Dementia: Covid-19

Imran Ahmad Khan Excerpts

Thursday 12th November 2020 Westminster Hall

[Imran Ahmad Khan (Wakefield) (Con)]

It is a pleasure to serve under your chairmanship, Sir Graham.

The human consequences of this horrific pandemic have been the most painful to bear. As we have heard from all Members here today, we share a common bond forged in the fire of this pandemic. As Members of Parliament who serve our constituents, we are witness to stories of dread suffering caused by the circumstances created by our response to this virus. However, I have found that when constituents have written to me or met me to ask for help and support, and shared the circumstances that define their lives and the lives of their dementia-affected family members, it is then that one’s heart truly bleeds and one struggles to keep strong for them. When one finishes reading their letter or bids them farewell at the door, on considering their cases, one invariably finds one’s cheeks a little wet.

There is no gilding the lily. These have been, and continue to be, bruising, brutal days for all of us in the country. The impact that covid has brought upon dementia care patients and their immediate professional and familial carers is one of immeasurable emotional anguish. In my Wakefield constituency, 1,197 people have been diagnosed with dementia. The representations I have received from their carers and families through this pandemic have highlighted immense suffering above and beyond the explicit death count that the pandemic has brought.

I will raise two important points: the increased vulnerability of dementia patients during the pandemic and the irreplaceable nature of human contact. While we, as legislators, continue to interrogate and evaluate the data presented to us, we can say with certainty that age is a strong determinant in both the development of dementia and serious illness and fatality as a result of covid-19. Those with dementia are often susceptible to further underlying health conditions that affect their status of vulnerability. A joint study published by University College London and the London School of Economics in August found that people with dementia accounted for 25% of covid-related deaths in England and Wales, and for 31% in Scotland. As such, it is both rational and morally right to put dementia patients at the very front of the queue to receive the vaccine, to mitigate as far as possible the immense double distress caused by having dementia and a pervasive fear of catching coronavirus.

My second point is perhaps more poignant. We often speak of the pandemic’s disruptive capacity in bringing forward years of technological change in a matter of months. Dementia lays bare the irreplaceable nature of meaningful human-to-human contact in care provision. The very condition of dementia degrades people and, over time, deprives them of memories of their loved ones. In many cases, when only frail muscle memory remains, the only thing that provides a sense of recognisable comfort is the faint recognition of a family member or regular carer in an increasingly confusing and scary environment.

With the myriad rules and regulations that have been imposed upon us, that necessity becomes ever more critical. I am sure that many of us in this House have seen the distressing videos of a retired nurse being taken from her residential home by her daughter, a trained nurse. That was not only deeply distressing, but painful, and a sorrowful metaphor for the anguish that many care providers face when making decisions relating to their nearest and dearest.

As I said about breast cancer in the earlier debate in this Chamber, we must ensure that the cure is not worse than the disease. When imposing measures on the freedom of the individual, the state and its representatives must retain human kindness, compassion and decency at their very core.