Special Educational Needs

Clive Lewis Excerpts

Wednesday 21st April 2021 Westminster Hall

[Clive Lewis (Norwich South) (Lab)[V]]

I thank you, Sir Edward, for chairing, and my hon. Friend the Member for Slough (Mr Dhesi) for leading this important debate. One does not have to be a parent to want to live in the kind of society where every adult and child is treated with dignity and respect, regardless of their background, ability or race.

As a parent, of course, I worry about my young daughter, but not just her. I worry about the world she will grow up in, the country she will call her own and the community she will be a part of. That means I want a society for her where every person—every child and every adult—is treated with dignity and respect. That is what I see as our responsibility as lawmakers: to create the conditions where every child and adult can thrive.

Yet I am all too aware that that is currently not the case, particularly in the experience of children with special educational needs and disabilities, and their families. The parents of children with special educational needs and disabilities in Norwich South tell me about the unending barriers they face when trying to get support. Many are part of the fantastic organisation, SENsational Families.

To start, the length of time it takes to get a diagnosis for many children means that their needs are not being met from the beginning. In Norfolk, it takes roughly two years for children to get a diagnosis of attention deficit hyperactivity disorder or autism spectrum disorder. That is two years of anxiety, waiting to get a child the support they need. Even once they have the diagnosis, families find more delays in getting an education, health and care plan in place. Norfolk is one the 10 lowest-performing authorities in the country. Only 20% of EHC plans are completed within the Government’s 20-week timescale. It is appalling that 80% of EHC plans are, by the Government’s own metrics, not being completed on time.

When it comes to finding a school place for their child, there is more agony, anxiety and frustration. There is a severe shortage of specialist places available in Norfolk, which leaves many children struggling in mainstream schools or being excluded. Parents tell me they have to fight at every juncture for the rights of their children. If they do not continually fight, the children end up out of education. They also explain how it seems that parents who shout the loudest get the support. In addition, parents can speed up getting a diagnosis by paying privately, at a cost of around £1,500, meaning that we have a two-tier system where more wealth and money gets people access to better services faster. Is that really the kind of society that we want to live in? Should children be deprived of essential and life-enhancing services because their families cannot afford to fast-track their diagnoses?

The work done by the all-party parliamentary group for special educational needs and disabilities, which is chaired by my hon. Friend the Member for Sheffield, Hallam (Olivia Blake), chimes with much of what I am hearing in my constituency: young people with special educational needs and disabilities, and their families, feel forgotten, left behind and overlooked. It should not have to be this hard, and it certainly does not have to be this way.

The struggle faced by the parents of children with special educational needs and disabilities is not just about access to education or services. The lack of specialist places and delays in diagnosis are symptoms of much deeper problems caused by the failure of successive Conservative Governments to invest in creating strong social infrastructure. Those children and their parents need not only the right educational support, but safe and affordable housing, universal healthcare, a universal basic income and financial support that lessens the burdens on carers—strong social infrastructure that ensures that every person in our society can lead a dignified and fulfilling life.

I support the calls from the Disabled Children’s Partnership for an ambitious, funded covid-19 recovery plan to help children catch up on a lost year. Beyond that, we must also invest in the social infrastructure of this country, so that we have a fair and green recovery from the pandemic, which leaves no one behind. Children with special educational needs and disabilities and their parents are being failed by the system at every turn. We can do better; we must do better.