Appropriate ME Treatment

Justine Greening Excerpts

Thursday 24th January 2019 Commons Chamber

[Sir David Amess (Southend West) (Con)]

I congratulate the hon. Member for Glasgow North West (Carol Monaghan), along with the hon. Member for Ceredigion (Ben Lake) and my right hon. Friend the Member for Loughborough (Nicky Morgan), on initiating this debate. I first heard ME being mentioned in the Chamber in the 1980s by, I think, the late Richard Holt on these Benches and Jimmy Hood on the Labour Benches. I could not pronounce the long title of the condition, but they could. As the hon. Member for Glasgow North West has said, it is disappointing that not much progress has been made, all these years later.

Like so many other Members, I am here today to speak on behalf of constituents with ME who want their voices to be heard. I am thinking of last week’s Westminster Hall debate on fibromyalgia, which is another of those problems that is not spoken about much. ME is also an invisible illness, and many people suffer in silence, so I will be using this opportunity to speak on behalf of my 500 constituents in Southend West who suffer from the illness. I would like to share with the House the words of one of them, Isabel Butler, whose moving story tells of the devastating impact of the condition, and the desperate need for the Government to take action. She says:

“I was a trainee teacher and raising my young son, having just graduated with a first class honours degree when I was struck down suddenly with this horrific illness in 2003. I battled on in pain, and despite repeated visits to my GP was simply fobbed off with antidepressants. I was not depressed, I wanted to do things but for every exertion I was overcome with pain that left me bedbound for days. Despite my best efforts and determination, I was too unwell to continue my job and pursue the career I had also dreamt of. The worst of it is, I went undiagnosed for seven long years. People don’t believe you when you tell them that you are ill, so you keep quiet, even when I had been admitted to hospital, as medics can often turn on you in contempt at the mention of ME.”

[Justine Greening (Putney) (Con)]

My hon. Friend is setting out a shocking case, and I am sure that we will hear many others like it today. The key to this has to be research, so that we can start to understand this terrible disease and then be able to build proper treatments that actually have a chance of working.

[Sir David Amess]

I am taken by the fact that we have two former Secretaries of State sitting together—my right hon. Friend the Member for Putney (Justine Greening) and my right hon. Friend the Member for Loughborough —and I certainly listen well to their advice. I absolutely agree with what my right hon. Friend says.

My constituent goes on to say:

“I do not understand why we are not being believed. I had a promising life, two beautiful boys and a career I loved. I didn’t choose to be this ill with no hope of any treatment, compassion or cure.”

The overwhelming experience of sufferers is a struggle to be believed. There is a lack of understanding among the public, policy makers and, most worrying of all, the medical profession.

NHS Long-term Plan

Justine Greening Excerpts

Monday 7th January 2019 Commons Chamber

[Matt Hancock]

We very much agree with the thrust and purpose of the hon. Gentleman’s remarks. In fact, paragraph 3.56 sets out how we are learning from what has happened in Liverpool and elsewhere in the country to make sure that we get early diagnosis right because, as he says, early diagnosis is absolutely critical. I will take away his specific points, but the whole thrust of the plan with regards to cancer is about increasing early diagnosis.

[Justine Greening (Putney) (Con)]

In a local community survey that I am doing right now, mental health is particularly flagged up by people as a priority for them, as well, so I very much welcome the Secretary of State’s continued focus on that in this 10-year plan. I also very much welcome the fact that as part of the work with the Department for Education, the trailblazer area in south-west London will enable us to really see some of the more joined-up working that he talked about. Will he set out what the additional services available for young people up to the age of 25 will mean practically? I represent a very young constituency, and that will be a key change that could benefit us.

[Matt Hancock]

At the moment, as somebody transitions from children’s mental health services to adult mental health services, there is often a gap in provision as they register for the adult services. The purpose of having the new care plans up to the age of 25—similar to those, for instance, for care leavers that we have brought in in other legislation—is to make sure that there is a seamless transition from children’s mental health services to adult mental health services and not a gap that many, many people fall through.

Prevention of Ill Health: Government Vision

Justine Greening Excerpts

Monday 5th November 2018 Commons Chamber

[Matt Hancock]

I am grateful for that. We put significant resources into the NHS last Monday. The hon. Gentleman makes an important point about the use of data. Instead of just targeting the average, it is about making sure that we get the public health messages to the people who really need to hear them. There is an argument that just broadly targeting public health messages actually exacerbates health inequalities, because people who are likely to listen to the messages tend to be people who are more likely to take responsibility for their own health in the first place. We need to be much more targeted and work is under way to make that happen.

[Justine Greening (Putney) (Con)]

I very much welcome the Secretary of State’s statement today. It is not only the right thing to do, but the smart thing to do for the NHS, and also a healthy economy needs healthy people. Communities such as my own have very many young people, who are often renting, do not necessarily stay very long and therefore do not register with a GP. Will he take that into account when he is looking at where investment in primary care flows to in the detailed strategy?

[Matt Hancock]

My right hon. Friend makes an incredibly important point. The way that money for primary care is allocated is being looked at right now, taking that and other things into account.

Organ Donation (Deemed Consent) Bill

Justine Greening Excerpts

3rd reading: House of Commons & Report stage: House of Commons
Friday 26th October 2018 Commons Chamber

[Dan Jarvis (Barnsley Central) (Lab)]

I beg to move, That the Bill be now read the Third time.

It has been an immense privilege to be a part of the campaign that has brought the Bill to its Third Reading today. I want to pay particular tribute to my hon. Friend the Member for Coventry North West (Mr Robinson), who has provided real leadership throughout the promotion of the Bill. He and I have sat through many meetings and many committees together. It has been his focus and his determination that has led us to this point where we have today an opportunity to do something very worthwhile. I know I speak for the whole House when I wish him a very speedy recovery from his recent operation.

