Children with Life-limiting Conditions

David Linden Excerpts

Tuesday 29th January 2019 Westminster Hall

[David Linden (Glasgow East) (SNP)]

It is a pleasure to see you in the Chair, Ms Dorries. I commend my friend, the hon. Member for Strangford (Jim Shannon), for securing the debate. As one might expect, I wish to offer a few examples from Scotland, where I believe that we have a good story to tell, although we still have so much more to do. In the context of Scotland, it is important to make the distinction that funding for children’s palliative care is given parity of esteem with adult care. That is a point that I have made before to the Minister down south.

I know from my good relationship with Children’s Hospices Across Scotland, known as CHAS, that it is one of Scotland’s most well-known and best-loved charities. That is why it was right that in 2016, the SNP Scottish Government announced that they were committing £30 million in funding to CHAS, commencing in the financial year of 2017-18. That funding provides half of the agreed funding costs of running CHAS; that is very important. Not long after I was elected, my hon. Friend the Member for Airdrie and Shotts (Neil Gray) and I had the honour of visiting Robin House in Balloch, where I saw at first hand the absolutely amazing work done by CHAS to provide compassionate care for children with a life-shortening condition.

At this juncture, I pay tribute to my good friend and colleague, Alex Neil MSP, a former Health Secretary in the Scottish Government, who drove that vital funding boost for the sector. His backing for research, in particular, was immeasurable. We know from experience that engaging comprehensively with the issue through research is an absolute necessity to determine the needs of those with life-limiting and life-shortening conditions.

I am conscious that other hon. Members wish to contribute to the debate and, in particular, raise issues through the prism of English funding, so I will make a couple of brief points before I conclude. First, it felt as though we were making a lot of progress on the baby benefit bar but I am not sure how far we have got. I would therefore welcome an update on that from the Minister.

Secondly, on the issue of workforce, having spent last night participating in debate on Second Reading of the Immigration and Social Security Co-ordination (EU Withdrawal) Bill, I am concerned that there are far too few professionals with the skills, knowledge and experience required to provide children’s palliative care in hospitals and children’s hospices. Can the Minister outline what strategies the Government are pursuing to meet workforce challenges in future? That is a major issue.

Thirdly, on the difficult issue of when a child finally passes away, I am glad that my own Government, in Scotland, announced last year that they were taking action to ensure that all burial fees for children are abolished. When I was first elected to Parliament, the 32 local authorities in Scotland had different policies and charges for burial fees—it was very much a postcode lottery, so I welcome that change. I am concerned, however, that we need to do more to support families when their child eventually passes away. I absolutely welcome the Parental Bereavement (Leave and Pay) Act 2018, which was piloted through this place by the hon. Member for Thirsk and Malton (Kevin Hollinrake), but I remain disappointed that the scope of the Bill was so narrowly defined. I hope that we will have the opportunity to go back and widen it in the future.

In summary, there is plenty of work for us to do and get on with to support children with life-limiting conditions, as well as their families. We look to the Minister to take forward the consensual and strong cross-party support we have heard about today and deliver a better standard of research, funding and care for vulnerable children and their families. Again, I thank my friend, the hon. Member for Strangford, for securing this important debate. I hope that we can make progress going forward.