Cancer in Teenagers and Young Adults

David Linden Excerpts

Tuesday 1st December 2020 Westminster Hall

[David Linden (Glasgow East) (SNP)]

It is, as always, a pleasure to see you in the chair, Sir Christopher. I very much miss serving on the Procedure Committee with you all those years ago, but it is a pleasure none the less to see you this morning.

I congratulate the hon. Member for Strangford (Jim Shannon) on securing and opening the debate, and to see him back in his place after his period of self-isolation last week. He was very much missed last week in the debate that he had secured on the persecution of religious minorities. It is good to see him back in that seat—which I am sure he has probably got title deeds for now given that he is there so often.

This has been a very short but very enjoyable debate. The hon. Member for Strangford opened with a very passionate speech, as we would always expect from him, but in particular he spoke about that very poignant testimony from Alex. The hon. Member for Wakefield (Imran Ahmad Khan) spoke about young Daniel and that relationship that was struck by his father in hospital. I think hearing about three-year-old Ellis really moved us all. I cannot begin to imagine how difficult it must be for Ellis’s family as they work through losing a loved one. The hon. Gentleman has spoken very eloquently on behalf of his constituents and they should be incredibly proud to have him in here to be raising those issues, as he sits alongside the Minister.

Finally, the hon. Member for North East Fife (Wendy Chamberlain) talked about Toby’s Magical Journey in Cupar. I, too, pay tribute to Richie, Alison and Toby for that remarkable figure of raising £50,000 pounds, and it was great to hear that Toby got the all-clear in 2018. She raised an important point about the impact that the transition to a cashless society will have on charities. I hope that is something that we can tease out in the debate in Westminster Hall on Thursday afternoon about transitioning to a cashless society, particularly in the light of the covid pandemic.

On that point, covid-19 has dominated so many aspects of our lives. Much of the discussion around public health shows that it is still so vital to look after other aspects of our health and wellbeing during this time. That very much includes checking for symptoms and signs of cancer.

With your forbearance, Sir Christopher, I want to pay tribute to my colleague and my hon. Friend the Member for East Dunbartonshire (Amy Callaghan), who has been a tireless campaigner on the subject of cancer and young people. She is not just one of my colleagues in this place and my constituency; she is one of my closest friends. I congratulate her on her election as chair of the all-party parliamentary group on children, teenagers and young adults with cancer. I also pay tribute to this young woman who has survived cancer twice. As has been well documented this year, she has also been through other health challenges. This House is stronger for having the experience of people like her. I look forward to her coming back and, arguably, making a much better speech than I could ever do. I hope to do this justice on her behalf.

I also want to pay tribute more broadly to the work of the APPG. It has done fantastic work in raising awareness of the issues affecting young people with cancer and their families. The 2018 report published by the APPG, “Listen Up! What Matters to Young Cancer Patients”, looked into cancer patient experience for children and young people across the UK. That report found that 64% of respondents did not think enough was being done to create a positive experience for children, teenagers and young adults with cancer. It also discovered that 82% of young people and parents responding to the survey did not think that Government listened enough to the experiences of young people with cancer and their families.

The report offered several recommendations for helping teenagers and young people understand the symptoms of cancer, as well as for those facing cancer treatment. Those include compulsory lessons in secondary school on spotting the signs of cancer; designated hospital parking for children and young people with cancer; an agreement by the Government to meet yearly with young cancer patients to discuss their experiences; and offering access to free fertility treatment to survivors of childhood cancer, who are not offered fertility preservation before receiving cancer treatment. That report highlights that not enough has been done to support young people and their families through a challenging diagnosis.

It is important that young people know the signs and symptoms of cancer, although they may differ from person to person. The common symptoms are lumps, unexplained tiredness, mole changes, pain and significant weight change. For more information about the different symptoms and where to seek help, I advise people to go the NHS website, the CLIC Sargent website and that of the Teenage Cancer Trust.

A lot of young people have expressed worry that they are wasting doctors’ and nurses’ time, particularly during the coronavirus pandemic. I get incredibly frustrated, as a constituency MP, when people say, “I don’t want to bother the NHS or go to my GP, because they are really busy.” One of our privileges in this place is to have the voice to get this message out to our constituents: “If you are experiencing any of those symptoms, please do not worry about bothering your GP or the health service, but go and get it checked out.”

I want to reassure young people that if they have any of those symptoms or if they are worried about their health, they will be listened to and taken seriously. The NHS, in whatever part of the United Kingdom, is and always will be there for everyone. That is something we have certainly learned during the course of the pandemic. Despite the pandemic, the NHS continues actively to encourage people to contact their GP if they are worried about possible cancer symptoms. If the symptoms lead to a diagnosis, early diagnosis and treatment are really important and can improve the outcome for many young people.

I want to highlight the fantastic work of CLIC Sargent and the Teenage Cancer Trust, both of whom act jointly as the APPG’s secretariat. Understandably, for many families, when a young person receives a cancer diagnosis, it can be a very scary and confusing time. From doctor’s appointments to new treatments, the process can be overwhelming for young people. Those organisations offer advice to help young people and families to adjust to the cancer diagnosis and the treatment that follows. The Teenage Cancer Trust offers people advice on how to speak to doctors if they are feeling nervous, details of the different symptoms and case studies of teenagers and young people who have experienced treatment during the pandemic. CLIC Sargent is also a great resource, providing guidance for navigating clinical care, granting financial support and helping young people with the emotional impact of illness. Both organisations have new information around how to manage cancer during the covid-19 pandemic. Clearly, the public health crisis creates new challenges for patients, but there is still support available to help young people through this challenging time.

This year, the covid-19 pandemic has thrown unprecedented challenges at us all. From facing the virus itself to the huge financial insecurity that many people have experienced, to the restrictions and lockdowns taking us away from our loved ones, it has undoubtedly been a tough year for many of us. I say that after my grandfather was cremated yesterday. One of the hardest things that I have experienced during this pandemic was limiting the number of people at his funeral to 20. It has been incredibly, incredibly cruel from a public health point of view, and I think we would all agree that this has been such a difficult year for us.

This debate has highlighted that the teenagers and young people facing a cancer diagnosis and treatment during this time are facing even more challenges, but support is out there. Whether it be from the APPG, the NHS, CLIC Sargent or the Teenage Cancer Trust, there are people out there to offer information and guidance. It is vital that all young people check for the signs and symptoms of cancer. To reiterate, they are: lumps, unexplained tiredness, mole changes, pain and significant weight change. If a young person is experiencing these symptoms, I urge them to contact their GP. An early diagnosis will lead to the best outcome. Facing cancer as a young person can be incredibly scary and overwhelming and I pay tribute, above all, to all the young people undergoing treatment for cancer diagnoses. I thank their families, their carers and the NHS, who are working so hard to support them.