to navigate the social care system and good-quality care. That means personalised, respectful and consistent support not only for the individual but for their family too, and that family support is critical. Across Devon and beyond, unpaid carers bear the overwhelming weight of responsibility. There is a physical, financial and emotional toll from the moment of diagnosis, yet respite support is sparse and, in many places, non-existent.
(4 months, 3 weeks ago)
Commons ChamberI thank the hon. Member for Wimbledon (Mr Kohler) for securing today’s debate.
I am incredibly proud of many things in Beckenham and Penge, but particularly St Christopher’s hospice. It was founded in 1967 by Dame Cicely Saunders, the founder of the global hospice movement. The movement came about because Dame Cicely, a nurse who was researching pain control, believed that more could be done to help people at the end of their life. That included dealing with physical symptoms and tackling the stigma around painkillers, but also the idea that people should be able to achieve emotional closure through individualised care and support.
The assisted dying debate has been mentioned today by Members from across the House. I had over 2,000 constituents contact me about that debate, and there was roughly a 50:50 split between those who supported and opposed the Bill, but every single one of them was united by compassion, and they relayed their experiences of seeing people at the end of their life.
I pay tribute this evening to a woman I was incredibly fortunate to work for in this place, Dame Tessa Jowell. Tessa was a very good friend, a mentor and an amazing boss. Six years ago next week, she made her final speech in Parliament. Tessa was diagnosed with a terminal brain tumour. I was with her from her diagnosis through to writing the press release on the night she died. She finished her speech in the other place by saying:
“In the end, what gives a life meaning is not only how it is lived, but how it draws to a close.”—[Official Report, House of Lords, 25 January 2018; Vol. 788, c. 1170.]
I sincerely believe that.
St Christopher’s hospice gives meaning to life as it draws to a close. It does so by taking a holistic approach; it cares for a patient’s physical, spiritual and psychological wellbeing. I have seen at first hand the intimate bonds and relationships established between staff, volunteers, patients and families. The hospice is one of the largest providers of palliative care education in the world. For all those reasons, we in Beckenham and Penge all support St Christopher’s hospice, which is a huge part of our community. I was fundraising for the hospice long before I became an MP, and I continue to do so.
People help in lots of different ways, and I want to give a special mention to Penge Fest, which is south-east London’s answer to Oktoberfest. Local businesses such as Brewery, the Three Hounds and Designer Drapes, organisations including Friends of Cator Park and Penge business improvement district, and many more came together with local residents for a day of fun and fundraising that included an oompah band. The event brought Penge high street to a standstill last summer. We will continue to fundraise for St Christopher’s hospice, but we should not have to do so to pay for the basics. Supporting our hospices benefits everyone, from the NHS to patients, and that is why I welcome the Government’s announcement, just before Christmas, of an extra £100 million in hospice funding through the extension of children’s hospice grants. That will ease the strain on hospices and benefit patients, as well as the wider health and care systems.
However, hospices still face pressures, including increased demand for services, the rising cost of provision and discrepancies in funding across the country, which many Members have mentioned this evening. That is why, as the Minister recognises, hospices must be a key part of the Government’s plan to shift care into the community, including through the provision of at-home care services. That can ease the acute pressures on the NHS. I invite the Minister to visit St Christopher’s to see its fantastic work for himself, and to discuss the role of hospices in the Government’s commitment to ensuring that every person has access to high-quality end of life care.
I thank the hon. Member for Wimbledon again for securing today’s debate, and the Government for the vital work that they are undertaking on this important issue.