Hospices (Children and Young People)

Debate between Karen Lumley and Stuart Andrew

Wednesday 18th December 2013 Westminster Hall

[Stuart Andrew]

The hon. Gentleman is absolutely right. Those umbrella organisations help to share best practice, and it is through them that the hospice movement has grown so significantly. The movement is something that we can be proud of worldwide: we now have visitors from all over the world coming to our hospices to see how it is done—and, frankly, it is done brilliantly.

As I was saying, the national picture is much bigger. There are some 49,000 children and young people in the UK living with a life-limiting or life-threatening illness that means that they need palliative care. There are some wonderful and committed professionals providing that care in some inspirational places—not just in hospices, but in the family home, in hospitals and in community settings. Families with children with life-limiting illnesses are some of the people most in need in the UK, but many are still not getting the help and support that they require. Although services offer a day-to-day lifeline to families, many of the challenges that they face can be addressed only by changes to policy, both nationally and locally.

In November, I was proud to co-host a reception in Parliament for Together for Short Lives, the UK charity that supports all children with life-limiting illnesses. At that event, the charity launched its policy priorities for the next Parliament. During the reception, the audience heard from Lucy Watts, who is 20 years old. Lucy described the impact that her condition has on her life, the care that she receives and the needs of young people like her. She became ill at 14, and was diagnosed just after her 15th birthday. Lucy is fed straight into her bloodstream, via a central line, and can sit up only for up to five hours a day. She is wheelchair-bound, but has to spend the majority of her time in bed. Speaking about the gap in services for young people with palliative care needs, she said that

“what has been forgotten is that in between children’s and adults, there are the young adults. We deserve the same recognition and distinction as children’s and adult services, but it’s barely recognised. There is the transition period, but young adult care goes beyond transitioning from children’s services to adult services. As a result, the transition can be a huge leap, too many changes too soon without factoring in the needs of people who are not children, but not mature adults yet either.”

That is a powerful quote from that young lady.

Making sure that the right children’s palliative care services are available, in the right place, at the right time, is crucial. Those services should cover the whole spectrum of care, including short breaks for children and families. Commissioned and delivered effectively, children’s palliative care can play a cost-effective role in supporting early discharge for children from acute care settings through step-down care. It can also help to reduce unplanned admissions among children to acute care settings. A Government-commissioned funding review has highlighted that hospital admissions in the last year of life for children who need palliative care can cost an estimated £18.2 million. That far outweighs the cost of providing palliative care to children outside the hospital setting.

Research has also shown that short breaks provided by children’s hospices, which often include health care interventions, help to reduce stress on families and demand on public services. Children’s palliative care services, including children’s hospices, must be funded fairly and sustainably. Families need to know that their local services will continue to be able to provide the care that they need—an issue that was reflected in the 2010 coalition agreement.

I pay tribute to my field within the hospice movement: the wonderful fundraisers, who raise millions and millions of pounds for hospices. My job as head of fundraising was made much easier by the dedication of many volunteers and supporters. We had to raise over £4 million a year to run the hospice, and somehow—I do not know how—those volunteers managed to do that year in, year out.

[Karen Lumley (Redditch) (Con)]

I am grateful to be able to contribute to this debate. My hon. Friend the Member for Worcester (Mr Walker) mentioned Acorns, the hospice that serves our community. Does my hon. Friend the Member for Pudsey (Stuart Andrew) agree that volunteers do an amazing job, and that the NHS could learn a great deal from how we run our hospices?

[Stuart Andrew]

That is a very valid point. Hospices do inspiring and innovative work.

High Speed 2

Debate between Karen Lumley and Stuart Andrew

Thursday 13th October 2011 Commons Chamber

[Stuart Andrew (Pudsey) (Con)]

Given the time constraints, I do not know about high-speed rail, but this will be a high-speed speech. I congratulate my hon. Friend the Member for South Northamptonshire (Andrea Leadsom) on initiating the debate. We have had numerous debates on this issue. Although we do not agree, we always end up with a smile at the end. I suppose that there is a danger of repeating what other hon. Members have said, so I will try to keep my speech as brief as possible, but I want to give a Yorkshire perspective, as hon. Members from many regions around the country have spoken.

I am 100% in favour of High Speed 2. Not only is it needed, but it is inevitable and crucial if we are to be ready to compete in the future. Furthermore, if we do not face the realities of our transport infrastructure now, we will simply grind to a halt. We need to think about where we are now. It is worth reflecting that the railway industry’s success has been unprecedented in recent years, with a doubling of passenger numbers, as has been mentioned. Pressure on the west coast main line is so severe that it is expected to be restricted at the very latest by 2025, despite huge upgrades already having taken place in recent years.

There are two routes to the north, not just one, and the problem at Leeds is equally bad. The capacity pressure at Leeds station is predicted to increase by another 40% in the coming years. Obviously, I travel from London to Leeds every week, and I am lucky if I find a seat between here and Peterborough in rush times. I have not got the luxury of switching on my laptop, because I have nowhere to sit.

I hear from those who oppose the scheme that the money could be spent on other things. Frankly, we have to take those measures anyway. That is why the Government have announced a raft of measures, including the lengthening of trains and extra carriages, to help us build up the capacity that we need. Frankly, just to do that alone would be like trying to fix a broken leg with a sticking plaster. This is not an either/or. As the hon. Member for Wimbledon (Stephen Hammond) said, we have to do both.

The west coast main line took years to be upgraded, causing massive disruption, and is already creaking at the seams. The problem is much bigger and requires us to think bigger and prepare for the future. We have heard lots about business. I was delighted when I heard the Government go for the Y route, which recognises that the north is an important part of our economic prosperity, and not to do so would stifle the prospect of growth.

[Karen Lumley]

Does my hon. Friend agree that HS2 will bring many more jobs to the midlands, because it will relieve air congestion in London and make Birmingham international, which is under capacity at the moment and an amazing airport to travel from, accessible for a lot more people to use?

[Stuart Andrew]

Absolutely. The benefits for the whole country are evident. The north-south divide is a problem that has faced successive Governments. Clearly, we are not arguing that HS2 will solve that alone—of course, it will not—but greater connectivity between our cities, such as Birmingham, Leeds and Manchester, to the rest of Europe can only help.

I want businesses in my constituency to enjoy having access to markets across Europe and the rest of the world. Transport links are crucial to making that happen. Too often, today’s network cannot cope. I recently went to Airedale International in my constituency. It is a high-tech industry that has just created a training centre. It is begging for high-speed rail, because it has a lot of business down here, but it has the skills up in the north. Why cannot we help it to expand to have both?

We often hear that High Speed 2 is a white elephant, but studies have shown that it will bring about £44 billion of economic benefit and 40,000 jobs, which is not to be sniffed at. I did not see that white elephant when the Thameslink benefit-cost ratio came in at 2.2:1, or when Crossrail came in at 1.92:1.