Endometriosis: Women in the Workplace

Debate between Gill Furniss and Alec Shelbrooke

Wednesday 15th January 2025 Commons Chamber

[Gill Furniss]

I thank the hon. Member for that point.

The issue has been known about for a long time. The women’s health strategy, published in 2022, painted a picture of what workplaces should be like over the next 10 years, arguing that women should

“feel able to speak openly about their health and to be confident that they will be supported by their employer and workplace colleagues, with an end to taboos”

and that

“women experiencing women’s health issues such as period problems, endometriosis, fertility treatment, miscarriage and menopause”

must

“feel well supported in their workplaces.”

This is a far cry from the reality facing women in the workplace today.

[Sir Alec Shelbrooke (Wetherby and Easingwold) (Con)]

It is fortuitous that you are in the Chair tonight, Madam Deputy Speaker, given all the work you did on these issues in the last Parliament as Chair of the Women and Equalities Committee.

I think that the hon. Lady attended my Westminster Hall last year, and I am grateful to her for securing this Adjournment debate. As a direct consequence of my Westminster Hall debate, Essex police contacted me, saying, “We are looking into doing this. Can you give us advice on the workplace?” It was a great example of the impact of this place, and employers will be listening to her debate. Des she agree that education and sunlight will help a lot of employers make the right decisions?

[Gill Furniss]

I thank the right hon. Member for that intervention, and I absolutely agree. I pay tribute to you, Madam Deputy Speaker, and to the right hon. Member for the efforts he has put in over many years.

Stigma and a lack of awareness by employers means that reproductive health conditions can have a significant effect on women’s experiences at work. It is almost impossible to remain at work when suffering from chronic pain and the mental toll that these conditions cause.

[Gill Furniss]

I thank my hon. Friend. The average length of time taken is now eight years, which is not good.

Many women feel unable to speak openly about endometriosis as they would other conditions, as if it were something to be ashamed of. Research shows that 23% of women take time off work because of period health issues while 80% lie about reasons for absence if they are related to periods. Having said that, endometriosis is not just about periods; it is a whole-body complaint. I do not think there is an organ in the body up to the chest that has not been found to be affected by what is a crippling disease.

[Sir Alec Shelbrooke]

I want to build on what the hon. Lady said about endometriosis in the workplace. The condition often comes with infection of the digestive system, which can make many women incontinent to the point that they suddenly have to run. That is important to consider, as this is not just about appointments and time off but the conditions in which people work and the understanding they need from their colleagues and bosses.

[Gill Furniss]

I completely agree, and it has serious consequences. Women may need to have a stoma because of the damage done to their bowels. The right hon. Member and I have both met quite young women their 20s who have needed to have hysterectomies and will never be able to bear a child.

Endometriosis should not mean that women have to put their careers on hold and leave the jobs they have worked hard to get. Employers can take simple steps such as offering flexible working, access to period products and time off to attend appointments to build the type of workplace envisioned in the women’s health strategy.

I am pleased that the Government have brought forward the Employment Rights Bill, which will be the biggest boost to workers’ rights in a generation. That offers the perfect opportunity to begin to change the workplace experience of women with endometriosis.

Endometriosis Workplace Support

Debate between Gill Furniss and Alec Shelbrooke

Tuesday 29th October 2019 Westminster Hall

[Alec Shelbrooke]

I am grateful to the hon. Lady, who raises a very important point; there are many support groups out there. I will come to the workplace impact, for which the Minister is responsible, but one of the things that I want this debate to achieve is to highlight to women far and wide that there are lots of support groups in different areas of the country. More importantly, I hope that the debate will be heard by the Department for Education. To strengthen our point, we may have to come back to debate the issue with each separate Department, and we should ensure that we do so.

Another sufferer said to me:

“I have suffered with endometriosis since being 19. I had always had heavy periods and then my symptoms escalated to constant bleeding, pain on intercourse, really bad pain in the lower tummy and lower back. I was backwards and forwards from anywhere between 6 months plus, who constantly checked me for STDs. They’d do swabs, send me on my way and they’d come back clear, and I was in that cycle. I was in work one day when I was given an awareness form for endometriosis. Every symptom listed, I ticked. I’m now 36 and I’ve had 22 laparoscopies. At 29, I had a hysterectomy. When they removed my cervix, they found the endometriosis in there.”

