Children with Autism (Education)
Debate between Edward Timpson and Bob Stewart(10 years, 4 months ago)
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The Parliamentary Under-Secretary of State for Education (Mr Edward Timpson)
I thank my hon. Friend the Member for Burnley (Gordon Birtwistle), as well as my hon. Friend the Member for Ribble Valley (Mr Evans) and the hon. Member for Stoke-on-Trent South (Robert Flello) for tabling the debate in order to champion the needs of autistic children. I think we would all agree that this is an extremely important issue that affects parents not just in Lancashire, but in Cheshire, which is my area, and right across the country.
I was reminded by the new Solicitor-General, who was present at the beginning of the debate and who has probably done more than any other Member to support the cause of autism on the basis of both his personal experience and the work that he is doing in South Swindon, that this is our third debate on the subject in the last 18 months or so, which is a rather better return than we had over the previous 10 years. I think that that emphasises how important it is for Members such as my hon. Friend the Member for Burnley, when local cases are brought to them, to take the opportunity to raise them on the platform here in Parliament, so that we can debate the issues more widely.
My hon. Friend mentioned a number of cases, including those of Jack, Honey and Chloe. I have read about their experiences, and was able to discuss them with my hon. Friend last week. He also spoke about the consequences for children of missing out on education, whatever the reason may be. There is no doubt that the parents in such cases feel very badly let down. It is not for me to answer for Lancashire county council, however; the hon. Member for Preston (Mark Hendrick) has given it an opportunity to answer for itself.
Parents have said that they have shared their stories so that other families can find an easier pathway towards better support in the future. We too should learn from their experiences. There are numerous examples which show why it is so necessary for us to change the current special educational needs system. Too many parents find themselves, as one mother has put it, in “an unending battle” with a system that is supposed to help them. Too many find that their children's special educational needs are picked up late, too many have to fight to get different services to work together—services that focus too much on the SEN label rather than on meeting children’s needs and supporting their life outcomes—and too many find that young people lose the protections and rights that they have had at school when they move on to further education.
Although it is right to acknowledge that there is excellent practice and provision out there, it is little wonder that young people with SEN often have such poor prospects, lagging behind their peers at school and college, and being more likely to be out of education, training and employment at the age of 18. I am sure we all agree that that is not acceptable. It is a terrible waste of untapped potential, and of lives that are peppered with missed opportunities. The challenge, issued again today by my hon. Friend the Member for Burnley, is for us—the Government and local authorities, as well as other agencies that are involved with families—to do much better by these children and young people. The Government have recognised that need, and we have been prepared to take on the challenge of truly reforming the SEN system to give all children and young people who are touched by it the best possible chance to lead successful, happy and fulfilled lives.
As the hon. Member for Huddersfield (Mr Sheerman) reminded us earlier, the Children and Families Act 2014 is the most important legislation on special educational needs in 30 years. The reforms that it makes will begin to be introduced in September this year. It will create a clearer, more joined-up approach that will focus unashamedly on outcomes, and will improve the support that is provided during the transition to adulthood. Crucially, it will do much more to involve children, young people and their families through a more integrated, streamlined assessment process, and through a new “birth to 25” education, health and care plan that sets out, in one place, all the support that children will receive across the various services.
Bob Stewart
I presume that the Minister also wants early diagnosis to be part of that plan. The earlier we can make an assessment of young people with autism, the more they will be able to enjoy their lives subsequently.
Mr Timpson
My hon. Friend is absolutely right about that. The code of practice, which the hon. Member for Birmingham, Selly Oak (Steve McCabe) noted we debated in Committee this morning, has running through it that very premise: in order to ensure we get the support in place at the right time, early identification is key. Bringing health, social care and education services much more closely together will mean better sharing of information about the challenges that children present and understanding what underlying causes prevent them from being able to access education and to learn.
Mr Timpson
I am grateful to the hon. Gentleman for remaining stoic in his efforts to bring this issue to the fore, both in Parliament and in his constituency. It is important that we do not decide that the job has been done, and show no more interest in the consequences, just because an Act of Parliament has been passed. Things work the other way round: in some ways the easy bit has been achieved and the hardest bit is the implementation. That is why we are ensuring, in the run-up to September and beyond, that we have a clear understanding of how it feels for parents and families as the changes start to kick in. I would welcome any opportunity, be it Adjournment debates or other means by which hon. Members can bring these issues to the House, to continue taking a constructive approach to the legislation and the subsequent attempts to put it into place on the ground. We must be mindful that we are asking for a culture change to happen and take hold in many parts of our communities and our countries. The more Members of Parliament and other leaders in our communities show a direct, vocal and public interest in the life chances of children and young people with SEN, the greater prospect we have of getting the culture change we all want to see.