I want to take this opportunity to pay tribute to other hon. Members who have provided outstanding support: my hon. Friends the Members for Newport West (Paul Flynn) and for Sunderland Central (Julie Elliott), my right hon. Friend the Member for Don Valley (Caroline Flint) and the hon. Member for North Devon (Peter Heaton-Jones), as well as the many other hon. Members, too numerous to mention, right across the House who have worked collectively to get us to this point today. I also want to pay tribute to Trinity Mirror. Its contribution to this campaign has been very significant and I am grateful for everything it has done. In particular, I thank Alison Phillips, Andrew Gregory, Michelle Klepper, Paul Millar and Owen Pritchard for their commitment to this important cause.

In the spirit of paying tribute and giving credit where it is due, I am looking very firmly at the Minister, who has responded in the most sensible, co-operative and constructive way. We have sat in a lot of meetings over many months. She has been an absolute pleasure to work with. The leadership that she has shown has been instrumental in ensuring we have the opportunity to pass this very important Bill today. I thank her and her officials for the important job they have done in getting us to where we are. I am also grateful—and a little relieved—that we can rely on the support of both the Prime Minister and the Leader of the Opposition. I am determined to ensure that we maintain this consensus on Third Reading today and send the Bill safely to the other place.

I want to reflect for a moment on why the Bill is so important. The bottom line is that it will save lives, but it is important to note that of all the people who died in the UK last year, only about 1% died in circumstances that would have made a donation possible, which means that, even though hundreds of thousands of people across the country are registered as potential donors, only a small handful will ever be in a situation that would allow a donation to take place. This is one of the main reasons why today in the UK there are thousands of people waiting for an organ donation and why every year hundreds of people die waiting. This loss of life is devastating, but it is not inevitable. Today we have the most precious of opportunities to save lives and give hope to many. We must not miss that opportunity. Moving to an opt-out system for organ donation, such as the one in Wales, will add thousands of names to the donor register, meaning that once the Bill is passed, hundreds of lives could be saved.

The Bill is not about the state taking control of people’s organs or shaming people into donating. If people want to opt out, that is absolutely fine, and I am entirely respectful of any decision, for whatever reason, so to do. No questions will be asked and there will be no hard feelings. Instead, the Bill is about making it easier for those who might wish to donate to do so. The current system requires people to take the time to discuss this most serious and difficult matter with their loved ones in order to reach a judgment about whether, in the event of some tragedy occurring, they would want their organs to be donated. It is incredibly important that, if people feel able to have that conversation with their loved ones, they do so. Many of us are guilty of not having had them and of putting this important task on hold. I believe that we can no longer afford to ignore this issue, that we must seek to increase the number of people on the donor register and that we must save as many lives as we can, and I believe that the Bill is an important way to do that.

That said, I acknowledge that the Bill is only part of the way to increase the number of people willing and able to donate their organs, so, in concert with the Bill, it is important that we also have an open discussion with our families and in our communities about the importance of making a contribution in this way.

[Justine Greening (Putney) (Con)]

I am very supportive of the Bill. It could be transformative in helping to save lives in our country. Does the hon. Gentleman agree that these conversations should be had in school so that children grow up understanding the role they can play in helping to save people’s lives and so that we encourage young people from an early age to think about becoming organ donors? The power of inertia he is talking about can make a big difference for good.

[Dan Jarvis]

The right hon. Lady makes an important point. None of us who is here to support this Bill believe that it is in its own right a silver bullet that will solve the problem we are encountering; it is not, and therefore it needs to sit alongside some very important conversations on difficult issues. Many of us will potentially feel uncomfortable about having these conversations, but the right hon. Lady is correct: it is important that from the earliest possible opportunity we have these conversations with our loved ones so they are absolutely clear about what we would wish.

That point reinforces that, in addition to the Bill, all of us who believe in the value of organ donation should seek to ensure that as many people as possible come forward to register as organ donors. This Bill serves as another important opportunity to raise the profile of that issue and provides a platform for us to be having these conversations with our loved ones. As leaders within communities, we have a responsibility and an important role to play in seeking to encourage people to have those conversations.

Time is short and I do not intend to detain the House for much longer as I am keen to make progress with the Bill, but I do want to take this opportunity to say a final word of thanks to Max Johnson, to Max’s mother Emma and to the whole Johnson family. Many Members will recall that Max is the 10-year-old who fronted the Daily Mirror campaign on organ donation. He is an exceptional young man. He was kept alive by a tiny metal pump that was in his chest for seven months. I am absolutely delighted that, after finally receiving a heart transplant, Max is doing well. He has been given a chance to live a relatively normal life because of a donation made by a donor, Kiera Ball. I believe that Keira Ball and her family should serve as an inspiration to us all, and I would like to take this opportunity to make a request—I am sure the hon. Member for North Devon (Peter Heaton-Jones) will be happy to do this—that our collective thanks are passed on to the family of Keira Ball for their bravery and dignity and the example they have set. It has been an inspiration to us all, and I want to personally extend my thanks to the hon. Gentleman for the dignified way in which he has represented his constituents over a number of debates in this House.

Quite simply, we are here today to save lives—to save the lives of people like Max, but also of thousands of other people who would benefit from the change this Bill sets out. We have a rare opportunity at our fingertips to make this powerful and meaningful change. I hope very much that we do not miss the opportunity to save lives and that this Bill goes forward; I hope hon. Members will support the Bill.