Cystic Fibrosis: Prescription Charge Exemption

Feryal Clark Excerpts

Wednesday 2nd February 2022 Westminster Hall

[Feryal Clark (Enfield North) (Lab)]

It is a pleasure to serve under your chairmanship this afternoon, Mr Sharma. I pay tribute to the hon. Member for Blackpool North and Cleveleys (Paul Maynard) for securing this important debate and for his continued campaigning on this issue. I also thank my hon. Friend the Member for Bristol East (Kerry McCarthy), the hon. Member for Ashfield (Lee Anderson), the hon. Member for Strangford (Jim Shannon) and the right hon. Member for South Holland and The Deepings (Sir John Hayes). As has been said, hearing the personal stories of Members brings to the fore the reality faced by CF patients, which is really important, and I thank Members for sharing those personal stories.

As we have heard this afternoon, cystic fibrosis affects over 10,000 people in the UK, with one in 25 people being carriers of the CF gene. CF is a degenerative condition with symptoms that often start in early childhood, get progressively worse and affect people’s quality of life. Although there is no cure, treatments are available to help manage the condition and reduce its effects. Sadly, life expectancy for those living with CF is still shorter than that of the general population. People living with CF are also more susceptible to other conditions, including diabetes, osteoporosis and liver issues.

Despite the debilitating nature of CF, people living with the condition face a complex and discriminatory system when it comes to accessing prescriptions. The system of prescription charges is complex for most people, but for those living with long-term health conditions, it can present multiple challenges.

As all Members have said, there are several exemptions from prescription charges, based on demographics, income and pre-existing conditions. When it comes to pre-existing conditions, the list of conditions that are exempt from prescription charges was first created in 1968, as we have heard. In the 54 years since, we have seen immeasurable changes in our understanding of long-term conditions and the outcomes of people living with them, yet just one addition has been made to that list in those 54 years—just one. That leaves those living with CF in the position of needing to have another long-term condition to access free prescriptions. This two-tier system leaves thousands of people with the same conditions facing different circumstances.

We know the difficulties faced by those living with CF who have to pay for their prescriptions. The costs of prescriptions can put people off taking the medication they need, as we have heard. With the costs continuing to rise, those problems are only going to get worse. That not only leaves people suffering more than necessary but, as set out very eloquently by my hon. Friend the Member for Bristol East, will cost the NHS more money in the long term and further increase pressure on primary care.

At a time when the cost of living is continuing to rise, the Government ought to consider what more they can do to support people with these essential costs. The fact that one in 10 people living with CF were given emergency grants by the Cystic Fibrosis Trust to help them fund their medication shows how serious this problem is. No one should be forced to choose between paying for their prescription and risking their lives. Sadly, we know the financial pressures that those with long-term conditions often face. As the hon. Member for Strangford mentioned, surveys have shown that 29% of people living with CF have not taken their prescriptions due to financial pressures. Too many people are forced to make dangerous choices that they should not have to.

The inequality in prescriptions for those living with CF is clearly a cause for concern, and something that the Minister needs to look at. In December, he stated in response to a written question that the Government’s

“policy on entitlement to help with prescription charges in England is based on the principle that those who can afford to contribute should do so, while those who are likely to have difficulty…paying should be protected.”

What weight has he given to the financial difficulties of those living with long-term conditions such as CF when establishing his principles?

Furthermore, as I and other hon. Members have pointed out, the medical exemption list for prescription charges has been updated just once since 1968. Given the Government’s levelling-up agenda, one would assume that this would be a perfect opportunity to bring health policy properly into the 21st century. Given the powerful arguments that we have heard this afternoon, I hope the Minister’s position has progressed from the response he gave to the written question just a few weeks ago. For him to say that the Government have “no plans” to look again at this, despite the overwhelming changes in our health service in the last 54 years, is frankly slightly baffling. What reassurances can he give those living with CF that the Government understand their condition as it is now, not as it was in 1968?

The Minister furthermore suggested that capping charges at £108 for those living with long-term conditions through a prepayment certificate provided support. This highlights a failure to grasp just how serious the financial pressures faced by those living with long-term conditions such as CF are. Those living with CF face an outdated and unfair system that is wholly removed from the world as it is today. If the Government truly believe in levelling up, it is time for the Minister to look at this issue again.