Bob Stewart
May I, too, support exactly what Walton’s voice in Westminster, the honourable scouser, has said: we ought to have more debates on this subject and watch the legislation going through?
Mr Timpson
As I said a few moments ago, this is the third or fourth debate we have had on autism, and we have had many more debates on SEN over the past two years. That can only be a good thing, and it has ratcheted up the interest and understanding of not only hon. Members, but many outside this place, who are now more aware of the importance of bringing forward these changes. They include: a new “birth to age 25” education, health and care plan; the local offer, which the hon. Member for Birmingham, Selly Oak mentioned, outlining what support is available to children with SEN and their families in their area; and the joint commissioning of services by councils and local health bodies.
It is also important to say that the Act protects and extends rights that exist in the current legislation and maintains duties. Schools will continue to have a duty to do their best to make provision to meet children’s SEN, and the Act extends that duty to colleges, too. Councils will, where necessary, continue to have a duty to assess children’s SEN and arrange suitable provision. Again, that duty is being extended to young people up to the age of 25, which is a significant step forward.
The hon. Member for Birmingham, Selly Oak asked about the number and role of SENCOs in schools. Every maintained nursery, primary and secondary school is required to have at least one SENCO, who has received the necessary training, including on the main types of need, of which autism is one. The hon. Member for Bolton West (Julie Hilling) asked about educational psychologists, and I hope she was trying to elicit an answer that gives us a full picture of the current position. What I can tell her is that there has been significant investment in the training of educational psychologists. On average, more than £5 million a year has been invested since 2010. This is the first central support to supplement local authority voluntary subscription schemes, and this year we are increasing supported places from 120 a year to 132. I met the union that represents educational psychologists just this week to talk about how we can move forward in years to come.
The 2014 Act will benefit all children and young people with special educational needs and their families. Importantly for this debate, that includes those with conditions such as autism, which often require specialist support across a number of agencies. I wish now to talk about some of the ways in which the new law will provide for that. Councils will have to integrate education provision with health and social care provision where that will promote the well-being of children and improve the quality of special educational provision.
Health provision, such as speech and language therapy—such therapy is often a necessary requirement for those with autism, and was needed in some of the cases in Burnley—can be extremely important in addressing the communication difficulties that are one of the core features of autism. The joint commissioning duty between councils and health bodies will help ensure that services are available to meet the needs of children and young people in the area. Too often it is reported that parents receive a diagnosis of autism for their children and then are given no information about how they can access support. The purpose of the local offer is to provide information about the support available for disabled children and those with SEN across education, health and social care.
The local offer will be not just a directory of services, but will be drawn up following consultation with children, young people and parents. If autistic children and young people and their parents feel that there is not sufficient provision for them in the area, they will be able to use the local offer to challenge the local authority to improve that provision.
We all know how important early intervention can be for children with autism. By making the new system “nought to 25”, we have strengthened the rights of parents of children aged nought to two to have provision made to meet their child’s needs. Many children with autism also stand to gain from a stronger push for early identification of SEN through initiatives such as the two to two-and-a-half-year health visitor review. We are committed to creating an integrated review from 2015, combining the health visitor review and the two-year-old early years foundation progress review.
Currently about 70% of children whose primary special educational need is autism have an SEN statement as against those who are supported by schools at School Action Plus. That is a higher percentage than most other types of SEN. We expect those children who currently have statements to be transferred on to the new education, health and care plans so they will benefit from the more co-ordinated approach that the plans bring and the new duty on health bodies to arrange the health provision set out in a plan.
With growing awareness of autism, many parents of autistic children quite rightly want specialist provision. Through the Children and Families Act 2014, we are strengthening the right of parents of children with EHC plans to have provision made at independent specialist schools. At present, where the parents of children with SEN statements request a council-maintained mainstream or special school, the local authority is under a conditional duty to name that school and, if it does, the school is under a duty to admit the child. But that does not apply when parents request other types of schools.
From this September—to emphasise the point that my hon. Friend the Member for Gainsborough (Sir Edward Leigh) made—when the parents of children with EHC plans request an academy, a non-maintained special school or an approved independent special school, the council will be under the same conditional duty to name that school as if the parent had asked for a local authority maintained school.
My hon. Friend the Member for Burnley and the hon. Member for Birmingham, Selly Oak rightly raised the issue of autistic children being informally and therefore illegally excluded from school. The Government’s view is clear: no child should be unlawfully excluded. Ofsted and the Department will take seriously evidence that a school has acted unlawfully in excluding a pupil. The new statutory guidance on exclusion, which took effect in September 2012, makes it clear that informal exclusion, such as sending children home to cool off, is unlawful. As the hon. Member for Birmingham, Selly Oak reminded us, we are funding the National Autistic Society to pay for exclusion advisers to provide advice to parents and professionals, but we want improvements and will continue to ensure that they happen.
