Childhood Cancer Outcomes

Laura Trott Excerpts

Tuesday 26th April 2022 Commons Chamber

[Laura Trott (Sevenoaks) (Con)]

I thank my hon. Friend the Member for Gosport (Dame Caroline Dinenage) and congratulate her on securing this important debate. The courage and bravery of the children and their families about whom we have been hearing is deeply moving, and should on its own be enough to galvanise some change.

I want to use my speech to reflect on my very brave constituent Alice Wakeling. Unfortunately I never got to meet Alice, but I am honoured to say that her mother, Sara, has joined us today in the gallery. Having worked with Sara since becoming an MP in 2019, I have been truly inspired by her dedication, her resolve and her love, and I hope to do both her and her amazing daughter justice this afternoon in telling their story in the time that is available to me.

Alice was a healthy three-year-old when she began to develop a small lump on her neck. After eight weeks of diagnoses and tests, the family finally heard the news that anyone would dread. The lump, which had continued to grow and was now putting pressure on Alice’s airways, was a stage 4 fusion-positive alveolar rhabdomyosarcoma. We heard about that condition earlier today, when we heard about Sophie.

Rhabdomyosarcoma is a rare soft tissue sarcoma. It grows in the voluntary muscles of the body, such as the muscles that we use to move our arms or legs. In Alice’s case, the primary tumour was attached to a gland in her neck, and there was a small tumour in her lung. She was given a 50:50 chance of survival over five years. Let me remind you, Mr Deputy Speaker, that she was just three years old.

After 20 months of intensive chemotherapy at Great Ormond Street Hospital, Alice proudly rang the bell at the end of her treatment, but 15 months later the cancer came back. At the age of four, Alice saw her odds of survival drop to just 8%. Great Ormond Street suggested a procedure in Amsterdam known as AMORE. The treatment was incredibly gruelling for poor Alice, but she got through it, and once again she rang the bell. A few months later, however, the news that they had all dreaded: the cancer was back again. After an ultrasound, the doctors found a large mass in her abdomen, with similar masses forming around her bladder and pelvis. They said that there was nothing they could do, and I think that Alice had just had enough. In August 2019 she was taken home, under the care of the out-patient palliative team at Great Ormond Street, where she died peacefully two months later. She was seven years old.

Throughout her illness, Alice’s parents, Sara and David, became part of a worldwide network of medical professionals to help children undergoing cancer treatments. They now run Alice’s Arc, an amazing children’s charity for those suffering with cancer, and they campaign for more and new curative treatment options for children at relapse. We have heard today about the need for greater funding, for more training for GPs and more money for research. I think that all those things can and will be possible, and will be a fitting tribute to Alice and all the other children we have heard about today.