Rare Cancers Bill

Lauren Sullivan Excerpts

2nd reading
Friday 14th March 2025 Commons Chamber

[Dr Lauren Sullivan (Gravesham) (Lab)]

I am here today to support the Rare Cancers Bill, a vital piece of legislation introduced by our hon. Friend the Member for Edinburgh South West (Dr Arthur). I begin by paying tribute to his father-in-law and all those who have shared their stories here today.

My hon. Friend’s story, like so many, is a stark reminder of how aggressive and under-researched cancers can be, leaving patients with little or no hope. It is assumed that rare cancers, as has been mentioned today, affect a low number of people, but that is not the case. Cancer Research UK says that rare and less common cancers account for 47% of all UK cancer diagnoses and 55% of all cancer-related deaths. Some 82% of rare cancer patients are never even consulted about joining a clinical trial. That means that while each individual rare cancer may affect relatively few people, together they make up almost half of cancer cases, yet the funding and research remain disproportionately low.

I will briefly mention Charlie Shrager, one of my constituents in Gravesham. Like so many, she is fighting cholangiocarcinoma, or bile duct cancer. It is a supposedly rare but devastating form of liver cancer, and there is rising incidence. In 2001, 2.9 out of 100,000 people were diagnosed with it. In 2018, it was 4.6. Some 79% of these patients are diagnosed at stage 3 or stage 4, meaning that their likelihood of survival is limited. Histotripsy is a non-invasive treatment that uses sonic beam therapy. It is incredible. The problem is that we do not have a machine in the UK. They cost £10 million, and let us get one here, because for people facing this disease or pancreatic cancer, it is a lifesaver, and they desperately need it. As Charlie put it:

“I was lucky enough to afford treatment abroad, but I know many who aren’t. They don’t have that option. Why should their chances depend on their bank balance?”

We must recognise that “rare” does not mean “insignificant”. People across the UK are battling cancers that remain underfunded, under-researched and underserved by clinical trials, which is criminal. It is a pattern that is repeated again and again with bile duct cancer, glioblastoma, leiomyosarcoma—a rare soft tissue cancer that demands personalised medicine—pancreatic cancer and blood cancers. Each of these cancers devastates lives. We have discussed what the Bill can do: appoint a national specialty lead for rare cancers, review and improve the UK’s orphan drug regulations, and improve data sharing.

As a research scientist in biochemistry, I worked on neglected infectious diseases and came across the Drugs for Neglected Diseases initiative. It was launched 25 years ago to co-ordinate research outcomes, negotiate with big pharma and test drugs that have been developed for other neglected diseases, and it is now eliminating diseases across the globe. It can be done—we have the blueprint—so I urge the Minister to reach out to that initiative to see what we can learn and implement here.

For too long, rare and neglected cancers have meant a rare chance of survival, and that must change. Given the strength of feeling among everybody here, there is the will to bring about change. I look forward to seeing the Bill go forward, and to seeing that people are not left behind and that we find a cure for everybody.

Oral Answers to Questions

Lauren Sullivan Excerpts

Tuesday 19th November 2024 Commons Chamber

[Wes Streeting]

This Government are prepared for winter and we are already standing up the operational response to winter pressures. On funding, the right hon. Gentleman was in government just before the general election. Is he saying that his Government did not provide enough funding for the NHS this winter? If not, why not? If he does accept that it is enough money, he will surely welcome the extra investment that the Chancellor is putting into the NHS from next year.

[Dr Lauren Sullivan (Gravesham) (Lab)]

T2. What steps are Ministers taking to address the ongoing shortages of medications for attention deficit hyperactivity disorder, which have been going on for 18 months?

[The Minister for Secondary Care (Karin Smyth)]

The Department has been working with suppliers of medicines used to treat ADHD to seek commitments from them to address the issues, expedite deliveries and boost supplies. We are working with NHS England to approve the modelling for industry and communications regarding ADHD medicine supply issues. We will continue to engage with industry to address the remaining issues as quickly as possible.

Mental Health Support

Lauren Sullivan Excerpts

Thursday 10th October 2024 Westminster Hall

[Dr Lauren Sullivan (Gravesham) (Lab)]

It is a pleasure to serve under your chairmanship, Mr Dowd. I thank my hon. Friend the Member for Ashford (Sojan Joseph) for securing this afternoon’s important debate.

As we know, one in four of us will deal with a mental health issue at some point in our lives. As is the case across the country, following the decade of under-investment that has just been referred to, my constituents in Gravesham are concerned about the difficulty of accessing the right support in good time, without waiting on waiting lists for years. We can all agree that mental health is just as important as physical health, and that the strain on the NHS at this moment in time is enormous. The system is very close to breaking point.

If the system is close to breaking, so are our young people. The lack of open access to universal provision was, I think, touched upon by the hon. Member for Hinckley and Bosworth (Dr Evans). It is about having a safe place to discuss mental wellbeing so that we prevent those people then needing further additional help.

In Gravesham, we are fortunate to have the Elliott Holmes Memorial Fund, a community interest company that aims to give direct access for counselling to young people in Gravesham. At the moment, there are no people on the waiting list, because they are being seen by dedicated counsellors. Based on national statistics, 1,200 young people in Gravesham between the ages of 13 and 19 are struggling with their mental health, but the fund has helped 271 young people since 2022.

I would like to place on the record my thanks to the fund for providing a space for young people’s issues to be heard. The fund was set up in memory of Elliott Holmes, who tragically took his own life in 2020 after suffering from mental illness for a number of years. After his passing, his family set up the fund to try to keep other young people from that path. I would like to thank them for that.

I know that this Government are committed to addressing the mental health crisis that we are facing, and I am pleased to see that the King’s Speech included specific mention of legislation, in the form of a mental health Bill. In particular, I would be pleased to hear what further things we can do to prevent this deepening, worsening crisis.