Support for Carers

Jamie Stone Excerpts

Thursday 22nd July 2021 Westminster Hall

[Jamie Stone (Caithness, Sutherland and Easter Ross) (LD)]

It is a pleasure to serve under your chairmanship today, Mr Hollobone, and I thank my right hon. Friend the Member for Kingston and Surbiton (Ed Davey) for securing this massively important debate. I should declare an interest, because I am a carer, and have been for the past 22 years; however, I do not want to talk about that today.

Although I thought I knew everything there was to know about caring as an individual, I was taken by surprise at a clinic I held when I was a Member of the Scottish Parliament. I was at a clinic in Castletown in Caithness, and a gentleman in his early 60s came to see me. He was a bachelor; he was on a very low pension; and he told me how he was looking after his mother, who was bedridden and incontinent. He told me that he was not going to put her in a home; she had looked after him all his life, and he was now going to look after her. He then broke down in the middle of the clinic, which as a new Member of the Scottish Parliament I found rather disturbing, and told me his tale. The national health service had afforded him an allowance of four adult diapers—nappies—for his mother, per day. Each fortnight, or month—whatever the period was—the requisite number of diapers would be delivered to his household. He then told me that what was awful was that, at the flick of an unknown health mandarin’s pen, this allowance had been decreased to three diapers a day. He said that the reason he broke down was, “I’m not in my first youth—I’m not as young as I was. It’s the bed linen. It’s nighties. I can’t cope with this. I can’t cope. I’m desperate.” I gritted my teeth and said that, “If I do nothing else as a Member of the Scottish Parliament, I’ll sort this for you.”

I was so angry the next day that I went to Heather Macmillan, who runs my constituency office, and said, “Take a letter! Words fail me. I cannot believe it.” She said, “Jamie, go for a walk. I’ll write the letter. I’ve got the gist of the problem.” We got it sorted and he got back up to four diapers a day. One little thing had been destroying his life, and that was an unexpected aspect of caring that I had not foreseen—it was a real curveball. I can only tell this anecdote now because the gentleman concerned is no longer with us—I have kept quiet all these years—and the point of it is that there are things that can impinge on caring that can be entirely unexpected. It is not always about money; it is about a clumsy and thoughtless decision that was, I fancy, taken far away from where this man lived in Caithness.

Another point, to echo what other Members have said, is about young carers. In my constituency, we are very fortunate to have an organisation called Tykes Young Carers, based in Golspie, Sutherland. I have waited a long time to go on the record and commend that organisation here in this place. I take my hat off to it. Having met its representatives over the years, I have learned certain things and I am sure that all Members will be familiar with similar examples. A young carer who returns home from school, perhaps to a remote croft in the highlands, might have to look after a single parent who is alcoholic and feed and look after younger siblings. Then, when they go back to school the next day, they get roasted by the teacher for not having done their homework. That is an oversight on the teacher’s part, but the teacher cannot be blamed for not knowing all the facts about that particular family. That, however, is another unintended occurrence for carers. Over 22 years of looking after my better half—as we say in the highlands—I thought I knew it all, but I did not.

My appeal to the Minister is, as the hon. Member for Blaydon (Liz Twist) has just said, for the Government to take an overall look at this situation. Yes, it is about resources, but it is also about having the radar, being truly three-dimensional and working this way and that way to identify all the things that can go wrong with caring—they need not necessarily be related to money—and make a care giver’s life truly miserable. I go back to my fist anecdote: what was the cost of one adult diaper? It was probably a fraction of a penny—it was not so difficult to provide. However, because of the bureaucracy, and because the unknown mandarin’s pen ticked what it did, that gentleman’s life had been destroyed. I often wonder whether I did any good as a Member of the Scottish Parliament; I like to think that, if I did nothing else, at least I sorted that chap’s life out.

--- Later in debate ---

[Helen Whately]

Of course, there are financial pressures across public services, and more widely across our economy we face an extremely challenging time, but we have given significant extra funding to local authorities to support them through the pandemic. That is why I urge them to prioritise this issue. I emphasise the importance of the carer’s needs assessment that local authorities carry out, because that is such a crucial way of identifying what support a carer may need for themselves and their wellbeing, including the need for respite and taking a break from caring, and then making sure that that happens.

[Jamie Stone]

Further to what the Minister just said, Migdale Hospital in my constituency has in recent times lost a lot of beds. That is a combination of the NHS, and—because healthy policy is devolved—the Scottish Government. Does the Minister agree that that is a real problem? This is not joined-up government. Whatever influence she can bring to bear on the Scottish Government to reverse those decisions, which fly in the face of good government, would be helpful.

[Helen Whately]

The hon. Gentleman has made his point very clearly. He knows that that is a devolved matter, but SNP Members are listening, and I hope that they take up his concern.

Effective support for carers can never be created or offered in isolation, and it is critical to me that the views of carers are central to how my Department develops policy. Just a few weeks ago, Carers Week provided an opportunity to highlight the invaluable contribution of carers and for others to commit to improving their quality of life. I personally made a pledge to work nationally and locally in my constituency to promote caring communities, and I wrote to all MPs urging them to do the same.

I will continue to play my part and will listen to and champion the needs of all carers as our country continues its recovery to a new kind of normality. I have and will continue to meet a wide range of carers’ organisations and to speak to Ministers from across Government to ensure that our regulations, policies and services are fit for purpose and consider the needs of carers. That engagement has included roundtable discussions and regular calls with individual carers charities, including Carers UK, Carers Trust and the Children’s Society, and I will continue to work with colleagues across Government, MPs and local authorities to increase our support for carers.

The Government do not have all the answers. Several hon. Members have spoken today about local organisations and initiatives that support carers. Local carers’ groups play such an important role—by putting carers in touch with others in similar situations, for instance, so that they discover that they are certainly not alone; and by providing practical support, advice and respite. That is from Carers UK and the Carers Trust to any number of local groups; during the debate, I have heard mention of Kingston Carers’ Network, Gateshead Carers, a young carers organisation in Bath, Tykes Young Carers in Sutherland and Sheffield Young Carers. I should mention Crossroads Care Kent, who I met the other day in my capacity as the Member for Faversham and Mid Kent. I heard about the excellent work that it does. Across the country, these voluntary groups, charities and charitable organisations do such an important thing in supporting carers, and I recognise that.

Several hon. Members mentioned social care reform, and they know well that we are committed to bringing forward proposals this year for reform of the adult social care system. As part of those proposals, we are absolutely considering unpaid carers. We want to build a system in which unpaid carers are truly supported and those who receive care have more choice and control over their lives. We are working closely with local and national organisations so that our approach to reform is informed by diverse perspectives, including those with lived experience of the care sector.

On the Health and Care Bill, I want to ensure that the voices of unpaid carers, as well as care home residents and others who receive care and support, are truly heard in integrated care systems. That is why the Bill places new duties on integrated care boards and NHS England to involve carers.

I thank hon. Members for their contributions on this important topic. I know that all those who have spoken share my deep commitment to supporting our unpaid carers and young carers, who have sacrificed and given so much, especially in the past 16 months, and continue to do so. As Minister for Care, I have seen at close hand how challenging and unwelcome the pandemic has been for people caring, as well as those being cared for.

We should all be humbled, inspired and strengthened by everyone who has endured this most stressful of times. I hope that the House will join me in a heartfelt thank you to each and every carer and young carer across the country for all that they are doing to support, protect and care for their loved ones.