Business of the House

Greg Mulholland Excerpts

Thursday 26th February 2015 Commons Chamber

[Greg Mulholland (Leeds North West) (LD)]

Children with Morquio disease, Duchenne muscular dystrophy and tuberous sclerosis are being badly let down by NHS England, which cancelled its process of approval of the drugs for these ultra-rare conditions. I am sorry to say that these families now feel that they are being fobbed off by the Department of Health and Ministers. May we have an urgent statement to confirm that we will have what we asked for—an interim funding solution to fund these drugs, to be announced before this Parliament is dissolved?

[Mr Hague]

My hon. Friend raises an important issue, which will be vital for the people most affected by it. As I have already pointed out, we have had the last regular Health questions of this Parliament, but Ministers will continue to respond to written questions and correspondence. I think the best thing I can do to help my hon. Friend is to refer this to the Health Ministers and tell them of his concern so that they can respond to him directly.