Brain Tumours: Research and Treatment

Charlie Maynard Excerpts

Thursday 8th May 2025 Commons Chamber

[Charlie Maynard (Witney) (LD)]

I too thank and commend the hon. Member for Mitcham and Morden (Dame Siobhain McDonagh) for securing the debate. It has been a pleasure to work with her and we are all in awe of her single-minded relentlessness on this topic, from which we can all learn.

I have a similar story. Two years ago, I received a call from my nephew and my two nieces asking me to come over quickly. I jumped in the car and drove as fast as I could to my sister’s house, where I found her semi-conscious on the floor, which was the start of a journey over the past two years. She was diagnosed with a glioblastoma. She underwent surgery, chemotherapy and radiotherapy. She is somewhere up there in the Gallery now, and she is doing incredibly well. She is an absolute inspiration to everyone who meets her in her raw courage, determination, empathy and joy in the world. We do not know how it goes from here, but she brings home in her thinking how wonderful and beautiful our world is. She has also been a driving force. We have raised £60,000 and counting so far for the Brain Tumour Charity, which does a wonderful job, and she has brought people in left, right and centre who have suffered or are suffering from GBM or have lost loved ones to GBM. She is engaged, thoughtful and determined, and my heart goes out to her.

I will mention the stats. We know that there are 120 types of brain tumours. Some 12,000 people are diagnosed with a brain tumour every year and—the nasty one—5,300 people die from a brain tumour each year in the UK. In May 2018, the Government announced a research fund of £40 million on the back of the death of Baroness Tessa Jowell to encourage new research into brain tumours, administered through the National Institute for Health and Care Research. On that day, the then Health Secretary, the right hon. Member for Godalming and Ash (Sir Jeremy Hunt), said:

“At this agonising time, I hope her family can draw comfort from the fact that her legacy will be lives saved and heartbreak averted for thousands of other families.”

However, three years later, in May 2021, the then Health Secretary reported that just £8.8 million of that £40 million had been allocated for dedicated brain tumour research. Three years after that, in March 2025, under a new Government, spending to date directly on brain tumour research was just £11.3 million. Concerningly, a little bit of text was added after that, which said:

“plus an estimated £31.5 million in infrastructure”.

I have three key questions for the Minister, which I would love some answers to, because more than 5,000 people dying each year is far too many. This has been going on for far too long. We need to do more and fulfil the promises that this House has made.

The three questions are as follows. Will the Minister confirm that the new wording is not an attempt to include the £31.5 million of infrastructure spend in the £40 million headline number, with a view to getting the NIHR and the Government off the hook on their commitment to spend the full £40 million that they have committed to new research into brain cancers? Will the Government commit to allocating and spending the £40 million within a decade, which is already far too long, of their original May 2018 commitment—by May 2028, which is three years from now? That is doable if we put our minds to it, and we need the Government’s help. Will the Government stand by the May 2018 commitment to host an annual global conference to bring together world experts on brain cancer? That has not been done, and we committed to that as a House. Will we stand by that, commit to it and kick off a conference by the end of the year?