Carers

Jim Cunningham Excerpts

Thursday 20th June 2013 Commons Chamber

[Paul Burstow (Sutton and Cheam) (LD)]

I beg to move,

That this House has considered the matter of carers.

I start by thanking the Backbench Business Committee for choosing this as the first debate of this parliamentary Session since the re-establishment of that Committee. I very much appreciate the fact that within the space of a few days after the celebration of national carers week, the Backbench Business Committee was able to grant us this time to examine how better to support carers in this country and to recognise the extraordinary contribution that each and every carer makes to their families and our society. I am grateful to my hon. Friend the Member for Banbury (Sir Tony Baldry) and the hon. Member for Worsley and Eccles South (Barbara Keeley) for their support for this application and for the contributions that I look forward to hearing from them later in the debate.

As I said, last week was national carers week. With over 10,000 events up and down the country—I am sure that many hon. Members will have had the opportunity to participate in them in their constituency—this was the biggest carers week so far. Here in Westminster, MPs were invited to a variety of events, including a speed dating event with carers with a wide range of life experiences. I had the opportunity to meet, among others, a woman called Karen whose husband has Parkinson’s. She told me about her experience of being a carer for someone with that particular condition and about the isolation she felt, having taken on that caring role. She conveyed a sense of being increasingly excluded from participating in many aspects of society. I met other carers involved with Marie Curie, who told me how, because of the nature of the diagnosis and the rapid progression of the cancers in question, they experienced additional strains and burdens in trying to get the right support at the right time for their loved ones. The week concluded with a lively carers question time event, in which the Minister and a range of experts participated.

This year’s theme was “Prepared to Care?” It highlighted the fact that people who take on caring roles are often not prepared for the physical and emotional impact of caring, nor for its impact on their lives in other ways, not least financially. In that sense, it is worth stressing that this is not a “them and us” issue. It is easy to think about this as something that is going to happen to other people, whereas the figures clearly show that three out of five of us will be a carer at some point in our lives. It will touch all of us, either through personal experience or through our family’s experiences.

I want to pay particular tribute to the carers I have met over the years in my constituency during my time as a Member of Parliament. I want to thank the Sutton Carers Centre for being a lifeline for thousands of carers—young and old alike. The carers centre in Sutton has been my guide and teacher on carer issues over the past 15 years. Whether through shadowing carers to learn directly from them or meeting carers at the centre, I have found that the things they want—the things they tell me they want—are not impossible or unreasonable. They do not want to feel that everything is a constant battle—a battle to get a diagnosis, a battle to get an assessment, a battle to get support, a battle to get a break, or, indeed, a battle to navigate around the system.

Over the years, I have met and listened to many carers in my constituency and I have met carers for whom the lifeline that keeps them sane and keeps them connected is not the formal social care support, nor even the carer centre. It may be, for instance, the local bowling club, as I learned from one of the carers whom I shadowed. The determination of the club’s members to support a friend was the most important thing in that person’s life. Not enough is made of such informal, often fragile networks of support, although they often represent the vital difference between just surviving and having a life.

There is clear evidence that the caring role takes its toll on people, physically, emotionally and financially. Six out of 10 carers report experiencing depression because of their caring role, and, as I have said, caring can be a lonely business: three out of five carers say that they have experienced difficulties in maintaining relationships with friends. Another problem is the desire of many carers to stay in the workplace so that they can remain connected through their work. More than 3 million are trying to balance their caring responsibilities with paid work, often at the expense of working hours or their career prospects.

Last June I hosted a carers summit with the forum Employers for Carers, led by BT. The aim was to explore opportunities to help carers to remain in the workplace. BT and other members of the forum, such as British Gas, have a good track record in that regard. They invest in their staff and want to retain them, so identifying and supporting carers seems logical to them. The cost to the bottom line of a business of replacing a member of staff can be huge, and one of the purposes of the summit was to enable more employers to see the business case for carer-friendly employment practices. The Government subsequently established a “task and finish” group to consider ways of creating an environment in which people could balance their caring responsibilities with their careers. That work is vital.

According to a recent survey conducted by YouGov for Carers UK, an estimated 2.3 million people have given up work at some point to care for an older or disabled loved one. One in four gave up work or reduced their working hours because the cost of replacement care was too high, and a similar number reported that services were not flexible enough to meet their needs. The impact of being forced to give up work to care for a loved one on an individual’s finances alone is clear, but the London School of Economics has estimated that the hidden cost to the economy—in benefits and lost tax revenues—is a staggering £1.3 billion a year, every year. When lost earnings are taken into account, the figure can rise to as much as £5.3 billion. That is not a cost that the United Kingdom can continue to bear as a consequence of a failure to act and provide the safeguards, supports and systems that would enable carers to remain in employment.

There is an urgent need to us to reframe the debate. We must stop focusing on the burden on the economy, and see caring as an asset and an opportunity. We must begin to view it in the way we view child care support and services. Carers must be entitled to more flexibility at work, although the Government have done much in that regard. Given the scale of demographic change—the over-85s are now the fastest-growing section of the population, and their number is set to double by 2030—and the growing proportion of “sandwich workers” who are attempting to juggle paid work with the demands of caring for both children and older relatives, the provision of flexibility is becoming an imperative. The Government must also think about how the market for low-level support services such as cleaning, shopping, gardening and befriending can be increased and, crucially, brought into the formal labour market.

[Mr Jim Cunningham (Coventry South) (Lab)]

I congratulate the right hon. Gentleman on securing the debate, which is timely given some of the things that have been happening in old people’s homes. Does he agree that there is a case for asking employers to help people who have to care for a family member? Such people are often under stress, and if they have to give up their jobs, their standard of living will fall as well.

[Paul Burstow]

That is a key point, and one that I want to put to the Government very strongly. Carers can only be helped to remain in the work force and balance their working lives with their caring responsibilities if the right substitute care and flexibility are available, and if employers have the right attitudes in the first place.