Trade Union Bill
Debate between Greg Mulholland and David AndersonWednesday 27th April 2016
(8 years, 7 months ago)
Commons ChamberRead Full debate Trade Union Act 2016 View all Trade Union Act 2016 Debates Read Hansard Text Read Debate Ministerial Extracts Amendment Paper: Commons Consideration of Lords Amendments as at 27 April 2016 - (27 Apr 2016)
Mr Anderson
My hon. Friend is absolutely right about that. If instead of talking to the TaxPayers Alliance to get information, the Government had spoken to any reasonable employer in this country or any trade union that deals day in, day out with this, they would have got a picture of the real story, not just some made-up attack on the trade union movement, which is what this is really all about.
Greg Mulholland (Leeds North West) (LD)
I realise that time is short, so I shall be brief. Welcome as it is that the Government have been forced into a series of embarrassing U-turns, my party, which does not receive funding from the trade union movement, does not regard the Bill as a sensible attempt to look at some of the issues relating to party funding. Clearly, that should be done in the round and fairly, including looking at trade union funding, and we would support such an approach. This always set out to be a cynical, politically motivated Bill that undermines the important role that trade unions play in the democratic process. Encouragingly, Members in the other place have acted in a measured and cross-party way. Rather than simply striking down rafts of the Bill, as many would have liked—we would have liked to see that for some parts of the Bill—they have suggested cross-party, sensible and measured amendments.
Drugs: Ultra-rare Diseases
Debate between Greg Mulholland and David Anderson(9 years, 6 months ago)
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Greg Mulholland
Indeed. It was a pleasure to meet the right hon. Lady’s constituent, Archie, and his parents. These young people are inspiring us to campaign. She is absolutely right. We are debating the European Union Referendum Bill today in the Chamber. Other EU countries, and some non-EU countries, regard these treatments as effective and affordable, yet we do not.
I will fast-forward from the scrapping of the previous body to October 2014, when NHS England came out with the scorecard system. That is despite one of the clinicians involved, Dr Chris Hendriksz, saying on 22 October in an email:
“I would suggest the scoring is not used at all for decision making this round and I would rather have people acknowledging that they are making random decisions than to try and give some credibility to a process that was deeply flawed.”
That is from one of the senior clinicians.
NHS England none the less went ahead with the scorecard system to decide which funding should be prioritised. Suzanne Mallah and her 10-year-old boy Kamal, who has Morquio and is another inspiring young person whom I have been delighted to meet, saw that that was not only haphazard but discriminatory. With the help of the MPS Society, they threatened legal action on 28 November against NHS England on the basis that the scorecard was clearly discriminatory, that there was no policy explaining it and that there had been no public consultation on its use. Just one week after that, on 2 December, NHS England announced that it was suspending use of the scorecard because the MPS Society and Kamal were right and it was wrong.
Mr David Anderson (Blaydon) (Lab)
The hon. Gentleman makes a good case. Is it not also the case that clinicians have not been listened to all the way through this, in the same way that they were not listened to when the Health and Social Care Act went through? That is what has led us to where we are. I have been the chairman of the all-party group on muscular dystrophy for 10 years. We had a very good working relationship with the specialised commissioning groups, which were effective in getting medication of this type to people, but the bureaucracy created by the Act was against clinicians’ wishes, which is why we are here today. NHS England has a lot to answer for. The Government’s decision to ignore the voice of professionals has put us in this position.
Greg Mulholland
It has been a pleasure to work with the hon. Gentleman and the APPG on muscular dystrophy on the Translarna part of the campaign. He is absolutely right. We want not only an acknowledgment from the Minister that the current processes are not fit for purpose and not fair on those with ultra-rare diseases, but a drive to overhaul them.