Like other parents, parents of children with autism are keen to have greater control over the provision that is made for their children. Through the Children and Families Act 2014, the parents of children with EHC plans will have the opportunity to have a personal budget through which they can decide on how some of the provision set out in the plan is delivered. For example, parents could use their personal budget to decide which therapist delivers speech and language therapy to their child, rather than having to accept the therapist arranged for them. The increased roles for children, young people and parents and the 2014 Act’s promotion of greater co-operation in decision making will take much of the adversarial nature out of the current system.
However, it would be unrealistic to suggest that the new system will mean that no parents or young people will be unhappy about the provision that will be made in future. Currently, the largest number of appeals registered at the special educational needs and disability tribunal are in relation to children with autism, as compared with other types of need, which gives an indication of the difficulties that parents of children with autism have with the current system. I am sure that some parents of autistic children with EHC plans and young autistic people with plans will continue to disagree with the provision that is set out within. We have preserved the right of parents to appeal to the tribunal to have their appeals decided by an independent body, and we have extended that right to young people, too. Going to tribunal can be stressful for some parents and, if they choose to be legally represented, expensive, which is why, under the new regime, where parents and young people are thinking of appealing to the tribunal, we have given them the option of going to mediation with the council to try and get the disagreements sorted out more quickly in a non-judicial setting. If they fail to get disagreements about the special educational needs provision sorted, they can appeal to the tribunal.
Lastly, young people with autism can find change difficult, particularly the transition to adulthood. The 2014 Act brings together the legislation for school children aged nought to 19 with the legislation on young people with learning difficulties or disabilities in post-16 further education provision up to the age of 25, which means that young people with autism who need more time to complete their education and make that transition will have the opportunity to carry on in education until they are ready to leave.
One often-quoted statistic is that only 15% of adults with autism are in full-time employment, which is depressing, particularly given that, matched to the right job, many people with autism, with their eye for detail and the regularity and consistency of their work, are an absolute godsend for employers. The new SEN system will put greater emphasis on the long-term outcomes for young people, including getting a job. Much greater emphasis will be placed on preparing young people for employment and using routes such as apprenticeships, traineeships and supported internships to help them gain employment.
As the hon. Member for Birmingham, Selly Oak also said, in addition to our debate here, we have also been debating the new nought to 25 SEN and disability code of practice, which will give statutory guidance on the new SEN and disability system. The draft code has been developed after extensive consultation with many people, including the voluntary sector. For example, I met representatives from the National Autistic Society and we listened to its concerns that the description of the four broad areas of SEN in the code did not fully reflect the range and complexity of the difficulties that autistic children and young people can face. The NAS was also concerned that the first consultation draft of the code did not mention duties under the Autism Act 2009 and associated statutory guidance, so we agreed wording with the NAS that makes clear that children and young people with autism can have difficulties across all four areas of special educational needs: communication, cognition, emotional and mental health, and sensory difficulties. The code now makes it clear that, under statutory guidance accompanying the autism strategy, SENCOs should inform young people of their right to a community care assessment and their parents of a right to a carer’s assessment.
As hon. Members will be aware, just passing the legislation to provide for the new system is only half the battle. Successful implementation will depend on people around the country embracing the spirit of the new system. The best areas are already working in a way that we want to spread across the country.
I have listed a number of councils and have been encouraged by the progress that is being made in the run-up to the commencement date on 1 September. The Department has been conducting readiness surveys with all local authorities and the most recent survey shows that 95% of councils have told us that they are on track for September and can manage the changes. I have made it my business to follow up on the progress of authorities that are further behind the curve personally and I hope that that is a sign of how important the Government consider these reforms to be and our determination to improve things on the ground for families.
We know that implementing the changes we want to see will come at a cost. I recently announced an extra £45.2 million of funding in 2014-15 and indicative funding of £31.7 million in 2015-16 to help councils with implementation. That is on top of the £70 million SEN reform grant that councils can use to work with health and others to deliver the changes. We are also giving £30 million of new money between April of this year and March 2016 to recruit and train independent supporters across the whole country to help families navigate the new system.
This debate has been another excellent opportunity to raise in this House not only the importance of the special educational needs reforms that the Government have introduced but how they will affect many people up and down the country who have a child or young person with autism. I thank all hon. Members who have contributed to the debate. Autism is a complex condition, and it requires people to work together to ensure that the needs of individuals and autistic children and young people as a whole are met. I hope that what I have said today reassures hon. Members that the Children and Families Act and the reforms that we are introducing will make co-operative working between children and young people, parents, professionals and agencies a reality.
As ever, my hon. Friend the Member for Burnley has done the House a service by raising this important issue and I hope that it has given him some sense that work is under way to address many of the points he has raised. Of course, I would be the first to say that there is still a lot of work to do.