Business of the House

Cheryl Gillan Excerpts

Thursday 11th June 2015 Commons Chamber

[Mr Speaker]

Order. Perhaps we can return to the important subject of the business of the House for next week. I look with some confidence to a senior stateswoman in the House to provide an example of the brevity that is required on these occasions. I call Mrs Cheryl Gillan.

[Mrs Cheryl Gillan (Chesham and Amersham) (Con)]

My inspirational constituent, nine-year-old Archie Hill, has Duchenne muscular dystrophy, and with his parents Gary and Louisa has been campaigning to get NHS access to Translarna, the first treatment to address the underlying genetic cause of Duchenne muscular dystrophy. The process for clearance by NHS England was stopped in December 2014 but the decision is due in the next few weeks. May we have an urgent debate to reinforce the desperate need for this drug for those individuals whose quality of life could be drastically improved by immediate access to Translarna?

[Chris Grayling]

I suspect that many of us in the House have constituents and families of constituents who have come to see us, having experienced the dreadful impact of Duchenne muscular dystrophy, and our hearts go out to all those who suffer from this dreadful disease. The matter will be debated in Westminster Hall next week. It is a matter that is very much on the agenda of my right hon. Friend the Secretary of State for Health. I know that he will make more information available to the House shortly.