Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she has taken to ensure that effective support is provided to autistic women (a) during and (b) after childbirth.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The Health and Care Act 2022 requires Care Quality Commission registered providers, which includes maternity services, to ensure their staff receive specific training on learning disability and autism, appropriate to their role. We are rolling out the Oliver McGowan Mandatory Training on Learning Disability and Autism to support this. This training will help to ensure that staff have the right skills and knowledge to provide safe and compassionate care, including how to provide reasonable adjustments for autistic people.
NHS England is also working to improve the use and recording of reasonable adjustments to make it easier for autistic people to use health services, by ensuring care is tailored appropriately. This includes the development of a Reasonable Adjustment Digital Flag, which will enable the recording of key information about a patient, including if a person is autistic, and their reasonable adjustment needs, to ensure support can be tailored appropriately.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many women and girls are waiting for (a) autism and (b) ADHD assessments in the London Borough of Lewisham; and what the average waiting time is for such assessments.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The information requested is not held centrally, but may be held by individual providers or integrated care boards (ICBs). However, some relevant information is available for autism assessments. In the NHS South East London ICB, in December 2023, there were a total of 1425 patients with an open suspected autism referral. The median waiting time of patients in this ICB with an open suspected autism referral, where their first care contact was in the quarter, was 545 days. Across England, in December 2023, 80,718 female patients had an open suspected autism referral.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has had discussions with paediatricians on trends in the number of women diagnosed with (a) autism and (b) ADHD.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
My Rt hon. Friend, the Secretary of State for Health and Social Care has regular discussions on a wide range of matters with a wide range of people, including clinical staff. The National Institute for Health and Care Excellence’s (NICE) guidelines for autism and attention deficit hyperactivity disorder (ADHD) recognise that autism and ADHD may be under-diagnosed in women and girls. The NICE’s guideline on autism diagnosis for under 19-year-olds and the NICE’s guideline on ADHD, both set out that clinicians should pay attention to the under-diagnosis of girls, when assessing for suspected autism and ADHD. We expect integrated care boards (ICBs) and health professionals to have due regard to these guidelines. In April 2023, NHS England published all age autism guidance, which aims to improve outcomes and the quality of autism assessment pathways for everyone. This guidance is available at the following link:
https://www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance/
With respect to autism, data shows that we are now seeing an increase in referrals for female diagnoses, suggesting that there is an increased awareness of the presentation of autism in women and girls. In England, as of December 2023, of the 172,022 patients with an open suspected autism referral, 52% were male and 47% were female. The number of female patients with an open referral for suspected autism is increasing more than for male patients, with the proportion of female patients having increased steadily from 36% in June 2020.
There is, at present, no single, established dataset that can be used to monitor waiting times for assessments and diagnosis of ADHD nationally. Although data is not held centrally, it may be held locally by individual National Health Service trusts or ICBs. NHS England is establishing a new ADHD taskforce alongside the Government, to improve care for people living with the condition. Alongside the work of the taskforce, NHS England has also announced that it will continue to work with stakeholders to develop a national ADHD data improvement plan.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will commission research into the impact of (a) autism and (b) ADHD on women.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR is currently funding research to address measurement bias in the assessment of the presentation of autism in women, and to develop a new psychometric tool assessing the female-dominant phenotype of autism. The NIHR previously funded a study to improve the accuracy and efficiency of autism assessment for adults which, while not specific to women, will be relevant to their experiences of receiving a diagnosis. The NIHR has also funded research into topics that impact autistic individuals differently, for example how to adapt suicide safety plans to address self-harm, suicidal ideation, and suicide behaviours in autistic adults.
The NIHR welcomes funding applications for research into any aspect of human health, including the impact of autism and attention deficit hyperactivity disorder on women. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will commission research into the reasons for which autistic women are more likely to suffer from premenstrual dysphoric disorder throughout their lives.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR is not currently funding any specific research to understand the reasons why autistic women are more likely to suffer from premenstrual dysphoric disorder, but welcomes funding applications for research into any aspect of human health. Applications are subject to peer review and judged in open competition, with awards being made based on the importance of the topic to patients and health and care services, value for money, and scientific quality.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will commission research into the impact of hormonal changes on neurodiverse women throughout their lives.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR is not currently funding any specific research into the impact of hormonal changes on neurodiverse women, but welcomes funding applications for research into any aspect of human health. Applications are subject to peer review and judged in open competition, with awards being made based on the importance of the topic to patients and health and care services, value for money, and scientific quality.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she plans to review the eligibility criteria for antivirals for those suffering from long covid.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Decisions on the eligibility criteria for treatment with antivirals are made by the National Institute for Health and Care Excellence (NICE), based on an assessment of their costs and benefits, developed in line with marketing authorisations issued by the Medicines and Healthcare products Regulatory Agency.
The NICE has published guidance that recommends the antivirals Paxlovid, Veklury, and Lagevrio for the treatment of COVID-19, both in the community, and for patients in hospital. This guidance sets out the eligibility criteria and ensures that patients who are at the highest risk of developing severe disease from COVID-19 have access to clinically and cost-effective treatments. Patients with long COVID have not been identified as a distinct group that would be eligible for treatment, and there are currently no licensed antivirals for the treatment of long COVID. The NICE therefore has no current plans to review the eligibility criteria in its guidance. The NICE maintains surveillance of new evidence that may affect its published guidance, and would consult on proposed changes if significant new evidence were to emerge.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether her Department has undertaken an impact assessment on the impact that long covid has had on the NHS workforce.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
No assessment has been made of the potential merits of collecting data on the prevalence of long COVID. On 25 April 2024, the Office for National Statistics will be publishing additional analysis from the fortnightly Winter Coronavirus (COVID-19) Infection Study, including data on trends in ongoing symptoms of COVID-19. This article will expand on the existing analysis published in the Winter Coronavirus (COVID-19) Infection Study’s data tables, to look more in depth at trends in self-reported symptoms of COVID-19, including ongoing symptoms and associated risk factors. No assessment has been made of the impact that long COVID has had on the National Health Service workforce.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has made an assessment of the potential merits of collecting data on the prevalence of long covid.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
No assessment has been made of the potential merits of collecting data on the prevalence of long COVID. On 25 April 2024, the Office for National Statistics will be publishing additional analysis from the fortnightly Winter Coronavirus (COVID-19) Infection Study, including data on trends in ongoing symptoms of COVID-19. This article will expand on the existing analysis published in the Winter Coronavirus (COVID-19) Infection Study’s data tables, to look more in depth at trends in self-reported symptoms of COVID-19, including ongoing symptoms and associated risk factors. No assessment has been made of the impact that long COVID has had on the National Health Service workforce.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the value for money of personal protective equipment procured under covid-19 emergency regulations.
Answered by Neil O'Brien
I refer the hon. Members to the answer I gave to the hon. Member for Bristol South on 6 February 2023 to Question 903412.