(9 years, 9 months ago)
Commons ChamberThe best copy, as he has explained, although I had better remain neutral on that point. As I said to my right hon. Friend the Member for North West Hampshire (Sir George Young), I very much believe that there should be a debate on English votes for English laws and that the changes we have set out should be implemented, come what may. I will do everything I can to bring about both those things.
Last autumn, NHS England halted the testing and licensing of the drug Translarna—a drug that could transform the lives of young boys with Duchenne muscular disease—to embark on a bureaucratic internal discussion on how it does business. Despite genuinely warm words from the Prime Minister and his attempts to move things on, we have been advised this week that the process will not change and that NHS England will continue with its public consultation and further discussions. While it is talking, young boys will stop walking. Can we have a statement from the Health Secretary about what exactly is happening, so that the House can express it views? Clearly, he does not seem able to intervene with NHS England, and as long as that does not happen, these young boys will see their lives destroyed.
The Prime Minister has spoken about this before, in response, I think, to the hon. Gentleman, who regularly pursues this matter in the House. I think the best thing I can do to help is to inform the Health Secretary of his concerns about the time scale and ask him to respond directly. It is also possible for the hon. Gentleman to pursue debates through all the normal methods, in addition to his having raised it in the House today.