A young woman who has given me a huge amount of help in preparing for this debate told me:

“My journey with endometriosis began when I was 11 years old, when I had my first period. From a young age I was going back and forth to the doctors for leaking through my clothes at school, just after being to the toilet. I have always been active in football and dancing but found myself struggling with the disease due to the pain, lack of energy and continued leaking through my clothes.”

We are talking about an 11-year-old girl. She continued:

“Initially I was told they thought I had endometriosis but was too young for the surgery required for diagnosis. I ended up going through surgery for a womb polyp and ovarian cysts. To date, I have now had 10 surgeries, all with general gynaecologists. Finally, I have been able to see an endometriosis specialist after 10 years of suffering. I had surgery on the 8th of April 2019 which was the diagnostic surgery I had been waiting for. The specialist surgeon found years of missed endometriosis due to untrained surgeons. Unfortunately, a shortage of worldwide endometriosis specialists means this is not uncommon for women suffering.

This disease has had a huge impact on my mental health. Alongside other personal family issues, the daily pain I have been going through has made tackling day to day life harder. Whilst I have had friends and family support me, I have also lost friends because they don’t understand this disease. I have tried to take my life multiple times because of it. The problems have also extended to my fertility. I have had miscarriages and a medically advised abortion. Not only was this a devastating and horrific experience for me but had a dramatic impact on my work life as well as personal.”

Another lady said to me:

“As soon as my periods started when I was just 12 years old, the problems began. I suffered extreme pain and heavy bleeding, to the point where I passed out several times. On speaking to my GP, I was told ‘every girl has this, it’s normal’. The doctor prescribed me oral morphine for the pain, but most of the time it barely touched it. Finally, I was offered a laparoscopy in February 2016. The surgeon told me I had endometriosis, but that they had treated it and I wouldn’t have any further problems. I was so happy and relieved, little did I know the fight was far from over. By October the symptoms had returned. On speaking to my doctor, I was told it couldn’t have come back after surgery, it was part of being a woman and I simply needed to be more positive. Eventually, I got referred to an endometriosis specialist hospital where an MRI scan showed my left ovary and bowel were stuck to my cervix and I had 100% got endometriosis back. This means more surgery.”

I am so grateful to the members of the public who engaged with the digital engagement platform. A woman from Newcastle shared her workplace experience. She said:

“I have been disciplined for being off sick. I am terrified to go off sick again, so I have to force myself to work even when the pain makes me vomit. If I go off sick again, I know they will sack me, this has been made very clear. I work for HMRC and I know this is a massive issue for other members of staff as well.”

Another lady said:

“I have been fired from all my jobs, my last workplace bullied me and mocked my illness, nothing was done via HR and I was made to leave instead. I have never had support from any workplace.”

[Gill Furniss (Sheffield, Brightside and Hillsborough) (Lab)]

I thank the right hon. Gentleman for securing this extremely important debate. As a member of the all-party parliamentary group on endometriosis, which is ably chaired by the hon. Member for Southend West (Sir David Amess), I have been privy to many of these stories. Does the right hon. Gentleman agree that a major barrier to support in the workplace is the taboo around menstrual health? Surely, we have to get people talking about that. One idea may be to encourage employers to become endometriosis-friendly, so that people get support and HR departments understand that it is a real illness and not something that someone should have to endure.

[Alec Shelbrooke]

I am grateful to the hon. Lady for that important point. That goes back to the earlier example of the lady who suffered for so many years and who got a diagnosis only when she had ticked every single box of a workplace survey. That is why we need a debate with the Department for Business, Energy and Industrial Strategy—we need to work across so many areas of Government. The hon. Lady is right: any issue of women’s health, but especially menstrual health, is still taboo. Someone asked me why I secured this debate. The primary reason is that I have worked very closely on this with a previous constituent of mine, but I also think it important that a man stands here and says that women’s health is not a taboo subject. We are all human beings and we all have health issues. We should all stick together and help everybody, regardless of how embarrassing we might find the subject. There is nothing embarrassing about health and we need to look after people.

The stories that I have given all share the same underlying theme: “I was told by doctors that it was all part of being a woman.” Given the backdrop of the personal trauma that women with endometriosis suffer—years without a diagnosis, personal relationships breaking down and strain on personal finances—they should at least be able to expect the law to protect them in the workplace, like anyone else who suffers with a disability. The truth, however, is that a whole host of employers are completely unsympathetic to the disease, and often dismiss employees because of a “poor sick record”.