New Dementia Treatments

Karin Smyth Excerpts

Thursday 11th January 2024 Westminster Hall

[Karin Smyth (Bristol South) (Lab)]

It is a pleasure to serve under your chairship this afternoon, Mr Sharma. I thank the Backbench Business Committee for granting this debate. I pay tribute to work of the right hon. Member for Ashford (Damian Green) and my hon. Friend the Member for Oldham East and Saddleworth (Debbie Abrahams). They are formidable chairs of their respective APPGs on adult social care and on dementia. I know that the Minister has great respect for them, as we all do; they do fantastic work. Sharing the experiences of supporting family members was very apparent in this debate, and my hon. Friend’s image of holding her mother and feeling the ravages of the disease was incredibly well put. We have heard very moving statements this afternoon.

We are holding this debate at a crucial time for our country. We are a world leader—sometimes we overuse that term—in life sciences research that offers people living with dementia the prospect of new treatments as a lifeline. Finding a cure is where we all want to get to. The new treatments provide real hope and opportunity, but how do we get there? We have touched on that. New treatments and research help, but the workforce is where we will make a big difference. That is why we have committed to recovering clinical trial activity in the UK and delivering on the NHS long-term workforce plan.

We want to make sure it is easier to conduct lifesaving research in the UK for conditions such as dementia by implementing a more efficient set-up process so that people can sign up to participate in trials more easily, but that has to be supported by ensuring our NHS has the staff it needs to enable more clinical trials. Without the workforce to deliver new treatments, those living with dementia and their families will continue to face delays and we will not be able to access the benefits of early diagnosis. That is why I am pleased that the Government have finally accepted the need for a long-term workforce plan in the NHS.

As my hon. Friend the Member for Oldham East and Saddleworth said, it is disappointing that the Government shelved the plans for a dedicated dementia strategy. England remains the only nation without a specific dementia plan. That is very short-term thinking, and it would be interesting to hear from the Minister about that. In 2022, I said:

“We cannot give confidence to people suffering with dementia and their carers without a much clearer plan that is in place very quickly.”—[Official Report, 14 June 2022; Vol. 716, c. 141.]

That remains the case today.

Although we currently have no treatments to slow or cure dementia, as we have heard, there is hope on the horizon after the recent breakthroughs with drugs that target the underlying causes of Alzheimer’s disease, which are a hugely welcome step towards combating it. We need to ensure that our health service is ready and able to deliver the new treatments and technologies when they become available. The treatments, if approved, will depend on early diagnosis, which can be determined only by a PET scan or a CSF test. As the right hon. Member for Ashford said, the health service was not set up in 1948 to cope with dementia and similar diseases, so we need a 21st century service that can. It would be helpful to hear what plans the Minister has to ensure that the NHS is ready to deliver the new treatments. Has she had any discussions with NHS England about delivery ahead of the potential MHRA decision this year on the drugs currently under consideration?

There are too many people living with undiagnosed dementia. Part of the problem is the lack of scanning capacity for accurate diagnosis of dementia sub-types. We have one of the lowest per capita ratios of diagnostic scanners in the OECD, behind Russia, Slovakia and Chile. What steps are the Government taking to increase that diagnostic infrastructure? We have put forward a clear and costed plan to double the number of scanners, and, as with many of our other policies, the Minister is welcome to borrow it.

In a response to a written question last month, the Minister restated the commitment to double funding for dementia research, but I would welcome an update on whether that is on track for delivery this year. Further research continues to be vital to ensure that people living with dementia receive an early and accurate diagnosis. We have heard today about emerging techniques and new technologies, but we have to be able to access them.

It is estimated that more than 1 million people aged 25 to 49 are out of work due to caring responsibilities, so we need to alleviate the challenges and economic strain as a result of those caring for people living with dementia. It is not good for them, their families or, indeed, our economy. New treatments bring hope, but to benefit from them, we need a Government with the competence and foresight to seize the opportunity. Transforming dementia diagnosis and care is vital to improve the lives of those living with dementia and those who care for them. The bulk of the cost of dementia falls not on the NHS, but on unpaid carers and the care system, as hon. Members have said so eloquently today.

After 14 years, Mr Sharma, you would expect me to say that the Conservative party is not capable of making the NHS fit for the 21st century, let alone making the most of the new opportunities that our life science sector present for people. We want to make the NHS fit for the future, so that we are able to benefit from the exciting new treatments being developed and that all those with dementia and their families can be confident that they will receive the support they deserve.