Dementia: Covid-19

Chris Bryant Excerpts

Thursday 12th November 2020 Westminster Hall

[Chris Bryant (Rhondda) (Lab)]

How the mind sits within the brain is still one of the great mysteries, I guess. I do not know whether Members have seen the ballerina Marta González listening to the music from “Swan Lake” and just beginning to be able to remember the choreography from years before. That inspired in so many a deep sense of that complicated relationship, where there is clearly a mind that has memories, but it cannot quite make the brain do what it wants it to do.

I wanted to speak in this debate because my family has been through quite a lot of that this year. I will talk not about that specifically, but about some of the things that have been common to many people in the country this year. Because many families have been isolated from other parts of their families, they have often not been able to check up on the elderly as frequently as they might want. They may not have been allowed to visit, especially if they are in different parts of the country, and they will not have been able to see the oncoming early signs of dementia. Doctors have sometimes simply been unable to diagnose, because they could not be in the physical presence of the person about whom there are concerns—diagnoses are a third down on normal, as we heard earlier.

The virus itself has, of course, added considerably to levels of anxiety, depression and a sense of paranoia in many people, with a growth in conspiracy theories. That has all added to the complications for families dealing with people who have early-onset dementia or other forms. The virus has direct neurocognitive effects that we are only just beginning to understand.

People have also had dietary issues, because they have not had access to the same kind of food as they might normally. That may well have added to their delirium, which, on top of dementia, can make it more difficult for people to go into care homes. They may need psychiatric support rather than care home support. Yet again, families are finding it terribly difficult during this time.

Families have found it very difficult to get help. The immediate instinct, once the diagnosis has come in, is for people to think about whether they can bring their family member into their own home. If that is not possible, they think about the other support there will be. Care homes have been up against it. There have been terrible anxieties about whether people have other comorbidities that will make it more difficult for them. Many families feel as though they have been bashing their head against a wall.

On top of that, of course, although lots of people had sorted out lasting power of attorney long before, which I would encourage everybody to do if they can, when I rang the Court of Protection, the emergency officer told me that emergency cases might be seen in nine months’ time. Sorting that out for an individual family member may make the difference between whether it is possible to get them into a care home and get them the support they need or not. Nine months—we cannot have that kind of backlog. That is a kind legal misery of the state on top of everything else.

I have done a lot of work on brain injury and some of the things are very aligned. It was terribly depressing to see the family of Bobby Charlton announce the other day that he has dementia, probably from concussion from heading the ball. I am sick and tired of people saying, “Oh well, the ball’s not as heavy as it used to be.” Did nobody do physics at school? It is about the speed of the ball, not the weight of the ball.

There is a lack of neuro-rehabilitation. A quarter of all major trauma centres still do not have a neuro-rehabilitation consultant. Some 57% of patients who have acquired brain injuries still complain that they are unable to get their full support. There is a massive funding crisis for all the organisations that work in that field, such as Headway, the UK Acquired Brain Injury Forum and many others.

My heart goes out to everybody, and my heart sort of goes out to the Minister, because there is a lot to deal with, but I do not think we will be able to do that unless we look at all these issues in the round. The one thing that I beg her to do is to set up a cross-departmental ministerial team that looks at it from Defence, Work and Pensions, Treasury, Health and Social Care—all the different Departments—so that we can really turn this around.