Acquired Brain Injury Action Plan

Charlotte Cane Excerpts

Thursday 4th December 2025 Westminster Hall

[Charlotte Cane (Ely and East Cambridgeshire) (LD)]

It is a pleasure to serve under your chairship, Dame Siobhain. I congratulate the right hon. Member for South Holland and The Deepings (Sir John Hayes) on securing this debate and thank him for his hard work as chair of the APPG.

I want to pay tribute to Brainkind Fen House in my constituency of Ely and East Cambridgeshire for its incredible work to support people with acquired brain injuries. It provides a safe and secure space for patients, with rehabilitation and support so that people can thrive after brain injury. In preparing for this debate, it shared with me the story of my constituent Florence, which I want to share today.

Florence gave birth to twins, which should have been a very special time in her life. Unfortunately, just two weeks later, she suffered a stroke resulting in a brain injury. Her ability to speak became severely impaired. She found it difficult to walk or use her hands. Let us imagine being a new mother and suddenly finding that our body will not let us care for our babies. Florence went to Brainkind Fen House and after just five months of rehabilitation with its clinicians, she regained the use of her hands so she can now change and bathe her babies. Her speech recovered and she is able to walk again. I cannot do her story justice on my own, so I will quote her directly:

“I felt helpless. My whole world had crumbled. But Brainkind offered so much support. They made me realise I’m not alone. The staff rallied round, organising donations of toys and clothes for my children so we could spend time together. Then, as I began to recover, they took me shopping so I could buy things for my children for the first time.”

Florence’s story is a special one, showing us the vital role that specialists play in ensuring that an acquired brain injury is not the end, and that there can be light at the end of the tunnel.

I was also privileged to meet an individual at an event at Parliament this week; the event was on a different subject, but she wanted to talk about acquired brain injuries because, at the age of 16, her brother suffered an injury and was almost a completely different person afterwards—something we have heard from others. Two things she said stood out. She said it was almost as though he had gone through a “factory reset,” and she had to mourn the brother she once knew and bond with the brother she now had, because they were two different people. She said, “His smile is different”. Everyone she spoke to did not notice any difference, but she did. His facial muscles moved differently, and as someone who had known him all his life, she could spot that when others could not.

That story shows the pain these injuries can cause to a person’s loved ones. In this case, it caused a sense of grief; her brother had not passed away, but the brother she knew was gone, and she now had someone else to bond with.

Brainkind Fen House gives strong support to brain-damaged people and a range of therapies to help them recover. There are strict criteria for continued NHS funding after the first few months, which means that small improvements are not always sufficient to secure funding for ongoing rehabilitation. The person is then moved into long-term care, with little, if any, further support.

I have another case in which the person was responding to rehab, but the funding was coming to an end. After significant advocacy from their parents and the staff at Fen House, the funding was extended. That person is now waiting for a suitable flat, and his parents are fighting for a care package to support him in independent living.

People should not have to fight for this support, and it should not need an MP’s intervention. We need a clearer, fairer process to ensure that people get the rehab support they need, and then the appropriate housing and care support as they move back into the community. I ask the Government to publish the acquired brain injury action plan as soon as possible, and to include in it the right for those who have suffered to have access to a named GP. That must go hand in hand with better social care for disabled people and free personal care.

The stories I have shared highlight that more needs to be done, not only to help patients but to understand the impact on their friends and family. I hope this debate highlights the need for urgent action, so we can do more to support patients and their loved ones.