Childhood Cancer Outcomes

Derek Thomas Excerpts

Tuesday 26th April 2022 Commons Chamber

[Derek Thomas (St Ives) (Con)]

I chair the all-party group on brain tumours, which has been referred to. We have heard today of many children who have lost their lives, and many families who have faced that—we hear of that all the time in our APPG—but I want to focus my comments on the children who survive, but who do so with a terrible acquired brain injury.

This is how an acquired brain injury occurs. When a child first has a tumour, their brain is already being injured by the tumour. They may then have surgery and, again, more injury will be done to the brain during the surgery. Radiotherapy will cause more injury to the brain, and drug treatment, and so on, after that will cause further injury to it. If the brain tumour is got rid of and the child is cured of brain cancer, they are left with a life-long brain injury that will curtail their life chances and life experience.

At the moment, we in the UK do not do very well in supporting such children. Many, many children survive a brain tumour—brain cancer—but they live for years with terrible eyesight, poor access to education and all sorts of disabilities and challenges in their daily lives. Their family spend their lives trying to access all sorts of support and rehabilitation.

Quite rightly, the Government have announced that they will put together an acquired brain injury strategy. People now have the opportunity to take part in the call for evidence about what should be in the strategy. I make it very clear to the Minister that the strategy must include a chapter for children who face an acquired brain injury because of a childhood cancer or another illness or diagnosis. That would really focus us on the opportunity for immediate and intensive rehabilitation and therapy to allow those young ones to have the best possible chances, as they deserve. It would allow families to continue to support children, possibly for the rest of their life; some of them will live into old age.

We launched an inquiry into the cost of living with a brain tumour. We talked about life chances rather than money. We met ambassadors, who are children who have had brain tumours and brain surgery, and heard about all the challenges that they have faced—the amazing prejudice and barriers that they face every day of their life, particularly in the transition from childhood NHS treatment to adult treatment, as the Minister will fully understand. So much is dropped, but the opportunity is there to give those children and their families a really good lived experience and good life chances. That requires a proper understanding of what is needed to support children with an acquired brain injury as a result of childhood cancer.