Autism and Neurodiversity Research Funding

Greg Clark Excerpts

Tuesday 16th November 2021 Commons Chamber

[Robert Buckland]

My hon. Friend is right. Drawing on her local government experience and having been directly responsible for many of these services she encapsulates the best practice we see in many local areas. The trouble is that we do not see it everywhere and there is, to use the dreaded phrase, a postcode lottery, which is just not good enough for so many families across our country.

I see where we are now as a moment to make a choice. There is a golden opportunity for Government and indeed for society, and I deliberately wanted to include neurodiversity in this debate because I believe it is hugely important. Diagnostic descriptions are vital for many families. Speaking from my own experience, they open a door to statutory services and obligations—statements, as we used to call them, or education, health and care plans as they became under the Children and Families Act 2014. However, the system is in danger of becoming a prisoner of that process. In the natural concern that public authorities have to conserve resources there is a danger that we start to become overly obsessed with labels and then find that if somebody is not labelled there is, to mix my metaphors, a cliff edge and nothing for the person who does not happen to get through the door marked “autism”.

Let us think about that for a moment—think about how wrong that is in terms of the lives we are dealing with. No one person just presents as autistic; they might have a range of conditions and challenges including, for example, epilepsy, which, sadly, is a very common comorbid condition with autism. There are also other conditions that might fall short of autism but if undiagnosed the consequences can be baleful, such as attention deficit hyperactivity disorder, attention deficit disorder, dyslexia and other types of impairment that mean that people cannot access education, for example, in the way that neurotypical people can. These conditions might not be seen as acute compared with some other conditions that are diagnosed but can lead to disaster for the individual if they are not diagnosed.

School exclusion—I see the hon. Member for Croydon Central (Sarah Jones) in her place—is the most obvious consequence. That is a particular issue, and the disengagement with the system that it can lead to all too often leads to a descent into criminality, which, frankly, then brings us back to the criminal justice outcomes that I have been wrestling with all my professional life and in my ministerial incarnation. In devising the right type of support, we need to try to put the process in its proper context. We must remember that this is about the person and centre something on the individual and their needs.

I am delighted after many years to renew my association with Autistica, our country’s leading autism research organisation. Today, by happy coincidence, it published an excellent support plan on autism. Having read it very carefully, I think it is groundbreaking. It is targeted, and it tries to move the debate in a direction in which I think all of us, including the families and those who have autism, would like to see it go. That contribution follows from the Government’s own commitment, in the revised autism strategy published at the end of July, to improve autism research, to improve innovation and to look for examples of best practice.

As we near a very important moment in the life of our country, with the Department’s publication later this year of the long-awaited White Paper on social care, Autistica has identified a gap in research—and guess where the gap is, Madam Deputy Speaker. It is in social care. We have learned so much about genetics and about the causes or the reasons for autism. That has been incredibly important in understanding that this is a condition, not an illness or a disease, and that there is no cure, and in moving away from all that redundant language and understanding the condition for what it is—and celebrating it too, by the way. We do not do enough of that. We tend to view it as some sort of wicked problem. For many people, it is actually their life; it is who they want to be and how they want to be recognised. We must never forget that.

[Greg Clark (Tunbridge Wells) (Con)]

My right hon. and learned Friend is making a powerful speech, and it is good to have him free to contribute in this way. Does he agree that, in so far as there are problems, they can be in people’s responses to those with autism, and that if people were to respond in a better informed and more generous way, then such problems as exist today may not be there in the future?

[Robert Buckland]

My right hon. Friend is absolutely right. There is no doubt that an inappropriate response, or a response, however well intentioned, that results from a lack of evidence or a lack of understanding, can make a bad position much worse for somebody with a condition such as this. Therefore, for me, research is not a luxury or an optional extra; it is essential. If we, as public services, as private enterprise, as business—as an economy that needs a supply of new talent, bearing in mind the announcement today that there are 1.2 million job vacancies in our country—are to really release the potential of people with brain conditions, then this is, to use the phrase, a no-brainer.

[Greg Clark]

I am grateful for my right hon. and learned Friend’s indulgence—

[Madam Deputy Speaker (Dame Eleanor Laing)]

Order. I did not correct the right hon. Gentleman the first time, but it is essential that he faces the Chair rather than the right hon. and learned Member for South Swindon (Robert Buckland), because he cannot be heard if he is speaking to the back of the Chamber. I never understand why, when there is all this space, people want to sit where the occupant of the Chair cannot see them. There must be a reason for it.

[Greg Clark]

I will address you directly, Madam Deputy Speaker. I accept your ruling on that.

One problem people with autism sometimes face is that, when they come to an age where they are looking for jobs, work experience is increasingly important and some employers are reluctant, based on lack of familiarity and nervousness, to give work experience opportunities to young people with autism and other conditions. Work experience is an essential gateway to employment. Will my right hon. and learned Friend join me in encouraging employers to open up and give work experience opportunities to a wider range of young people?

[Robert Buckland]

My right hon. Friend is absolutely right. We have seen that in other areas, for example mental health, where there has been concerted work, including by excellent organisations such as the Mindful Employer Network in my area, to demystify the issue and remove the stigma. Such work allows employers to understand autistic people, some of whom see the world in ways that you and I could not dream of. Going back to my celebratory point, it is all about the potential of people with neurodiverse conditions and what they have to offer.